Confusing Results From Enterolab

[no-more-muffins]

I just got back my test results from enterolab and I am shocked and really unsure about what to do. I was so sure I had a gluten problem.

So here are my results:

C) Egg, Yeast, and Soy Food Sensitivity Stool Panel

Fecal Anti-ovalbumin (chicken egg) IgA: 2 Units

Fecal Anti-saccharomyces cerevisiae (dietary yeast) IgA: 6 Units

Fecal Anti-soy IgA: 9 Units

Gluten Sensitivity Stool Test

Fecal Anti-gliadin IgA: 6 Units

Cow's Milk Protein Sensitivity Stool Test

Fecal Anti-casein (cow's milk) IgA: 8 Units

I have had all the typical symptoms of gluten intolerance. Poor growth as a child, late puberty, nausea, stomach problems, frequent pooping, anxiety, depression, weight loss, fatigue, weakness, insomnia.

My blood and biopsy tests came back negative. I was so sure I have gluten intolerance. What do I do now? I have been eating gluten free for a month and have noticed feeling better. I have been sick for the last few days which I attribute to geting cc from taco bell.

My 21 month old daughter tested positive for gluten sensitivity (18 units).

I am beside myself. What do I do? I could really use some advice. I was hanging on to the gluten sensitivity thing because if that isn't my problem then I don't have anything else to try. There is nothing else I can do. I know I can make IgA because my blood test indicated that I could make IgA. Should I just keep eating gluten free and see? I had been gluten free for 3 weeks when I did the testing. Could I still have a wheat allergy and not be gluten sensitive? I don't know what to do.

HELP!

[ravenwoodglass]

If you post your levels from the total IGA that might help. If you are on the low side that may be significant. If you are feeling better on the diet then I would keep it up, you are showing antibodies even though the levels are not extremely high.

[no-more-muffins]

My total IgA was 115. The reference range from the lab was 68-378. My ttG was 0. I don't know if that means much but the lady I talked to at enterolab said that it was possible that I didn't produce huge amounts of IgA and that I could be intolerant to gluten and still never make enough of the IgA to produce a positive result. She also said that she had never ever seen a ttG that was 0. I am wondering if my results are valid or if I am really weird. I guess it is possible (but rare) to have a sensitivity to another protein in wheat besides gluten. Like glutenin.

Has anyone had any similar experiences with this??? It is Soooo frustrating.

[ang1e0251]

Did you ask them what IGA number would be considered IGA deficient?

[no-more-muffins]

Did you ask them what IGA number would be considered IGA deficient?

I didn't ask them but I am assuming that they just follow the reference ranges that are given by the lab.

[no-more-muffins]

I have been reading in the "Healthier Without Wheat" book by Dr. Wangen and it has given me a new direction to look. He says:

"Gluten seems to be responsible for most reactions to wheat. It is also possible to have an allergic reaction to wheat without gluten being involved....With a non-gluten reaction to wheat, all gliadin, gluten and celiac testing will be negative. But tests that measure your reaction to whole wheat (rather than only to gluten) will be positive....This is not a traditional wheat allergy. It is really a chronic wheat allergy, equivalent to a gluten intolerance but to another component in the wheat....Some component of the grain other than gluten (gliaden) is the problem."

I am trying to see if I can find a place that does IgG testing for whole wheat or maybe the glutenin proteins. I think the lab that Dr. Wangen is associated with does that testing but I don't know yet how to go about it or whether it would really be worth it.

My hubby and I decided to get our other kids tested, at least the blood tests to start with. If those come back negative I think we'll move on to stool

I actually convinced my husband to get screened as well, even though he is sure he doesn't have it. I wanted to get him checked because he has been having abdominal cramping, looser stools, lots of headaches, neck pain, carpal tunal syndrome, acne, and weight gain, nasal congestions, "allergies", red eyes, heartburn, tired all the time, dark circles under his eyes.... (Sounds like symptoms to me...) I guess I just figure if we are already doing gluten free at home he might as well do it all the time.

Besides, if our baby has it, maybe she got it from HIM.

[Bethinjapan]

This is very interesting to me too. I'm waiting on results of blood tests and biopsy, but am fully expecting them to all come back normal (based on a few things--long story-- and a WHOLE lot of reading up on the issue). I've been gluten free for three days now, and my diarrhea turned off like a light switch (went gluten free for a few days a month or so ago as well with the same result), but I'll need to give it a try for much longer to see if other symptoms/systems are affected. Now I'm trying to figure out how in the world I'm going to keep this up if they tell me I'm fine!? And I was just SURE this was my problem!!