Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This

Emt719

By Emt719
in Related Issues & Disorders

Recommended Posts

Emt719 Newbie
Emt719
Posted

I am 25 and diagnosed in Feb with celiac, I also had my gallbladder removed 5 days prior to being diagnosed and they said they my lympnodes were extremely inflammed from which found out was the celiac. I have been sticking to a very stict diet and have accidentally gotten glutened a few times and dont know it til the next day, but recently in this past 2 weeks, I have had bloating and alot of gas build up that is causing pressure in my belly and having pretty bad muscle spasms and being treated with bentyl (antispamtic) I wondered if anyone else has had problems like this and if so what has helped... I have now eliminated dairy from my diet because I was eating alot of it and having no problems, but i thought maybe that could be causing it. The doctor also has been treating me since surgery with prilosec due to irritation of the liniing of my stomach due to years of eating gluten. Went to the doctor when he prescibed bentyl one week ago and he said it also could be IBS which is common in celiac? Can someone please give me advice!!!

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

The first thing you need to do is check your scripts and any supplements for gluten. Don't trust your doctor to know ask the pharmacist or call the company directly.

Take a good look at anything new you may have added in the last two weeks and also check to make sure about whether stuff is made in the same plant as gluten items. Many of us become more sensitive to CC as we heal.

In addition it is a good idea to check all your toiletries and make sure if you are sharing a home with gluten eaters that no one is double dipping into condiments, nut butters jelly etc.

One last thing is that although distilled gluten grains are safe for most some of us will react to them. If you drink alcohol it is best to stay away from gluten grain alcohols until you have had time to heal fully.

You may also want to consider trying Pepto Bismal liquid for the stomach pain instead of an acid blocker. For some it does away with the pain in one dose and you won't have a risk of any rebound with the pepto which you may have with the script meds. Being gluten free will help you stomach heal if that was the cause of the irritation.

Emt719 Newbie
Emt719
Posted
  • Author

Thank you so much, I will def. check into the scripts tommorow and sometimes i think i am so worried about getting glutened and feeling bad that i cause stomach problems from anxiety, trying to work on that. I do share the home with husband and he tries so hard to be careful but he slips up and i cant fault him for that. I just keep hoping with time this can only get better (fingers crossed) I hope this site is helpful to me, celiac is not common at all where i live and some people still think my doctors crazy. Thank you any advice is much appriciated.

ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you so much, I will def. check into the scripts tommorow and sometimes i think i am so worried about getting glutened and feeling bad that i cause stomach problems from anxiety, trying to work on that. I do share the home with husband and he tries so hard to be careful but he slips up and i cant fault him for that. I just keep hoping with time this can only get better (fingers crossed) I hope this site is helpful to me, celiac is not common at all where i live and some people still think my doctors crazy. Thank you any advice is much appriciated.

This site will be very helpful to you I am sure. There are a lot of very knowledgeable people who have walked in your shoes. Do feel free to ask any questions you need to and feel free to vent frustrations. It will get better but there is a lot of learning that goes with the gluten free lifestyle, it is much more than just food. Labeling regs also leave a lot to be desired and when in doubt call a company before you consume anything. It does get easier with time. If you stick with whole unprocessed foods in the beginning it helps you to heal faster as there is less risk of cross contamination. Do read as much as you can here and hang in there. The stomach pain is more likely to be gluten sneaking in than anxiety. One thing you also may want to consider is either deleteing dairy or sharply restricting it at first. The same area damaged by gluten produces the enzymes you need to digest dairy. It may help the healing go a bit faster to avoid it and then when you have been feeling good tummy wise for awhile add it back in starting with yogurt and hard cheeses. Since you live with a gluten eater there are a couple of things you can do. Get your own condiments and label them, also be sure to get another dedicated gluten free toaster for your use only. Many that live in a combined house designate one area for making gluten sandwiches etc and if he cleans up his own crumbs that will help. I hope you are feeling better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,255
    • Most Online (within 30 mins)
      7,748
    Miss Betty
    Newest Member
    Miss Betty
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      Kan-101

      By Scott Adams · Posted

      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
    • trents
      Is Caputo gluten free flour really free of gluten?

      By trents · Posted

      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
    • trents
      Celiac symptoms

      By trents · Posted

      Welcome to the forum, @Dana0207! Another diagnostic approach would be to get biopsied for dermatitis herpetiformis which would not require an extensive exposure to gluten. But it would need to be done during an active outbreak of the rash. Celiac disease is the only known cause for dermatitis herpetiformis so it would be a definitive diagnosis. It might be tricky, however, to time the dermatology appointment with the gluten exposure and outbreak.
×
×
  • Create New...