Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Got My Enterolab Results!


Spidey Sense

Recommended Posts

Spidey Sense Newbie

I got my enterolab results back today. I couldn't believe that they came via email on a Sunday!

So here we go:

Gluten Sensitivity Testing

Fecal Antigliadin IgA 5 Units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Microscopic Fecal Fat Score: 96 Units (Normal Range < 300 Units)

HLA-DQ Gene Molecular analysis: HLA-DQB1*0301, 0501

Serologic equivalent: HLA-DQ 1,3 (Subtype 5,7)

HLA gene analysis reveals that you have a genotype that predisposes to gluten sensitivity (HLA-DQ1,3 especially that involving DQB1*0501, 0301). This genotype also can predispose to microscopic colitis and other autoimmune syndromes.

I was gluten free 2-3 weeks before the test, but I suppose that isn't long enough to really change the results... so I guess I'm not gluten sensitive. I am still going to NOT eat gluten for the next few months because I can see improvements in how I feel. My horrible gut pain and nausea is gone after eating some meals- it has been very wonderful. I figured out that a salad with cherry tomatoes and ham chunks does not upset my tummy at all... whereas grits does. So now that I got wheat out of my diet, I can start to pin point my other food allergies/ intolerances. I am relieved not to have Celiac, but I am dissapointed that I still haven't figured this thing out.

-Wendy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



snoopylian Apprentice

You have the same genes I have - mine are - HLA-DQB1*0501, 0301 - :o) maybe we're sisters. lol

Anyway, I / we have two genes predisposing us to gluten sensitivity. (I know this because when I got my results I emailed them back and confirmed that interpretation). The difference between celiac and gluten sensitivity is that celiac is confirmed damage, via biopsy, to the villi in the intestine. Gluten sensitive individuals can have all the same things happen to them as celiacs just without the visible damage to the villi.

Quote from my results -

" Two copies also means

there is an even stronger predisposition to gluten sensitivity than having

one gene and the resultant immunologic gluten sensitivity or celiac disease

may be more severe".

go to: Open Original Shared Link - I had to print this out and read it a couple of times because he lost me when he got technical.

My daughter is almost 4' 8" and she is fully grown (I'm 5' 2", my sis is 5' 5'). Her stool test came back at 8, but remember - I gave her one gluten sensitivity gene. She was seen by an ped endo for two years and they couldn't find anything wrong with her (they never checked celiac or gluten sensitivity).

As for being gluten free affecting your test no that wasn't long enough to affect the stool test. My son was gluten free for three to four months and his test came back at 34.

Spidey Sense Newbie

That is cool that we have the same genes. I wonder what the chances of that are :-)

I read thru the page that you linked me to, and there is a lot of information to absorb in one sitting. I just find it fascinating that doctors don't automatically screen for celiac.

One good thing that has come out of our new eating habits is my boyfriend Ian's irritable bowel has cleared up quite a bit. He's had irritable bowel for as long as I've known him- 7 years now. I didn't understand what he was going thru until 3 years ago when all my GI symptoms started. Aren't we a miserable couple!

Now for dinner and breakfast he has gluten-free food, and we can actually go for walks after dinner instead of staying close to the bathroom. If only he would stop eating pizza for lunch...

-Wendy

julie5914 Contributor

Wendy, have you been tested for gall bladder trouble? Just something else to rule out with stomach pain and fullness. Another is ovarian trouble. Good luck finding it out - I know it is frustrating - I was diagnosed with IBS without them testing for anything at all, so when I told other doctors that I had been told that, they were just like oh, ok, insted of, well it might be something else... Man, I hope it is something else, cause there is just no hope with IBS, you know?

Spidey Sense Newbie

Julie, I did have a sonogram of my gall bladder to check for stones, but all was fine with that. I had some general blood work that came back today, and my white blood cell count was low- I'm not sure what that means. I also have mild anemia and a higher than normal fasting blood glucose level.

Right now I am still assuming that I feel sick from the foods that I eat. Salads work great for me, so I will eat salads at work so I don't drive my boss nuts, and then I will experiement in the evening at home.

gf4life Enthusiast

Wendy,

2-3 weeks *shouldn't* effect the results of the stool test, but it could if there were other factors. Such as if you might be IgA deficient, or if you were on a low gluten diet before being completely gluten-free, or if you had minimal damage and healed very quickly.

You have genes that can cause gluten sensitivity and your symptoms lessen (or go completely away!) on the gluten-free diet, then you should stay gluten-free. You could still be gluten intolerant even with the negative results.

You can have a bloodtest (total serum IgA) that can tell you if you have IgA deficiency. It can also cause other food allergies/intolerances, since IgA is the immunoglobulin that protects all of the mucous lined body parts, like the eyes, mouth, throat, lungs, gastrointestinal, and genitourinary tract. So if you have frequent infections or any problems with these parts of your body, then you should be tested. You can read more about it here:

Open Original Shared Link

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,545
    • Most Online (within 30 mins)
      7,748

    Jem68
    Newest Member
    Jem68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.