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Ulcerative Colitis?

lonewolf

By lonewolf
in Related Issues & Disorders

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lonewolf Collaborator
lonewolf
Posted

My 14 year old son just had an endoscopy and colonoscopy this morning. The only problem that showed up is damage in his colon - he definitely has Ulcerative Colitis. It's better than Crohn's, which is what we thought it would be. He has to take Asacol "indefinitely" according to the GI doc.

My son is already gluten-free, and has been for several years. We're eliminating dairy again starting today. I was diagnosed with colitis way back in college, and then IBS and all my symptoms disappeared when I went gluten-free, dairy-free, soy-free and egg free. I'm still fine now and have reintroduced eggs and occasionally cheat with small amounts of dairy and soy. I've heard that Ulcerative Colitis is worse than just Colitis or IBS.

I've been doing a ton of research and can't get much good information. I think we're going to try probiotics, aloe vera, L-Glutamine and going dairy free for now.

Does anyone have any "real" experience with this? I would love to know some personal experience with what works and what doesn't. Doing research has been very frustrating - everthing just says that there's no cure and that alternative therapies and diets won't help. But I also read that the medications don't work well either. It's tricky when it's your child. I have to give him the medication for a while at least - until he's in remission. If it were just me I would try dietary changes first.

Any ideas?

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ravenwoodglass Mentor
ravenwoodglass
Posted

I wish I had some advice for you but I did want you to know how sorry I am that this has happened to your son. I think your plan is sound and I do hope he is feeling better soon.

ksymonds84 Enthusiast
ksymonds84
Posted

Liz, you may want to pop over to the perskyfarms.com colitis boards. Most have MC colitis but others have general colitis, celiac etc. Almost all of them are gluten free, dairyfree, and soy free and that it DOES help their colitis. Tex and Polly (a pediatrician) are the moderators and I bet they would have some fantastic advice for your son!

Michi8 Contributor
Michi8
Posted

The Specific Carbohydrate Diet was developed for treating IBD such as Chron's and Colitis. It may be worth checking out:

Open Original Shared Link

Michelle

lonewolf Collaborator
lonewolf
Posted
  • Author

Thanks for the responses!

I'll pop over to the perskyfarms board very soon.

I actually came on here just now to ask a question about the SCD. This is WAY harder than if it were me. My son doesn't want to talk about it and is only willing to stay gluten-free and go dairy free. At least he's willing to do that much! I'm not sure if I can swing doing the SCD for him (and I'd do it with him) with a husband and 3 other kids in the house. I like to cook, but once school starts I work too and I can't imagine having enough time to make 2 sets of meals most days.

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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