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My Big Comeback Of 2009

jshelton999

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jshelton999 Apprentice
jshelton999
Posted

Over the last 15yrs, I've made countless comebacks...from hypothyroidism...pituitary failure...sleep apnea...asthma/allergies...

I started 2009 with a great deal of optimism. My pituitary disorder had been miraculously been reversed and I had finally withdrawn from the main steroid medication (Cortef) used to treat it...but then all hell broke loose and I was on the couch sicker than I had been in years... Apparently, the steroid medication which is an immune-suppressant muted the underlying gluten disorder although I still had frequent bouts of what was explained as stomach flu or adrenal fatigue.

After months of being told it might just be all in my head, I finally put the pieces together and a stool test from Enterolab confirmed that I indeed had a serious gluten disorder...

I've been on a gluten-free diet for 2 months and just like all my comebacks before, I'm finally back on my bike...training for a hilly 50-mile ride in October...

Here's a video I made using the pocket-cam I take on the bike with me... I hope you enjoy it... :)

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ravenwoodglass Mentor
ravenwoodglass
Posted

Isn't it great when we feel better. I am glad you have improved so much.

ang1e0251 Contributor
ang1e0251
Posted

Good job seeking your own dx!

jshelton999 Apprentice
jshelton999
Posted
  • Author

Thanks guys :)

It's so great to find this forum with people who actually know how it feels to go through so many years of misdiagnosis and often being treated as if their medical condition was a character flaw...

Dan300 Newbie
Dan300
Posted

Hi Jim, glad to see your feeling so great ! I to started sleep apnea therapy in Jan, that helped a lot of my problems but I still had a skin problem that I was dealing with for over 30 years , went to doctors for 25 years , told take these antibiotics, don't scratch , all in my head , ect ! on sleep apnea.org some one mentioned celiac and the different symptoms which lead me here with all these helpful people, started GFD end of march and 95% of my DH problems have resolved. I'm 61 years old and I'm so thankful to finally get some answers. after 8 months of research I found www.dogtorj.com (net ?) a member of this forum , who explains in detail what's going on with food intolerances, he also says that god made us perfect and that our problems are caused by what we knowingly and unknowingly do to ourselves. take care , Dan

maile Newbie
maile
Posted

congrats on beginning the training for the ride :D

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    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

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    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
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      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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