Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice?


starlet

Recommended Posts

starlet Newbie

Hi,

I am new to this and wanted to see if I can get some advice. I have two kids that had various health problems since pretty much they were born. Between the both of them they have asthma, vitiligo, eczema, vitamin deficencies, big bellies, constipation, stomach aches,etc. They both responded really well to the gluten elimination, actually pretty dramatically. I have not really tested them for celiac, as my pediatrician pretty much refused. I am content with the improvement and believe that they have celiac and prepared to go with that.

Now my ex-husband on the other hand, even though impressed by the improvements, thinks that giving them a break with gluten is good but he will try to reintroduce the gluten after a little while, especially when he finds out just how careful he has to pick out the food, that its more expensive (I have been packing them lunches and snacks for when they go over there). Despite my efforts, he does not believe in food allergies, and especially in celiac.

Now my dilemma is that the girls have been off gluten and even if I could find someone to order the testing, do I have to put them back on gluten? Is there a test that would not require it?

How accurate are the testing? And what are the good tests?

Katie

Also, me and my mom got tested awhile ago for other reasons and our IgA were 6 and 4 respectively (I am convinced my mom has it). So we asummed that we dont have it. Now does that mean that we are IgA deficient? What tests would you guys recommend?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,013
    • Most Online (within 30 mins)
      7,748

    Dragon1
    Newest Member
    Dragon1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.