Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medication Changes


Googles

Recommended Posts

Googles Community Regular

I am on two medications that I have gotten used to the side effects from them and put up with them given the benefit I get from the medication itself. Latley I have noticed that I have been having less side effects, but it is also possible that my medication isn't working as well. I can't be sure because of all the other stress going on in my life right now if it is the stress or if it is my medication being metabolized at a different rate. My doctor doesn't know a lot about celiac disease so I'm not sure how to bring it up in the context of maybe needing my medications adjusted. However, I also am moving in two weeks and don't want to be changing my medications while that is going on. Does anyone have any advice? Have other people had to change medication doses once going gluten free? (I've been gluten-free shortly over a month.) Any advice would be helpful. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DreamWalker Rookie

It was sort of the opposite after going gluten-free with me. Before, quite a few meds seemed pointless which I mentioned to a doctor once who... didn't believe me. So, I dropped it.

Anyhow, are you taking an extended release form of a med? The molecule is attached to a polymer which your body has to digest through before receiving the intended medication. Usually this is mixed with the "instant" release (i.e. the active ingredient/molecule isn't coated with something you have to digest through). I would benefit in the morning when I took my first dosage yet after two hours (this med was supposed to last 7-9 hours) it would cease working (in very obvious ways). Then, by the evening I'd feel it "kick in" again. (It was an ADHD medication.) I couldn't sleep for the life of me due to this. Four years later and seven/eight months after going gluten free, I oddly don't have that issue anymore.

I hope that helps.

If your doctor doesn't believe you or take you seriously - find another one. Another thing to check into is if you've switched generics. The FDA allows 20% deviation from the brand's original formula.

kyle1957 Newbie

I have had the same experience as DreamWalker with my adderall for ADD. Had to switch back to the immediate release form and take dose three times a day to get any effect. I am hoping this changes as my insides heal. This seems to be the case with my synthroid. I had been at 200mcg a day, after going gluten free I have had dropped down to 125mcg per day. I don

Googles Community Regular

Thanks for your experiences. My meds are an antidepressant and a mood stabilizer neither are extended release, I just take them twice a day. I can tell I am still getting some, I just worry that I'm not getting as much as my depression is raging back. The really complicated part about it right now is that my psychiatrist knows nothing about celiac disease. (though neither does my pcp or the nutritionist I saw). I will be forced to change docs as I am moving, but I don't know how much choice I am going to have since I have very limited resources and no mental health insurance once I move. My psychiatrist thinks that my reactions are just grief over moving. While I can see that some of it would be, the crying jags and extreme depression seem more reminiscent of past times when I've needed to adjust my meds. I can't really go up on one because I'm already above the recommended doses. The other one I have to be careful with because I have always been really sensitive to any increase in dose (which is totally affected by what I eat). So for right now I just feel overwhelmed by everything. Thank you for your input and examples and any others that people give.

Lawspike Rookie
Thanks for your experiences. My meds are an antidepressant and a mood stabilizer neither are extended release, I just take them twice a day. I can tell I am still getting some, I just worry that I'm not getting as much as my depression is raging back. The really complicated part about it right now is that my psychiatrist knows nothing about celiac disease. (though neither does my pcp or the nutritionist I saw). I will be forced to change docs as I am moving, but I don't know how much choice I am going to have since I have very limited resources and no mental health insurance once I move. My psychiatrist thinks that my reactions are just grief over moving. While I can see that some of it would be, the crying jags and extreme depression seem more reminiscent of past times when I've needed to adjust my meds. I can't really go up on one because I'm already above the recommended doses. The other one I have to be careful with because I have always been really sensitive to any increase in dose (which is totally affected by what I eat). So for right now I just feel overwhelmed by everything. Thank you for your input and examples and any others that people give.

No advice here... BUT, I sure hope you get some relief and peace - SOON!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,602
    • Most Online (within 30 mins)
      7,748

    Karen Baumann
    Newest Member
    Karen Baumann
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Alibu
      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
    • Scott Adams
      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...