Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crumby Kids


SGWhiskers

Recommended Posts

SGWhiskers Collaborator

I'm the snuggly, chase the kids, kiss the kids, give them a piggy back ride aunt. I'm also the therapist who gets down to eye level, grins, plays peek-a-boo, holds the hands, turns the head, shares the toys, and cuts the food of my preschoolers at work.

Well, several times, (including last week), I've gotten random gluten exposure from being with the kids during or after they have eaten gluten snacks. I'm not licking kids, or even kissing the nieces and nephews with my lips. (I do cheek to cheek air kisses with them). I was rolling a ball with a child eating crackers. I touched their arms, cheeks, shoes and hair with my hands. The closest I got to my face was to itch my nose with my upper arm. 6 months ago, I got sick from being in the car while my niece ate the same brand of crackers. I didn't even touch her. I also get sick from breathing in the bakery smell at the grocery.

My personal belief is that:

This is my disease. I am in charge of keeping myself safe. It is not your responsibility to make it easy on me. Don't be offended when I don't eat your food or bring a lunchbox to dinner. Don't think I being a difficult employee when I won't touch the crackers.

So I've figured out that I'm going to need to make myself safer and it will start to infringe on others a bit now. It is easy with my patients, my office, my rules. I'll just mention allergies and request no foods during sessions. I don't think I can ask the parents to wash up their kids before they come to therapy though.

The nieces and nephews are harder though. The oldest is 2 and there are bunches of them. Melba toast, cheerios, goldfish, noodles are going into the mouth of one kid or another constantly when I'm at my mom's or another relatives. Some of the relatives are on board with what celiac is. Others think I'm going through a phase. I've not worried about what they think though until now. Short of avoiding touching the kids, what are your ideas for the least invasive means of keeping myself safe?

Ask the parents to do more than the normal face and hand wipes after meals/snacks?

wipe them down again before I play with them?

Skip the cheek to cheek kisses?

open the windows?

ask parents to eat my snacks instead?

Share that their kids are making me nauseous?

make them wear hats during meals so their hair isn't full of noodle stickies?

only touch them with my feet?

Shower twice a play session?

Stupid disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CaraLouise Explorer

This is definitely a tender subject. I am a nursery director at my church and I make all our snacks gluten free. But I share the room and there is gluten used when I am not there. I have made it very clear to my staff of my problem and they are wonderful. Also I wipe down the child. It makes it really hard though with nieces and nephews. We try and respect one another and I say go wash all the gluten stuff off or I do kind of a gluten alert!! They think it is kind of funny, so we try to put a fun spin on it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748

    tdouglas2901
    Newest Member
    tdouglas2901
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.