Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Like A Yo-yo


KathiSharpe

Recommended Posts

KathiSharpe Apprentice

I'd previously been gluten-free for several years until the GI doc told me I absolutely, positively, was NOT celiac. So I went back to eating gluten and (some quickly and some over time) my overt symptoms went completely away... especially the odd feeling I always got in my mouth after eating gluten (it felt like my mouth was burned by hot hot coffee).

However I did have occasional tummy trouble and fatty poops, alternating d/c (but not BAD), HUGE weight gain, and my hormones are out of control. The docs I've seen in the interim dismissed it all as "normal" or me being flighty or an assortment of other illnesses (none of which bore out, in spite of tens of thousands of dollars in testing)

So - due to research related to the thyroid and female hormone issues, I decided about 10 or 12 days ago to go gluten-free again, "just to see".

My body's response was pretty incredible - I've lost nearly 13lbs and feel felt great. It was like someone flipped a switch, the difference is that dramatic. The skin rash on my chest is was almost gone, my foot is clearing up, and so are my fingers now (none of which actually looks like pics of DH, so I'm not sure).

BUT - a couple days ago, not thinking, I tossed the hambone (left over in the freezer from my pre-gluten-free days) into a pot of beans. I knew immediately after eating that I'd made a mistake... my mouth felt burned! The next morning my belly was huge and rumbly, and I've spent the last couple days with outrageous and painful diarrhea. In fact yesterday I travelled with a friend on business and had to keep close tabs on the nearest bathroom. And the rash on my chest is back!

Needless to say I'm tightening up on my diet and carefully sorting through my frozen meat to be sure I don't get glutened again!

So here's my question - how could I go for several years, eating gluten every day, and not be overtly affected... then stop eating it entirely and WHAM my "glutened" symptoms are so incredibly severe?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

There is something that doctors call the 'honeymoon' effect and was the reason why doctors thought that children could outgrow celiac. I think after you have healed and your body had been cleared of the antibodies it can take some time for them to reappear to the extent where symptoms are severe again. Your antibodies did build up though and your body was really happy when you stopped eating gluten. It is now trying to let you know just how much it doesn't want to be poisoned anymore and is showing you through the strength of your reactions.

KathiSharpe Apprentice

OH!

Now that makes sense. Thank you!

Tabasco Apprentice

Kathi,

Can you share your research on hormones and thyroid issues? I believe that my weight and gluten issues are also connected to hormones. After watching something on TLC about the science of obesity I think it as all more connected than we realize. (ie I didn't realize it was hormones that tell your brain that you're hungry.) I also didn't know that Cushings Disease is a pituitary problem.

It just seems that the older I get the harder it is to lose but it sure is easy to gain!

Also...when I gain weight, my libido decreases. I realize that this can be psychcological as well but hormones seem to be the answer to most everything!

I think that we get worse after abstaining for a while is like what we see in the nedical field as a rebound effect.

Rebound effect is the tendency of a medication, when discontinued, to cause a return of the symptoms being treated more severe than before.

We also see this in repeated exposures to allergens such as latex. (Which I am allergic to.) You are exposed on a regualr basis then all of a sudden, one day...BAM! You break out in a rash and can't breathe.

Lynayah Enthusiast
Kathi,

Can you share your research on hormones and thyroid issues? I believe that my weight and gluten issues are also connected to hormones. After watching something on TLC about the science of obesity I think it as all more connected than we realize. (ie I didn't realize it was hormones that tell your brain that you're hungry.) I also didn't know that Cushings Disease is a pituitary problem.

It just seems that the older I get the harder it is to lose but it sure is easy to gain!

Also...when I gain weight, my libido decreases. I realize that this can be psychcological as well but hormones seem to be the answer to most everything!

I think that we get worse after abstaining for a while is like what we see in the nedical field as a rebound effect.

Rebound effect is the tendency of a medication, when discontinued, to cause a return of the symptoms being treated more severe than before.

We also see this in repeated exposures to allergens such as latex. (Which I am allergic to.) You are exposed on a regualr basis then all of a sudden, one day...BAM! You break out in a rash and can't breathe.

Tobasco,

You might enjoy reading Jillian Michael's Master Your Metabolism: The 3 Diet Secrets to Naturally Balancing Your Hormones for a Hot and Healthy Body. It addresses some of the issues you mention.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    3. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    4. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,690
    • Most Online (within 30 mins)
      7,748

    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.