Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitiligo Michael Jackson & I


EJR

Recommended Posts

EJR Rookie

I have an auto-immune skin disease called Vitiligo. This is the same skin disease that Michael Jackson suffered from. You gradually lose the pigment in your skin and have to avoid very much sun exposure. I have read that Michael also had the auto-immune disease Lupus.

Just wondering if anyone knows if this skin disease is associated with or found in many people who also have Celiac disease / gluten sensitivity / intolerance? The pigment loss seems to have increased over the last year for me.

Joyce


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SGWhiskers Collaborator

Type I, II, & III autoimmune polyglandular syndromes

PAS IIIC - Autoimmune thyroiditis with vitiligo and/or alopecia and/or other organ-specific autoimmune disease

Open Original Shared Link

It looks like there are some links between celiac and vitilligo. Vitilligo is also associated with a lot of other autoimmune diseases.

eringopaint Newbie

My sister-in-law went gluten-free in support of my brother and my nephews, to simplify cooking and keep the kitchen as a safe zone. As a result her vitilago has stopped progressing, her life-long rhuemtoid arthritis no longer bothers her and her Doc just reduced her thyroid med dosage after being at the same level for years & years.

She has been gluten-free for about 3 yrs, maybe closer to 4.

Btw - she never had any stomach issues so never imagined anything would change when she stopped eating gluten.

I think celiac is related to all auto-immune diseases.

Are you following a gluten-free diet now?

~erin

ranger Enthusiast

Are there any genetic components to this skin thing? My mother had it and, although she was dxed with chrons, I strongly suspect she was celiac. Me and my sis are celiac.

EJR Rookie
My sister-in-law went gluten-free in support of my brother and my nephews, to simplify cooking and keep the kitchen as a safe zone. As a result her vitilago has stopped progressing, her life-long rhuemtoid arthritis no longer bothers her and her Doc just reduced her thyroid med dosage after being at the same level for years & years.

She has been gluten-free for about 3 yrs, maybe closer to 4.

Btw - she never had any stomach issues so never imagined anything would change when she stopped eating gluten.

I think celiac is related to all auto-immune diseases.

Are you following a gluten-free diet now?

~erin

Hi All,

Thank you for your replies. Ranger you asked if I am following a gluten-free diet. Yes, I have been on the diet for about a year now but have eaten about 6 slices of toast during that time period because I wasn't sure of what was going on. I had a small bowel biopsy that was negative for celiac (but I had already been gluten free for a few months). I just received gene test results from Prometheus Labs. I have one of the genes associated with Celiac disease (the DQ8 Heterozygous). Apparently about 8% of Celiacs have this gene. I have just ordered tests from Enterolab so will be interesting to see what they have to say.

So far I would say that my vitiligo has still been progressing. It develops so slowly and of course is much more noticeable in the summer when the skin gets a bit tanned. Otherwise my skin is so fair it isn't that noticeable.

It appears that there is an association with Celiac disease and vitiligo although it isn't as strong as some of the other auto-immune disorders. Thank you all again for taking the time to answer my post.

Joyce

  • 1 year later...
Golden Girl Rookie

Hi All,

When I went for my biopsy the Dr looked at me and said I more than likely have Celiac disease because I have vitiligo. She had said there are studies that have linked them together. As it turned out I do have Celiac disease. I am also hypothyroid. I only wish it could have been diagnosed 30 years ago actually 40 years ago when I was diagnosed with vitiligo. 2 years ago I had 3 mini strokes, veritgo and I was so mal-nutritioned. I feel a lot better gluten free. But I still have some symptoms foot pain and tingling in my finger tips.

Karla

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
    • knitty kitty
      I suffer from Dermatitis Herpetiformis, too.  Like @Rogol72, I had to cut out all gluten-free processed foods, dairy, oats, and eggs before my skin cleared up.  I followed the Autoimmune Protocol Diet. I also supplement with the eight essential B vitamins.  (Meat and liver are great sources of B vitamins.)  Low levels of certain B vitamins ( B12, Thiamine, Pyridoxine, and Niacin) can affect the nerves, resulting in itching and tingling.  Niacin especially helps with the itching and healing the blisters.  Tallow Balm helps with the healing, too.  Zinc and Vitamin A also help with skin health.   I've gotten such good results with Niacin and the other vitamins mentioned that I've never had to go on Dapsone.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.