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Talking To University Department

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

YoloGx Rookie
YoloGx
Posted

Just wanted to note that celiac often makes the personality irritable. I am recalling that the transition often isn't always easy. Make sure too you are not getting cross contaminated (CC) with gluten. I have learned to always wash my hands before putting anything to my mouth.

In addition, squash, roots and leafy etc. vegetables and a little chicken is not generally that expensive. The less sugary, processed foods you have the better, plus its cheap, healthy food. You could make big crock pot stews...

I make 24 hour home made yogurt. Its very healthy and healing for the gut and easy and cheap to make and lots cheaper than buying pro-biotics. By fermenting it for 24 hours all the lactose has been removed--lactose being an issue here for many of us, especially at first--due to the shape and size of the molecules and likely leaky gut caused by the untreated celiac. I make a huge pot of it at a time in a large stainless steel soup pot... You can also ferment chopped up cabbage--though it takes 3 days instead of one. Just add some yogurt or whey as a starter for the cabbage.

Bea

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JillianLindsay Enthusiast
JillianLindsay
Posted

You have every right to be angry with your school and this is a good place to vent to people who understand :)

I too experienced a great deal of anger, frustration, upset/sadness and moodiness in general durnig the healing phase and now whenever I get glutened. It's difficult enough to deal with the everyday stresses of school and financial burdens, let alone health problems and a comlicated diet.

On the plus side, it does get easier and you will start to feel better. Keep fighting for your cause and also keep taking care of yourself and focusing on healing, eating well, and getting better.

Good luck!

Jillian

I want to thank everyone for their advice on how to deal with my issues. I didn't mean to snap at anyone, though I'm sure I did. While it is not an excuse, I'm really stressed out and really angry. And not just angry about how the university is dealing with the celiac. I have been diagnosed for two months and during that time I have also had to deal with many major life changes. So I'm sorry that I got angry with people's suggestions. I just feel so stressed out and for me money has always been a sensitive issue. I wanted to make sure you knew that I'm not angry at all of you who responded, I'm just really angry in general. At first I was able to accept all this as another complication that I would have to deal with, but right now I seem to have entered and area where I'm just pissed at life and everything seems like it is too much to deal with. Plus I don't as of yet know anyone where I live so I spend all my time alone since other students are not yet here.
ang1e0251 Contributor
ang1e0251
Posted

I saw on the news that many university students now qualify & are using food stamps. That would be a big financial help to you if you qualify. Couldn't hurt to look into it.

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      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
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    • trents
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