Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"major" Gluten Ingestion


Jonbo

Recommended Posts

Jonbo Apprentice

Went to a midnight showing of The Final Destination Thurs Night/Fri morning. Get popcorn and saw some Nacho Cheddar/White Cheddar seasoning on the side. I being stupid didn't thoroughly check the bottles of them but don't recall seeing an ingredient list. Since it was a rare night out for me (in town visiting friends/family after incisional hernia repair), I passed it off since I assumed it would just be cheddar.

Movie ends, and I felt my abdomen and noticed it starting to "brick" itself as I've deemed it. I then realize it had to have been the seasoning. I get home, immediately fire an email to the theater company's website and come to find out the White Cheddar has Gluten in it while the Nacho Cheddar didn't. WTF?! Was the first thought in my head. Unless white cheddar always has Gluten in it and just never knew that (for seasoning purposes).

4 days later, it's still as hard as a brick but thank god no pain (Percocet may be keeping it under control). Oddly enough its majorly distended (when laying a certain way on my side) right where my hernia was that was fixed. So now I'm almost certain the Celiac caused the hernia which I'll be bringing up at surgeon followup along with pictures I took of it. I'm just getting overwhelmed a bit because I ingested so much gluten (most since diagnosis) and it seems to just not be letting up at all. Not helping my recovery from the hernia surgery either.

Usually if I have some minor CC it will last 2-12 hours and then go back to "normal". I just hope it passes soon :( Granted, I'm lucky this is really my only symptom (some minor D 2nd day in but nothing to concern me) but rather not deal with it as long as I have been.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



brigala Explorer

Yuck. I'm sorry. :(

I had a brain-dead moment and glutened myself for a whole week on supplements I forgot to read the label on. I was on vacation at the time and I assumed the symptoms I was having was due to CC or something from a restaurant or the kitchen utensils in the cabin or whatnot. It had been a long time since I'd had symptoms that bad, though. I realized my mistake 10 days ago and I'm still suffering. So don't take this as condescending when I remind you to "ALWAYS" read the label, and "when in doubt, leave it out." I clearly need someone to remind ME once in a while.

That "brick" sensation you're talking about is familiar. I started noticing it when I began to cut down on gluten but before I made the commitment to go gluten-free. I'd intended to see a doctor before going gluten-free, but that feeling like there was a fist-sized rock in my stomach made it impossible to eat gluten any more once I found out what was causing it.

I hope you feel better soon.

taweavmo3 Enthusiast

I am so sorry....I'm just getting over a cc glutening, which was pretty short thank goodness. I remember the last time I was majorly glutened, it was the Walmart soy sauce that now has wheat. I was sick for 3-4 days before I could eat anything more than jello or white rice, but it took a couple of weeks before I really felt decent again. It just plain sucks!

Hopefully you are at the worst point and will start to feel better soon...we feel for ya!!!

Jonbo Apprentice
Yuck. I'm sorry. :(

I had a brain-dead moment and glutened myself for a whole week on supplements I forgot to read the label on. I was on vacation at the time and I assumed the symptoms I was having was due to CC or something from a restaurant or the kitchen utensils in the cabin or whatnot. It had been a long time since I'd had symptoms that bad, though. I realized my mistake 10 days ago and I'm still suffering. So don't take this as condescending when I remind you to "ALWAYS" read the label, and "when in doubt, leave it out." I clearly need someone to remind ME once in a while.

That "brick" sensation you're talking about is familiar. I started noticing it when I began to cut down on gluten but before I made the commitment to go gluten-free. I'd intended to see a doctor before going gluten-free, but that feeling like there was a fist-sized rock in my stomach made it impossible to eat gluten any more once I found out what was causing it.

I hope you feel better soon.

The funny thing, is that I always read the label and if doubted, I just not have it. Especially in person if food is already prepared and I'm just not sure I'll skip it. But one of those lapse of judgments because it was first time I'd been with them in a few months or so and just assumed it was just cheese. I don't think you came across as condescending since those words were already ingrained once I read this site and other sites.

Were you able to actually feel the rock with your hands if you pushed on your abdomen? The pictures I have of mine shows that it is extremely prevalent (when laying on one side it shows itself best). Thanks for the concerns so far. Just needed to slightly vent at my stupidity <_<

Jonbo Apprentice

*double posted*

brigala Explorer
Were you able to actually feel the rock with your hands if you pushed on your abdomen?

No, I don't remember ever actually feeling it with my hands. The brick feeling was actually in my *stomach* rather than my belly, so it would have been a little behind my rib cage where I wouldn't be able to easily palpitate it, I think. It was so severe it wouldn't surprise me if I could have felt it, had I really tried to, though. I never thought to do so.

I bet the hernia has a lot to do with it. Weak muscle, swelling behind the muscle, puts pressure on the muscle and makes it weaker... it would just spiral out of control from there. :(

-Elizabeth

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.