Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Idea


celiac3270

Recommended Posts

celiac3270 Collaborator
Dear Celiac.com Message Board Member:

Just a quick note to thank you for helping to make our message board an overwhelming success, which is demonstrated by the board's statistics (see below).

A recent analysis has determined that 20% of our board users are making around 90% of the posts, and a significant number of you have never made a post. If you fall into this category I encourage you to participate in what has become the most active online celiac disease community on the Web--the Celiac.com Message Board/Forum.

Thank you for your time,

-Scott Adams

www.Celiac.com

Celiac.com Store:

https://www.celiac.com/st_main.html?p_catid=33

-------------------------------------

Celiac.com Forum Home Statistics:

-------------------------------------

Registered Users: 4310

Total Posts: 37088

Busiest Time: 68 users were online on 24th February 2005 - 11:41 AM

-------------------------------------

Handy Links

-------------------------------------

Board Address: Open Original Shared Link

Log In: Open Original Shared Link

Lost Password Recovery: Open Original Shared Link

-------------------------------------

How to unsubscribe

-------------------------------------

Visit your email preferences (Open Original Shared Link) and ensure that the box for 'Send me any updates sent by the board administrator' is unchecked and submit the form

Good idea, Scott! ;) I bet we'll see a flood of newbie postings over the next few days :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

I agree, celiac3270, it is a good idea.......

I hope you are right about more posts from the lurkers. I think the more input, the better for all of us...... ;)

Karen

Carriefaith Enthusiast
A recent analysis has determined that 20% of our board users are making around 90% of the posts,

That's crazy! there are a lot of people that don't post!

KaitiUSA Enthusiast

wow...come on everyone post....we don't bite....usually :lol:

celiac3270 Collaborator

It seems like a lot of people register and just don't come, though...not necessarily lurk. After all, when you look at the members who are on, they don't show many. Well, unless the people don't bother to log in and just view as guests. There are always many guests.

Carriefaith Enthusiast

lurk... that is such a funny word when you think about it :lol:

KaitiUSA Enthusiast

I think some members at least come on here but don't log in. I used to do that before I started posting. Now I keep it on a mode that remembers my login on this computer so it never logs out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Yes...I've always kept mine so that I don't log in each time (w/ the remember me option)......so much easier than logging in and out all the time. And yes....so many guests on all the time...just a random sample might give you....22 guests, 6 members or something.... my point is, always more guests than members.

KaitiUSA Enthusiast

Yep you are right there are usually many more guests on here then members

psawyer Proficient

I "lurked" for about 6 months before finally joining so I could participate in Molly's science fair survey. I think this will be my fifth post since joining in December. I read the board frequently, usually every day, but rarely post . I have been gluten-free for almost five years (and probably celiac for at least ten more), but I seldom see a topic I can add something new to. I just don't do "ME TOO" posts, they don't seem to add any value.

lovegrov Collaborator

I would agree wthat too many "me too" posts is a bad thing, but with something like celiac where people are often pulled by conflicting statements, a handful of them on certain topics can help make readers (particularly newbies) more confident about something.

richard

Canadian Karen Community Regular

When I first joined, I was comforted by the "me too" posts, actually.....

It felt really reassuring to be in an environment where other people posted that they were going through the same things I was. I didn't feel so isolated........ :D

It made me realize that I wasn't losing my mind afterall...... ;)

Karen

KaitiUSA Enthusiast

Yea I think that it is good when you have numerous people saying the same thing or agreeing. I know when I was new I was told don't listen to everything you here unless you here it over and over...I found it comforting and it made me more confident about what I could and could not have.

Canadian Karen Community Regular

Also, when you have the medical establishment drilling it over and over again into your head that it is just "all in your head", the fact that you can read other people's posts and feel that they are posting exactly what you are experiencing just reinforces your confidence that you are in fact not crazy. :D

Karen

celiac3270 Collaborator

Yea...they're probably sometimes good, as long as they don't get too abundant. I think similar posts are most valuable when it comes to reassuring someone or sympthizing with or helping a newbie w/ general gluten-free resources. After all, we all do it differently. I do think, though, that if two or three people say a product is gluten-free, a fourth and fifth person agreeing isn't necessary....anh...whatever. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.