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Family Member Testing


nu-to-no-glu

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nu-to-no-glu Apprentice

I need to send some very general information to my siblings and mother. They all need to get tested (I have 4 siblings) and we have a variety of autoimmune diseases among us, and now that I am on the road to recovery, my dr suggested I tell them to get bloodwork done. Several of them keep saying to me "but, i don't have any digestive issues...or, I'm dealing with my own disease, already!" Anyone know good general links that might be helpful? Also, a link to the full panel, as my 1st dr didn't perform the whole thing and I want to make sure they get the accurate tests. I think if they saw all the various sympotoms it might help, but I know they don't seem interested enough to read a novel! Thanks.


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ravenwoodglass Mentor

Here is a link to an article right here on the home page

https://www.celiac.com/articles/1106/1/Celi...toms/Page1.html

Also the National Institute of Health is having a celiac awareness campaign here is a link to that also

Open Original Shared Link

Those should help get you started. One of the most helpful things for convincing my family to get tested was may recovery and the knowledge that it is advised that any first degree relatives get tested regardless of symptoms. They were all positive including my exhusband.

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    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
    • Scott Adams
      You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance unaffordable, thus, everyone who is undiagnosed should understand such potential consequences before they go the official diagnostic route. As mentioned, once it's on your medical record, it won't go away.
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