Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Most People Gluten Sensitive Before Onset Of Celiac's?


StacyA

Recommended Posts

StacyA Enthusiast

I'm discovering my story is rare in America - I was diagnosed within two months of onset of sxs. My PCP thought I had giardia in June (sudden diahrrea, night sweats, pain, wt loss, major fatigue) - the sxs cleared A LOT with flagyl - so I think her dx was right, but the diahrrea and gas and major bloating continued so she sent me to a GI doc who did bloodwork. My numbers were high enough for celiac's he didn't need a biopsy. So I'm thinking the giardia triggered the celiac's. I don't really think I had full-blown celiac's before June - those symptoms were sudden and extreme - but I think I was gluten sensitive all my life before then. I'd vomit most times after Chinese food (but not every time, so I didn't think it was the MSG). I had unexplained hives as a child (the Cleveland Clinic couldn't even figure them out.) I have mild asthma and I've always had a sensitive GI system. Is it common to be gluten-sensitive before celiac's is triggered?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nu-to-no-glu Apprentice

You very well may have had celiac all this time, but some of your symptoms may have gotten progressively worse. If you dig around on this site, you will see this is the case for many. This is due to increased damage to your intestines caused by eating gluten. If you look on the home page, there is loads of information to help you better understand.

OptimisticMom42 Apprentice

I think most of us had a good case of hind sight visible gluten sensitivity. I had migraines as a child. The dentist said I was brushing the enamel right off of my teeth! That's one kind of funny! I'd like to go back in time and yell, "What kid brushes to much? Maybe I never had any enamel!"

jststric Contributor

I was reading not long ago that "sudden" intolerances and possibly even Celiacs seem to POSSIBLY be triggered suddenly by a traumatic event or experience. ????? It sounded stupid as I first read it...I mean, we're NOT a bunch of head cases!! But I thought back to when all my problems seemed to suddenly start and it was JUST AFTER we made a move I was NOT happy about. Now, we've moved ALOT and I took this one as well as I THOUGHT I had taken the rest of them, but I did have to leave somewhere I loved and the place we moved to is not in ANYONE'S top 50 places of places to live. But I hadn't FELT that UPSET by it all. But all hell broke lose with all kinds of new food-intolerances that I still wrestle with nearly 4 yrs later. So, I would say it's not out of the realm of POSSIBILITIES.

OptimisticMom42 Apprentice

My first go-round with celiacs, I dropped to under 100lbs and a size 3 was to big, I'm 5'6". I was going through a divorce and working at a job I hated. The dr's decided I was depressed. I set some ground rules for the ex, changed jobs and got better for almost 10 yrs.

This time round, I suddenly became dairy and soy allergic when my eldest child was arrested and jailed for a stupid fuss over a really stupid girl. This wasn't an overnight at county, he's in the big house.

So, yes, in my case stress may have triggered my celiacs.

Being a control freak, I can understand how moving, against my wishes would stress me out.

Take care,

RA

missybean Apprentice
I think most of us had a good case of hind sight visible gluten sensitivity. I had migraines as a child. The dentist said I was brushing the enamel right off of my teeth! That's one kind of funny! I'd like to go back in time and yell, "What kid brushes to much? Maybe I never had any enamel!"

I have a question. I was diagnosed with DH but I'm questioning that because mine seems so mild compared to all pics of DH I have seen. Mine don't look like blisters. Do they have to look like blisters to be DH?

Susanne50 Newbie

I had only the mildest of symptoms-- bloating after bread products, slight knot under ribs-- until I went under general anesthesia for surgery twice in two weeks. Then major symptoms came on with a vengeance. 15 lbs lost in two weeks, couldn't eat anything, thought I was dying. There's no other answer except that the physical stress on my body from those surgeries triggered the full-blown onset.

Susanne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,212
    • Most Online (within 30 mins)
      7,748

    Melissa McGowan
    Newest Member
    Melissa McGowan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.