Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Didn't Stay gluten-free, New Symptoms


Crash

Recommended Posts

Crash Rookie

Hi all, I posted back in April about my digestive and anxiety issues wondering if it could be celiac. Well, the summer was tolerable, but I didn't stay gluten-free. In fact, I never really brought myself to stop except for up until after finals last spring. Now I have new symptoms: a chronic low grade cough (last 3 weeks), almost never productive, that feels like its at the top of my chest, and extreme muscle/joint fatigue and pain. The pain and fatigue show up on Saturdays. The last 3 in a row. It worsens throughout the day and I am almost bedridden by evening (like now). I get lightheaded very easily now too. This is ridiculous. I've never had a bad result on a physical ever :( .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

did going gluten free make you feel better? if so, why are you making yourself feel bad now?

Crash Rookie
did going gluten free make you feel better? if so, why are you making yourself feel bad now?

I didn't do it long enough to tell. I had bad withdrawal. I ended up not being able to give up real beer :(

Northland Lady Rookie
I didn't do it long enough to tell. I had bad withdrawal. I ended up not being able to give up real beer :(

Try going off potoatoes. i get a very similar reaction to pototoes, it always feels like i have the flu and the chest pain is in the top of my chest sore tickly throat when i eat potatoes also dirrehea joint pain and fatique. Not so bad as gluten though. but if you are still eating gluten you may have constipation.

ravenwoodglass Mentor
I didn't do it long enough to tell. I had bad withdrawal. I ended up not being able to give up real beer :(

You need to switch to a safe alcohol if you can't give it up. Beer is apparently very addictive to you that is likely a combo of the gluten issue and the alcohol combined. If you stay away from gluten entirely the withdrawl will be over in one or two weeks. If you don't you risk much more pain and disability as time goes on. In addition you may eventually end up a full blown alcoholic. That will make all the studying you have done basically worthless and slowly take away more and more of your life. I am not a teetotaller but I have a family full of alcoholics, and their general beverage of choice is beer. My brother is a celiac also who could not give up the beer for the diet and I lost my twin to celiac related liver destruction accelerated by his beverage of choice-beer. Especially if you are under 25 that liver destruction can come very quickly and without warning. At the very least get a blood test to check your liver enzymes, perhaps the result of that test will give you a bit more incentive to lose the beer. You don't have to give up alcohol all together but if you can switch to a safe one it may prolong your life and enable you to give up the gluten.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.