Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support For Beginning Days Of Going Gf


fritzicurls

Recommended Posts

fritzicurls Rookie

I am very new to going gluten free. I am convinced that this is a life path for me. Is it usual to have several good days then have some bad days? I know that I have been gluten-free because the ONLY things I have eaten are meat and rice and a few fresh veggies. Also have checked all cosmetic products, supplements, etc.

I'd like to hear how it went for others in the "early days"!!!

fritzicurls


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I also had good and bad days at first. I really didn't start feeling alot better until month 3 and then it took me a few more to get back to normal.

Everyone has different times for when they start feeling better but it takes time for your body to get used to this new way of eating and for your body to heal.

That's great you have been on top of things and checked makeup, supplements, etc. That eliminates alot of risks of contamination right there.

Feel better soon and hang in there :D

Canadian Karen Community Regular

What you are experiencing is typical, I think.....

Keep on reminding yourself that it took years of gluten damaging your system to get you to this point and it is not going to turn around overnight..... There will be good days, bad days, days where you wonder if it is worth the hassle, days where you will thank your lucky stars you went gluten free, and a myriad of different feelings in between.

Everybody's bodies heal differently,some quicker than others......

Hang in there! ;)

Karen

tarnalberry Community Regular

I think it's also possible (not like we need to make matters worse, but hey, we're human!) that as the first few days go by on a gluten-free diet, first few weeks and months as well, we tend to by SO hypervigilant about how we are feeling physically that we no longer overlook small things we may have overlooked in the past. So, because we're looking so very closely, we may feel worse sometimes, than we might otherwise. Essentially, becoming hypersensitive to how we're feeling. (I don't necessarily use hypersensitive in a bad sense though. While it's possible to take it too far, I would argue that most of us - well, most Americans in general, I don't know... once you've got celiac disease and go down that path, I don't think it's true any longer - are not sensitive/aware enough of how our bodies are feeling.

ianm Apprentice

It seems that the average time to start feeling better is 3 months and a year to reach the healthy point. That is the way it was for me too. It is so worth it to follow this path. You will make mistakes along the way and get nailed with gluten from time to time. The only thing you can do is keep yourself as healthy as possible so that you can weather the storm better.

I have been gluten-free for over a year and last night I accidently used my sons Teenage Mutant Ninja Turtles toothpaste, with gluten of course. Fortunately the amount must have been really small and the only reaction I had was a tingling sensation in my mouth and a nightmare. The only time I dream is when I get nailed with gluten. Even us veterans slip up sometimes.

Ally2005 Apprentice

I can relate to what Tiffany said about being hypersensitive to what's going in our bodies. Shortly after learning about celiac disease two months ago, I noticed how sore/irritated by gut actually was. I am observant about everything that goies on with my body to the point that it has become obsessive. I am trying to get over this and hopefully as my GI symptoms improve I will also put my thoughts on the back burner.

Patience is the key.

Ally

fritzicurls Rookie

Thanks to all of you for your replies. I think I figured out the culprit!!! I helped clean out an old barn yesterday and all the dust and mold did a number on me!!!

I am going to persevere no matter what. There are too many great stories on this site to give me the inspiration that I need. Thanks everyone!

fritzicurls


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

In the future you should wear a good particle mask when cleaning dirty area. I have to wear one just cleaning out my garage because the dirt and dust makes me rather ill.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,613
    • Most Online (within 30 mins)
      7,748

    RnR
    Newest Member
    RnR
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I struggled for a long time.   My TTG levels took an age to come down.  I even gave pure gluten free oats a miss, it took 8 years before I could tolerate them.  Removing dairy temporarily from my diet was hugely helpful.  Check your utensils and the oven you use are scrupulously clean, and don't open roast or bake food uncovered in an oven shared with gluten eaters.  Shared grills must be thoroughly cleaned down, too. Our oven packed up a couple of years after I was diagnosed and after that time the top oven became my family's oven, I use the lower oven.  Also our dishwasher - the old one left a residue, and sharing with gluten eaters I think this was an important factor in my slow recovery.  When the dishwasher packed up I started hand washing the plates and making sure they were really rinsed well.  When we got a new one we bought a Miele does the initial rinse with clean water, not yesterday's old water.   I stopped eating out for a while - that's a biggie.  In recent years, in the UK, thanks to Zoe's Law, caterers are having to really tighten up on catering for people with coeliac disease and allergies so I am now finding eating out much less risky.  But I'd advise being very careful with restaurants where flour is thrown about and is airborne (such as pizzerias) or where harried chefs might cook pasta in glutenous water by mistake, as those are the places I've been glutened in the most.
    • kopiq
      also my hands are always cold, freezing cold in the winter and even cold during hot summer days. its like i have a shield. i feel warm but its not penetrating inside, my teeth chatter as well and my left index finger goes dead white when im super hungry. all dr tests come back fine. im so hopeless.
    • kopiq
      thank you, ive asked my dr to test for vitamin deficiency and shes only said vitamin d (very low 26) and b12, she says all other vitamins are not included in her blood tests only the major ones, C, D, E, B12 etc. Ive been following the aip diet now and im going to stay on it very strict to see how it goes. im eating tons of food, romaine salads, mango, peaches, pears, cucumber, celery, zuccnini, sweet potator, plantains, ground turkey and beef and chicken.  i eat about 4 plate filling meals a day with two to three good size snacks a day including about 3 or 4 bananas. im still not absorbing nutrients, if i eat any sort of food with fat, I.e ground beef or fatty pork the taste of fat lingers in my mouth for 2-3 hours sometimes longer, if i bask in sun for vitamin d i feel great but then lethargic and feel strange for a day or two later, like im still absorbing it all in. even regular sweet foods like fruit the sweetness stays in mouth for hours. ive had blood work done for gall bladder, thryroid, pancreas, liver, kindey dr says they are all fine. i dont know what other tests i can do?   ive attached two pictures of the rash that broke out on my legs, feet and small one near wrist bone bright red was before treatment, second scabby one is during treatment and healing.  https://freeimage.host/i/FrI3KZb https://freeimage.host/i/FrI3Fwu  
    • Scott Adams
      The Trader Joe's GF hamburger buns are the best!
    • StuartJ
      Just ate some for lunch!  A really superb alternative to gluten-free bread and burger buns that all have the taste and consistency of compacted sawdust.  I bought two packs and now I'm down to one remaining muffin so need to get some more; the only thing is it's their own brand - they don't do mail or on line ordering and the nearest TJ's is in Charlottesville (a real nightmare to drive around) an hour away from me over the mountain.  😒
×
×
  • Create New...