Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support For Beginning Days Of Going Gf


fritzicurls

Recommended Posts

fritzicurls Rookie

I am very new to going gluten free. I am convinced that this is a life path for me. Is it usual to have several good days then have some bad days? I know that I have been gluten-free because the ONLY things I have eaten are meat and rice and a few fresh veggies. Also have checked all cosmetic products, supplements, etc.

I'd like to hear how it went for others in the "early days"!!!

fritzicurls


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I also had good and bad days at first. I really didn't start feeling alot better until month 3 and then it took me a few more to get back to normal.

Everyone has different times for when they start feeling better but it takes time for your body to get used to this new way of eating and for your body to heal.

That's great you have been on top of things and checked makeup, supplements, etc. That eliminates alot of risks of contamination right there.

Feel better soon and hang in there :D

Canadian Karen Community Regular

What you are experiencing is typical, I think.....

Keep on reminding yourself that it took years of gluten damaging your system to get you to this point and it is not going to turn around overnight..... There will be good days, bad days, days where you wonder if it is worth the hassle, days where you will thank your lucky stars you went gluten free, and a myriad of different feelings in between.

Everybody's bodies heal differently,some quicker than others......

Hang in there! ;)

Karen

tarnalberry Community Regular

I think it's also possible (not like we need to make matters worse, but hey, we're human!) that as the first few days go by on a gluten-free diet, first few weeks and months as well, we tend to by SO hypervigilant about how we are feeling physically that we no longer overlook small things we may have overlooked in the past. So, because we're looking so very closely, we may feel worse sometimes, than we might otherwise. Essentially, becoming hypersensitive to how we're feeling. (I don't necessarily use hypersensitive in a bad sense though. While it's possible to take it too far, I would argue that most of us - well, most Americans in general, I don't know... once you've got celiac disease and go down that path, I don't think it's true any longer - are not sensitive/aware enough of how our bodies are feeling.

ianm Apprentice

It seems that the average time to start feeling better is 3 months and a year to reach the healthy point. That is the way it was for me too. It is so worth it to follow this path. You will make mistakes along the way and get nailed with gluten from time to time. The only thing you can do is keep yourself as healthy as possible so that you can weather the storm better.

I have been gluten-free for over a year and last night I accidently used my sons Teenage Mutant Ninja Turtles toothpaste, with gluten of course. Fortunately the amount must have been really small and the only reaction I had was a tingling sensation in my mouth and a nightmare. The only time I dream is when I get nailed with gluten. Even us veterans slip up sometimes.

Ally2005 Apprentice

I can relate to what Tiffany said about being hypersensitive to what's going in our bodies. Shortly after learning about celiac disease two months ago, I noticed how sore/irritated by gut actually was. I am observant about everything that goies on with my body to the point that it has become obsessive. I am trying to get over this and hopefully as my GI symptoms improve I will also put my thoughts on the back burner.

Patience is the key.

Ally

fritzicurls Rookie

Thanks to all of you for your replies. I think I figured out the culprit!!! I helped clean out an old barn yesterday and all the dust and mold did a number on me!!!

I am going to persevere no matter what. There are too many great stories on this site to give me the inspiration that I need. Thanks everyone!

fritzicurls


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

In the future you should wear a good particle mask when cleaning dirty area. I have to wear one just cleaning out my garage because the dirt and dust makes me rather ill.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,749
    • Most Online (within 30 mins)
      7,748

    Susan Ughy
    Newest Member
    Susan Ughy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
    • Wheatwacked
      Zinc glyconate lozenges (Cold Eeze) helps fight off viral respiratory infections by coating the mucous membrane cells to protect them from virus.  Zinc is an antiviral essential mineral. Choline deficieicy can be the cause of Non Alcoholic Fatty Liver Disease.  It is estimated by some experts that less than 10% eat the minimum RDA of around 450 mg.  It has also been connected to gallbladder disease.  Brain fog and high homosystein blood level is an independant indicator of cardiovascular disease. Eggs and red meat are the primary sources.  Three eggs or 10 cups of cooked brocolli a day.  Low vitamin D is a common denominator of autoimmune disease.  Is it a contributing factor or a result? I think that low vitamin D is maybe the main contributing factor.  Low vitamin D allows the immune system to run amuck. I would like to point out the many diagnosed with Celiac Disease went through several misdiagnoses, like gall bladder disease, and were repeatedly tested negative and then one day tested positive. Regardless of your diagnosis, you should avoid gluten, you mention it in your first post : "When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal". It can take six months to several years to heal completely.  How long I believe is directly related to how quickly you identify deficiencies and correct. Essential to my recovery:  Thiamine, 10,000 IU vitamin D3 a day, maintaining 25(OH)D at 80 ng/dl (200 nmole/L), 600 mcg Liquid Iodine, Phosphatidyl Choline.  And of course: Gluten Free.
    • RMJ
      Not all of King Arthur’s gluten free flours and baking mixes are certified gluten free. This bread flour is not. 
    • knitty kitty
      Bump up your thiamine dose!  You can take more if you don't feel anything after the first one.  Must needs getting to that 500mg. We need more thiamine when we're fighting an infection.  Zinc will help fight infections, too, as well as Vitamin C. They all work together. Hope you feel better!
    • knitty kitty
      Welcome to the forum, @MagsM, I had Meniere's.  Meniere's is caused by deficiencies in Thiamine, Niacin, and Vitamin D.  Celiac Disease causes malabsorption which affects all the essential vitamins and minerals. The B vitamins work in concert together like an orchestra.  Having a Folate deficiency suggests other B vitamin deficiencies as well.  Folate needs Pyridoxine B6 and Thiamine B1 to work properly with Cobalamine B12.  Doctors are not required to take many courses in nutrition, and often don't recognize deficiency symptoms or how to correct them.  Blood tests are not an accurate measurement of vitamin deficiencies inside cells.  Low iron correction requires copper and zinc as well as Thiamine and Riboflavin.    Yes, anemia can affect the production of antibodies and cause false negatives on tests for Celiac.  Diabetes and Thiamine deficiency can also cause false negatives.  An endoscopy with biopsy would be a more accurate method of diagnosis for you.   I studied Nutrition before earning a degree in Microbiology because I wanted to know what the vitamins were doing inside the body.  Vitamins are chemical compounds that the body cannot make, so we must get them from food and supplements.  After a few vertigo episodes and suddenly going deaf for a while, I researched and found that supplementing with  Thiamine in the form TTFD (tetrahydrofurfuryl disulfide), Niacin and Vitamin D resolved the issue.   Please ask your nutritionist for further vitamin deficiency tests.  A B Complex, TTFD, Vitamin D should help you recover quickly.   Keep us posted on your progress!
×
×
  • Create New...