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Is Anyone Able To Explain This?


KLFrosty

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KLFrosty Newbie

Hello all, this is my first post on these forums so please take it easy on me :lol: .

I guess I'll start from the beginning. About 2 months ago I came to the realization that I

might have a gluten intolerance because out of the blue, about a year ago, I noticed that certain foods like bread, cereal and pasta would all give me indigestion. When this indigestion first started I had no idea about gluten intolerance and just continued eating my regular diet. Around the time that I turned 22 I started to get curious about why this indigestion kept happening to me so I did what a lot of people on this site probably did and started googling.

After a little searching I came across the topic of gluten intolerance/celiac disease and began to wonder if this is what the problem was.

Now that I had a possible answer to my problem I decided to test it out so I went gluten "free" for a while and noticed that my indigestion problem disappeared. Now for my question. After discovering that I might have a gluten intolerance I noticed that certain foods that contain gluten didn't bother my digestive system while others did. For example kellogg's bran flakes, brand named breads (like wonder bread) and chef boyardee ravioli would all give me terrible indigestion but foods like Fiber1 cereal, bread (that was made fresh in a bakery), hamburgers (homemade and fast food) and spaghetti would not give me any digestion issues whatsoever. So I was wondering if anyone had an explanation for this "anomaly". Thanks in advance! :)


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Jaded Newbie
Hello all, this is my first post on these forums so please take it easy on me :lol: .

I guess I'll start from the beginning. About 2 months ago I came to the realization that I

might have a gluten intolerance because out of the blue, about a year ago, I noticed that certain foods like bread, cereal and pasta would all give me indigestion. When this indigestion first started I had no idea about gluten intolerance and just continued eating my regular diet. Around the time that I turned 22 I started to get curious about why this indigestion kept happening to me so I did what a lot of people on this site probably did and started googling.

After a little searching I came across the topic of gluten intolerance/celiac disease and began to wonder if this is what the problem was.

Now that I had a possible answer to my problem I decided to test it out so I went gluten "free" for a while and noticed that my indigestion problem disappeared. Now for my question. After discovering that I might have a gluten intolerance I noticed that certain foods that contain gluten didn't bother my digestive system while others did. For example kellogg's bran flakes, brand named breads (like wonder bread) and chef boyardee ravioli would all give me terrible indigestion but foods like Fiber1 cereal, bread (that was made fresh in a bakery), hamburgers (homemade and fast food) and spaghetti would not give me any digestion issues whatsoever. So I was wondering if anyone had an explanation for this "anomaly". Thanks in advance! :)

It could be that you have a "sensitvity" maybe you are not a "true celiac". maybe it's not gluten you are alergic to but maybe you are alergic to wheat or barrely or rye or maybe even yeast. I suggest talking to an alergist and getting tested.

KLFrosty Newbie
It could be that you have a "sensitvity" maybe you are not a "true celiac". maybe it's not gluten you are alergic to but maybe you are alergic to wheat or barrely or rye or maybe even yeast. I suggest talking to an alergist and getting tested.

Ah, thanks for your input. Maybe I should take a trip to the doctor.

CeliacAlli Apprentice
Hello all, this is my first post on these forums so please take it easy on me :lol: .

I guess I'll start from the beginning. About 2 months ago I came to the realization that I

might have a gluten intolerance because out of the blue, about a year ago, I noticed that certain foods like bread, cereal and pasta would all give me indigestion. When this indigestion first started I had no idea about gluten intolerance and just continued eating my regular diet. Around the time that I turned 22 I started to get curious about why this indigestion kept happening to me so I did what a lot of people on this site probably did and started googling.

After a little searching I came across the topic of gluten intolerance/celiac disease and began to wonder if this is what the problem was.

Now that I had a possible answer to my problem I decided to test it out so I went gluten "free" for a while and noticed that my indigestion problem disappeared. Now for my question. After discovering that I might have a gluten intolerance I noticed that certain foods that contain gluten didn't bother my digestive system while others did. For example kellogg's bran flakes, brand named breads (like wonder bread) and chef boyardee ravioli would all give me terrible indigestion but foods like Fiber1 cereal, bread (that was made fresh in a bakery), hamburgers (homemade and fast food) and spaghetti would not give me any digestion issues whatsoever. So I was wondering if anyone had an explanation for this "anomaly". Thanks in advance! :)

Not everyone that has celiac disease has the classic symptoms...they may also have the symptoms with only certain foods too..so you really should be tested.

OptimisticMom42 Apprentice

Different foods have different amounts of gluten in them. As an example, I've read that whole wheat bread has more gluten than white bread. The amount of gluten it takes to cause a reaction is different for each of us. For some a bread crumb is a killer, others will take the bun off a hamburger and eat the meat. I'm from the "a crumb is a killer camp" and can't stand to watch my co-worker eat a newly bunless burger. I just know it cannot be ok for him to do that but ............ I'm not his Dr. or his Mom.

Also, most of us ate glutened foods and sustained damage to our intestines for years before we had obvious symptoms. Just because you aren't sick doesn't mean you aren't hurting yourself.

Hope this helps

RA

darlindeb25 Collaborator
Also, most of us ate glutened foods and sustained damage to our intestines for years before we had obvious symptoms. Just because you aren't sick doesn't mean you aren't hurting yourself

For years, before I knew anything about gluten, I thought toast was my best friend. and all that time, I was feeding the monster. Of course, I craved bread, which is another symptom...craving the very thing you can't have! I never could pinpoint what was effecting me, I was sick nearly every night and some mornings...everything seemed to be an issue.

Just because you aren't sick doesn't mean you aren't hurting yourself

I think this is true for many still, even after going gluten free. It has been proven that many of our labeled "gluten free" foods still contain an amount of gluten that scientists feel is safe for us to eat. But is it? Who really knows what is "safe enough". I think as long as a person continues to eat gluten, they are doing harm to themselves.

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      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
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