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Help....a Little Confused.


felsar

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felsar Newbie

Hi everyone,

Just wondering if anyone can please tell me if I need to be worried about these blood test results. Last week I went to the doctor because I was feeling extremely tired and run down. After running some blood tests it turned out I had caught glandular fever in the last 1 to 3 months. He also threw in a celiac test and said I had a weak positive and that it was really nothing to worry about. Now I cant stop thinking about it because celiac has never crossed my mind before. It would explain why I have had diarrhea for the last few months (I thought maybe this was just part of glandular fever).

These are my blood test results:

Anti Gliadin IgA <5 U/ml (0-19)

Anti Gliadin IgG <5 U/ml (0-19)

Anti Tissue Transglutaminase IgA 34 Um/L (0-11)

Do I need to do any more tests/diet changes with these results or do I just leave it. Any info would be greatly appreciated.

Thank you for listening.


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nora-n Rookie

The tissue transglutaminase test is the most important celiac test, and it does mean something! I mean, what does the doctor want? a result in the 100's?

The antigliadin test was known to only pick up at most 60% of celiacs and many labs have abandoned it.

How would he explain such a result as yours, which I consider not "weak", How high a number does he need in order to react?

If you read around , there are a few other things that could cause a positive ttg, like tropical sprue and some other things.

I do not remember anyone here posting about false positive ttg tests.

nora

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    • RMJ
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    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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    • Samanthaeileen1
      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
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