Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take For You To Notice A Difference?


AJSmom

Recommended Posts

AJSmom Rookie

My son is 3.5. I'm curious to find out how long it took you to notice a difference.

My son also has a speech delay so he can't communicate is needs very well. He will cry when in pain but not really be able to tell me what is wrong.

I have notice a slight change in his bowel movements..to a more "normal" colour, not a huge change just slightly. Just wanting to make sure it's not just me wanting a change to happen right away...??

So, in your experience how soon did you see changes?

Tracy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sandi Explorer

I noticed changes right away and 8 weeks of being careful still seeing some changes.

I do know when I by accident ingest gluten, It is much worse then when I was eating regularly.

Is your son in early intervention? They are a blessing.

AJSmom Rookie
I noticed changes right away and 8 weeks of being careful still seeing some changes.

I do know when I by accident ingest gluten, It is much worse then when I was eating regularly.

Is your son in early intervention? They are a blessing.

We have infant development..I think that's what you are referring to. Yes! he's had that since 12 months old. He also has speech, physio therapist and OT.

I'm seeing so many changes in him. He's SLEEPING!!! that's a big one...he's sleeping in!! Huge changes with his diapers..he has been on medication since he was 6 months. He never had lose stools, he's always had the constipation. I've decreased his does today and that is our goal to get him completly off this medication. But his stomach was always distended, I think it'll be awhile till we notice that change. I can tell he's feeling better....it has been hard these few days.

lizbeth93099 Rookie

My daughter has been gluten free about a month now. The first week was rough I would say. The second week I would say I started noticing changes. The third week I think she got gluten somewhere and her symptoms were bad...but over all I do see a difference in her. She's 9 and has even made comments that she has noticed changes too.

elle's mom Contributor
My son is 3.5. I'm curious to find out how long it took you to notice a difference.

My son also has a speech delay so he can't communicate is needs very well. He will cry when in pain but not really be able to tell me what is wrong.

I have notice a slight change in his bowel movements..to a more "normal" colour, not a huge change just slightly. Just wanting to make sure it's not just me wanting a change to happen right away...??

So, in your experience how soon did you see changes?

Tracy

My dd was 2 1/2 when she started the diet and I remember at 2 weeks we were astounded. The main difference was in her mood, she was just much happier and more playful. She also never had diarrhea, but rather suffered with constipation. It has been almost 2 years and we've recently taken her off her fiber supplement so that was a slow-go, but it's a journey.

AJSmom Rookie
My dd was 2 1/2 when she started the diet and I remember at 2 weeks we were astounded. The main difference was in her mood, she was just much happier and more playful. She also never had diarrhea, but rather suffered with constipation. It has been almost 2 years and we've recently taken her off her fiber supplement so that was a slow-go, but it's a journey.

I'm very interested to hear this, because the med student that was with the ped the first time gluten-free diet and celiac disease came up she said he has to have diarrhea as an indicator!! I'm finding that's not always the case.

elle's mom Contributor
I'm very interested to hear this, because the med student that was with the ped the first time gluten-free diet and celiac disease came up she said he has to have diarrhea as an indicator!! I'm finding that's not always the case.

No, it's definately not. Apparently that med student needs to study a little more!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mama Ruthies Rookie

Hi Tracy,

Our son (a little over 5 and gluten free for almost 2 years) also has speech delays which we now know were caused by gluten. We noticed that first month or so was hard (our allergist also had him off milk, egg, yeast and soy) and our son had loved bread, bagels, yogurt, etc. ---all stuff he all of a sudden couldn't have.

His speech really started to improve around 6 months gluten free. At about 7 months gluten free, he got a piece of gluten pizza and his speech regressed for 8 weeks. We've found out that if he gets some gluten, it takes about 8 weeks and then the speech still isn't as clear as before.

I would suggest having your son's iron level checked. We found out last year our son was anemic.

A great resource for language delays is a book called Play to Talk by Dr. James D. MacDonald. Dr. Jim has many great ways to change how we interact with our kiddos (take turns, "play with words----imagine them being a ping pong ball", matching our kids, reducing questions). We have had such a change since using Dr. Jim's ideas---he really empowers parents. We had our son evaluated by Dr. Jim, and he has such a huge heart for these kids. We also saw another leader in the country for late talking kids who within 20 minutes said that our son presents just as kids with celiac. He said that some day down the road our son will tell us that there was a time when he really hurt. Broke our hearts, but we know it's true. Our son has also struggle with allergies and sleep apnea (we had his adeonoids out in the spring and it made a world of difference).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.