Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take For You To Notice A Difference?


AJSmom

Recommended Posts

AJSmom Rookie

My son is 3.5. I'm curious to find out how long it took you to notice a difference.

My son also has a speech delay so he can't communicate is needs very well. He will cry when in pain but not really be able to tell me what is wrong.

I have notice a slight change in his bowel movements..to a more "normal" colour, not a huge change just slightly. Just wanting to make sure it's not just me wanting a change to happen right away...??

So, in your experience how soon did you see changes?

Tracy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sandi Explorer

I noticed changes right away and 8 weeks of being careful still seeing some changes.

I do know when I by accident ingest gluten, It is much worse then when I was eating regularly.

Is your son in early intervention? They are a blessing.

AJSmom Rookie
I noticed changes right away and 8 weeks of being careful still seeing some changes.

I do know when I by accident ingest gluten, It is much worse then when I was eating regularly.

Is your son in early intervention? They are a blessing.

We have infant development..I think that's what you are referring to. Yes! he's had that since 12 months old. He also has speech, physio therapist and OT.

I'm seeing so many changes in him. He's SLEEPING!!! that's a big one...he's sleeping in!! Huge changes with his diapers..he has been on medication since he was 6 months. He never had lose stools, he's always had the constipation. I've decreased his does today and that is our goal to get him completly off this medication. But his stomach was always distended, I think it'll be awhile till we notice that change. I can tell he's feeling better....it has been hard these few days.

lizbeth93099 Rookie

My daughter has been gluten free about a month now. The first week was rough I would say. The second week I would say I started noticing changes. The third week I think she got gluten somewhere and her symptoms were bad...but over all I do see a difference in her. She's 9 and has even made comments that she has noticed changes too.

elle's mom Contributor
My son is 3.5. I'm curious to find out how long it took you to notice a difference.

My son also has a speech delay so he can't communicate is needs very well. He will cry when in pain but not really be able to tell me what is wrong.

I have notice a slight change in his bowel movements..to a more "normal" colour, not a huge change just slightly. Just wanting to make sure it's not just me wanting a change to happen right away...??

So, in your experience how soon did you see changes?

Tracy

My dd was 2 1/2 when she started the diet and I remember at 2 weeks we were astounded. The main difference was in her mood, she was just much happier and more playful. She also never had diarrhea, but rather suffered with constipation. It has been almost 2 years and we've recently taken her off her fiber supplement so that was a slow-go, but it's a journey.

AJSmom Rookie
My dd was 2 1/2 when she started the diet and I remember at 2 weeks we were astounded. The main difference was in her mood, she was just much happier and more playful. She also never had diarrhea, but rather suffered with constipation. It has been almost 2 years and we've recently taken her off her fiber supplement so that was a slow-go, but it's a journey.

I'm very interested to hear this, because the med student that was with the ped the first time gluten-free diet and celiac disease came up she said he has to have diarrhea as an indicator!! I'm finding that's not always the case.

elle's mom Contributor
I'm very interested to hear this, because the med student that was with the ped the first time gluten-free diet and celiac disease came up she said he has to have diarrhea as an indicator!! I'm finding that's not always the case.

No, it's definately not. Apparently that med student needs to study a little more!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mama Ruthies Rookie

Hi Tracy,

Our son (a little over 5 and gluten free for almost 2 years) also has speech delays which we now know were caused by gluten. We noticed that first month or so was hard (our allergist also had him off milk, egg, yeast and soy) and our son had loved bread, bagels, yogurt, etc. ---all stuff he all of a sudden couldn't have.

His speech really started to improve around 6 months gluten free. At about 7 months gluten free, he got a piece of gluten pizza and his speech regressed for 8 weeks. We've found out that if he gets some gluten, it takes about 8 weeks and then the speech still isn't as clear as before.

I would suggest having your son's iron level checked. We found out last year our son was anemic.

A great resource for language delays is a book called Play to Talk by Dr. James D. MacDonald. Dr. Jim has many great ways to change how we interact with our kiddos (take turns, "play with words----imagine them being a ping pong ball", matching our kids, reducing questions). We have had such a change since using Dr. Jim's ideas---he really empowers parents. We had our son evaluated by Dr. Jim, and he has such a huge heart for these kids. We also saw another leader in the country for late talking kids who within 20 minutes said that our son presents just as kids with celiac. He said that some day down the road our son will tell us that there was a time when he really hurt. Broke our hearts, but we know it's true. Our son has also struggle with allergies and sleep apnea (we had his adeonoids out in the spring and it made a world of difference).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,235
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.