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Depressed And Not Sure


missla3000

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missla3000 Rookie

Hello there everyone and thank god for this site. I have recently had an endoscopy and blood tests for celiacs, the doctors say that the cells are a bit abnormal and they want to take more tests but I feel that I have all the symptoms of this thing! For many years I have been unwell and unstable emotionally because there is something going on inside me and I chose to blame it on not eating properly, at times I have thought I have had anorexia as I just dont want to eat when symptoms are at their worst.

I have to stay indoors, even away from my own son when things are too bad - i get an awful gas that makes me feel so dreadful and was sure i was the only person in the world to get it! until I found this site! I am only 27 and a fitness freak and I just feel so weak and feeble - I am sure its celiacs.

I am not gluten-free yet as the doctors have told me to stay normal till the results come through but I feel like im wasting away. Is it normal for a celiac to get ravenously hungry at times? even though you have eaten like normal? I do and cant explain it as I hate eating and would rather do something else. My brain goes mad and I get the shakes - I have constant brain fog and sometimes cant even talk to people as I feel so tired and drawn. Everyone around me says I look ill and I cant even tell them how I feel as they all think I dont eat enough as I am so slim!

I would just like to say thankyou to this site - I dont feel so alone and depressed now that others feel the same as me ....back soon...I have cramps from my dinner!"!!!! ps...is there anyone else out there in east anglia uk at all with this?


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ianm Apprentice

You pretty much sound like me when I was 27 except I was very overweight. I would get so hungry that I would clean the kitchen out of food in an hour or two. The fatique and brain fog were the worst. I would be completely unable to connect with reality. The gas and bloating made me feel like I was going to explode. Hang in there it DOES get better and we are only a few mouse clicks away.

cdford Contributor

It does sound very much like some of us. I went back and forth between being too thin and too large until my last child was born...then it was too large to even larger. I had all the symptoms you describe plus some. Going gluten-free was the best thing that could have happened to me. It took a while and I went through what is best described as a detox stage, but it has been well worth the effort. This lifestyle can feel overwhelming at first, but then you get the hang of it and as the symptoms begin to fade away you begin to feel more like you knew you could. As soon your tests are over, go for it. Do your research, clean your kitchen out, and just go for it. You won't regret it.

missla3000 Rookie

Thanks guys - I have had a real bad couple of days and had to go to bed after most meals this week! I have locked myself away in my pc room to get as much info as I can! This site really helps .....!! xxxxxxxxxxxx

SharonF Contributor

It was hard for me to adjust to the gluten-free diet, but I felt sooo much better after doing so, that's there's no point in looking back. I hope that you can soon feel better soon, as well.

Lesliean Apprentice

Missla3000- I so feel for you. Did you know depression is a major symptom of Celiacs as is fatigue and brain fog? I am glad you have a good doctor to check out all the possible reasons for your condition but everything you have said certianly sounds like Celiacs to me. When you go gluten-free you might be so happy with the results. You might find you get your life back and can enjoy your son so much more.

Ravenously hungry is common. It went away for me though, and for the first time in my life I was content with food. I too am a fitness freak and feel so much better now. Being a fitness nut did make learning what I needed to do easier. I was already used to self-discipline and conscientious eating.

If your blood work was positive, I think you are positive for Celiacs. The biopsy is checking for the damage from Celiacs and is not always required now. See:

Open Original Shared Link

for current articles on Celiacs and gluten sensitivity. The damage to the villi sometimes causes at least temporary problems with dairy too so you might keep a watch on problems with dairy (bloat, diarhea, gas-I know they overlap with the gluten symptoms) and you might need a calcium supplement for a while.

Please keep us up to date with you.

Leslie

missla3000 Rookie

Lesie, thankyou so much for your reply - do you know that its that bad that your reply made me cry!!! I so want to feel normal again and enjoy my son like you said its so hard. But hey despite everything I have been gluten free for 3 days and wow wow wow what an amazing few days I had !!! Yes I will take a look at that site and keep in touch. I had a bad day today - even tho im sure I aint had No gluten - dunno what it is - could it be my body adjusting as I feel much lighter and not much brain fog but still stomach pains - how long can it take>??? God thanks for the reply - Im fairly alone in this and the worse thing is my 6 year old son has been amazing, he helps and understands more than anyone as I always explain that if I have to lie down its coz of the food my tummy doesnt like..Leslie can I ask what kind of fitness your into - i do yoga, running and mostly weight training.......???


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missla3000 Rookie

Hy again - Im just wondering if any of you guys have ever experienced upper back pain (where the oesophagus is) My doctor has ruled out any oesophagus problems but is this part of celiacs at all?? I havent seen this as a symptom anywhere but I seem to get it everyday!????????

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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