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I Am Now Stummped What Is Going On Now

BKKloppenborg

By BKKloppenborg
in Coping with Celiac Disease

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BKKloppenborg Newbie
BKKloppenborg
Posted

Hey guys still waiting for my blood test to come back about glutten and other things i am intolerant to. I have been staying away from Glutten i have checked every label and have been very good about it. Last night i ate: Safeway Mint Chocolate Chip ice cream, and Ruffles Sour Cream and onion chips, some Lays cheddar just Barqs Rootbeer, and Trader Joe's mini chicken Tacos. (Checked this again and they are glutten free as is everything else. Open Original Shared Link Did have Salsa on them Pace but check that to. What else could it be? I know almost everything i had has corn in it but i thought it was wheat not corn. I have tried to switch to Soy but my Body hates it and stomich gets upset bad when i drink it. What are you guys thinking? I am at a loss here. Symptoms today and early morning were: Upset Stomich, Sore throat, (Thought got better latter) Felt like a lot of pressure in lower abdominal area, Multiple trip to the bathroom (number 2) and its not the right color very very light brown and just wired.

Also one day i had to go home from work (Frinkin again!) because my stomich pain was so bad i couldn't stand up anymore. It hurt so bad i had to sit down even then, and that day i was very sick with bathroom time.

Please need some input. Thanks, Brian

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Wolicki Enthusiast
Wolicki
Posted
Hey guys still waiting for my blood test to come back about glutten and other things i am intolerant to. I have been staying away from Glutten i have checked every label and have been very good about it. Last night i ate: Safeway Mint Chocolate Chip ice cream, and Ruffles Sour Cream and onion chips, some Lays cheddar just Barqs Rootbeer, and Trader Joe's mini chicken Tacos. (Checked this again and they are glutten free as is everything else. Open Original Shared Link Did have Salsa on them Pace but check that to. What else could it be? I know almost everything i had has corn in it but i thought it was wheat not corn. I have tried to switch to Soy but my Body hates it and stomich gets upset bad when i drink it. What are you guys thinking? I am at a loss here. Symptoms today and early morning were: Upset Stomich, Sore throat, (Thought got better latter) Felt like a lot of pressure in lower abdominal area, Multiple trip to the bathroom (number 2) and its not the right color very very light brown and just wired.

Also one day i had to go home from work (Frinkin again!) because my stomich pain was so bad i couldn't stand up anymore. It hurt so bad i had to sit down even then, and that day i was very sick with bathroom time.

Please need some input. Thanks, Brian

Brian,

I am going to assume you are new to the diet. It is best to eat very SIMPLY in the beginning. My first advice to you would be to cut out all processed foods. Your gut is mangled inside and needs to heal. The more junk you put in it, the more reactions you will have.

I have been gluten-free for 3 months plus. In the beginning, I didn't know any better, and just ate whatever I wanted, as long as it was gluten-free. Turns out there are so many things that your system just can't tolerate in the beginning, ESPECIALLY processed foods.

Before going gluten-free, I ate anything and everything. After, I had a problem with all grains, corn, dairy, nut butters and lettuce, broccoli, cauliflower. All of these things gave me terrible stomach pains, gas, bloating etc. Now, I am eating pretty clean- lean proteins, veggies and fruit, along with a good enzyme and probiotic. I've been able to add in a little dairy here and there, and small amounts of peanut butter with no ill effect. I had a gluten free hot dog two weeks ago, and am still bloated :huh: Go with natural foods, with few additives, just to get your system straightened out, and I promise you will feel better!

BKKloppenborg Newbie
BKKloppenborg
Posted
  • Author
Brian,

I am going to assume you are new to the diet. It is best to eat very SIMPLY in the beginning. My first advice to you would be to cut out all processed foods. Your gut is mangled inside and needs to heal. The more junk you put in it, the more reactions you will have.

I have been gluten-free for 3 months plus. In the beginning, I didn't know any better, and just ate whatever I wanted, as long as it was gluten-free. Turns out there are so many things that your system just can't tolerate in the beginning, ESPECIALLY processed foods.

Before going gluten-free, I ate anything and everything. After, I had a problem with all grains, corn, dairy, nut butters and lettuce, broccoli, cauliflower. All of these things gave me terrible stomach pains, gas, bloating etc. Now, I am eating pretty clean- lean proteins, veggies and fruit, along with a good enzyme and probiotic. I've been able to add in a little dairy here and there, and small amounts of peanut butter with no ill effect. I had a gluten free hot dog two weeks ago, and am still bloated :huh: Go with natural foods, with few additives, just to get your system straightened out, and I promise you will feel better!

wow thanks what is your opinion on drinking vodka or glutten free beer? What are goo portable basic foods on the run? Work so many hours and always at work. Bannanas give me a sore throat, apples ok? I have been eAting costco trail mix and knd bars also.

Oh SNAP, well big bo bo. I switched Vodkla from Sky (I know gluten free) to svedka vodka (Cheaper and better) I just assumed (My fault) that it also was made from potatos. WRONG i just thought about it now and its made from 100% GRAIN/Wheat... No wonder i felt kinda bad or horrible the next day even if i had very little...

ang1e0251 Contributor
ang1e0251
Posted

Last night i ate: Safeway Mint Chocolate Chip ice cream, and Ruffles Sour Cream and onion chips, some Lays cheddar just Barqs Rootbeer, and Trader Joe's mini chicken Tacos. (Checked this again and they are glutten free as is everything else.

I have tried to switch to Soy but my Body hates it and stomich gets upset bad when i drink it.

A couple of things; the ice cream has chocolate chips and those probably have soy lecithin in them. Most chocolate does. You said you are sensitive to soy. Also the Lays chips, they are gluten-free but some of us have a problem with them. They are made in a shared facility and some cannot tolerate Lays products. (Stax are made in a dedicated facility.) I can eat them 10 times with no problem then on the 11th time, I'll have a reaction.

Hope this is helpful to you. Soy is a tricky one to watch for, I understand. But you'll feel better if you do.

Wolicki Enthusiast
Wolicki
Posted
wow thanks what is your opinion on drinking vodka or glutten free beer? What are goo portable basic foods on the run? Work so many hours and always at work. Bannanas give me a sore throat, apples ok? I have been eAting costco trail mix and knd bars also.

Oh SNAP, well big bo bo. I switched Vodkla from Sky (I know gluten free) to svedka vodka (Cheaper and better) I just assumed (My fault) that it also was made from potatos. WRONG i just thought about it now and its made from 100% GRAIN/Wheat... No wonder i felt kinda bad or horrible the next day even if i had very little...

I am staying away from alcohol just to be safe. As far as portable snacks go, I like Kind Bars-minimal ingredients. Whole Foods has some raw food bars that are very tasty. Look in their raw section. I also like Jif on the go- portable peanut butter snacks. Grapes, pears, carrots, string cheese- all can be packaged in little snack bags.

Read EVERY label to make sure what you are eating is safe:)

BKKloppenborg Newbie
BKKloppenborg
Posted
  • Author

Do you guys think I should cut out soy to? Like I said I can't drink it, then I can't imangine eating it would be any different. Just did a test right now And ate gluten free pancakes BUT they have soy flour. Now my stomich is making very wired noises. I don't want to know what happpends next. :( then I just remembered trader joes tocos have are fryed in soybean oil. The next day I got sick from those. Did have salsa on them Pace but label was fine can this have to do with anything?

It has to be something else I am allergic to either soy or corn. Time for another experament with somthing with corn and no soy. Stupid usps lost blood results test, have to wait for replacment. *sigh*

Chrissyb Enthusiast
Chrissyb
Posted

I could be totally off in left field or could of missed something but have you thought about maybe dairy is giving you a problem. About 4 months into being gluten free I was still having problems and it was due to dairy. My problems were very similar to yours. As a matter of fact my son get strep throat when he drinks milk. Just a thought.

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BKKloppenborg Newbie
BKKloppenborg
Posted
  • Author
I could be totally off in left field or could of missed something but have you thought about maybe dairy is giving you a problem. About 4 months into being gluten free I was still having problems and it was due to dairy. My problems were very similar to yours. As a matter of fact my son get strep throat when he drinks milk. Just a thought.

now that you said somthing about this I do get sore throats usally with cereal in the morning, not all but many. Maybe I will try milk first over soy. I did eat ice cream last night and felt sick in the morning.

chatycady Explorer
chatycady
Posted

I hope you don't think I'm rude, but what you ate doesn't sound very nutritious for someone who is so sick. Celiac is a very serious disease - life threatening.

I would suggest more nutritious foods.

Celiacs do not tolerate carbs very well.

Protein is easily digested. Cabs are not. Eat fresh fruits, veggies, eggs, fresh meat and yogurt (if you can tolerate it).

Avoid processed food until you are symptom free. Then have at it, but until then keep it simple.

I hope you start feeling better and are healed.

mamies8 Newbie
mamies8
Posted

ang1e0251 is right...Lays chips are like plaing roulette with a hand gun! Most of the time they are safe and then boom!...you got a bag that is cross contaminated from the lines they were made on. Also, chocolate chips used in ice cream is usually a gluten "no no" becuase flower is used on the lines for anti sticking purposes. It's all very confusing I know:( but as time goes on it will get easier. Everyone is right to about the type of food you eat when first diagnosed needs to be simple, basic, fresh, and light. Stay away from ALL processed foods unless it says gluten-free on the package. Good luck!

BKKloppenborg Newbie
BKKloppenborg
Posted
  • Author

Update: tested milk theory today and had eggs and some cheese. Felt fine until a litle after it feels like I drank acid so sore. I am now also staying away from milk now also. I cannot always run to bathroom or work like a old man

Ahorsesoul Enthusiast
Ahorsesoul
Posted

You may find after you have been off soy and dairy long enough you will be able to eat them. Once the intestines heal some people add them back into their diet. I believe most people are saying stay off dairy and soy 6 months to a year. I was off dairy for 6 months before adding it back without problems. It's will worth the healing time.

ang1e0251 Contributor
ang1e0251
Posted

Also, chocolate chips used in ice cream is usually a gluten "no no" becuase flower is used on the lines for anti sticking purposes.

A company cannot add flour to any food without declaring it on the ingredients label as WHEAT. However the OP said that he is sensitive to soy and chocolate commonly does have soy lecithen added.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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