Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Palpitations....cold Sores In Nose And Mouth?


Jodie2DQ2

Recommended Posts

Jodie2DQ2 Apprentice

I used to have the heart palpitaions off and on..now it is every day all day long? Anyone else have this issue? What can it be caused from? I have also been breaking out in cold sore in my nose and on my mouth alot lately? It is frustrating! The dr's say it is anxiety, but honestly it is the feeling that is causing me to be anxious! Any thoughts would be appreciated! I have had my thyroid checked and is within normal rangeTSH 1.340 Triiodothyronine Free Serum 2.8 and T4 Direct 1.04...I guess this is normal? Even checked for Hashimotos since my sister has it but the antibody test was negative. Jodie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

Heart palpitations. I have them and so do others in my family. Here is what works for me. I drink one Gatorade or Propel daily. Seems to work. My dad has atrial fibrillation so when the cardiac arrhythmia specialist at Mayo told him to try this I started it too. If I stop for a week, the flutters start again so now I just always drink one a day.

A friend went to the hospital one day with a heart beat sky high. She also has a family history of this problem. Little town with a young ER doctor. They actually gave her a shot that stopped her heart from beating. The drugs effect only lasted a few seconds and her heart started again on it's own and back to a normal rhythm. He told her he could give her a drug to regulate her heart rate or she could try an over the counter potassium pill. He said potassium sometimes can help regulate the beats. This works for her.

chatycady Explorer
I used to have the heart palpitaions off and on..now it is every day all day long? Anyone else have this issue? What can it be caused from? I have also been breaking out in cold sore in my nose and on my mouth alot lately? It is frustrating! The dr's say it is anxiety, but honestly it is the feeling that is causing me to be anxious! Any thoughts would be appreciated! I have had my thyroid checked and is within normal rangeTSH 1.340 Triiodothyronine Free Serum 2.8 and T4 Direct 1.04...I guess this is normal? Even checked for Hashimotos since my sister has it but the antibody test was negative. Jodie

YES! It was horrible. The heart Dr. said my heart was enlarged. He sent me to an endocronologist...... it's a long story.

It took awhile for me to figure it out, but my adrenal glands were in over drive pumping out adrenaline to control my blood sugar levels. Also I struggled with low blood pressure. I think I was low on every single vitamin there is! I went gluten free and then took it a step farther and went on the Specific Carbohydrate Diet. In time all the symptoms went away. It's been a year since I started the SCD.

I didn't find a Dr. who could help me. Went to 4 specialists. It was through this website that I found answers. We are all so different - so keep working. One thing I read and found out for myself was - there is no magic pill or food that will make me feel better, it was eliminating foods that caused the symptoms.

Since you said the Dr. told you it was anxiety I'm assuming you are not anemia (iron or B-12). B-12 deficiency causes cancer sores - terribly (been there done that too!) However you could be low on other B vitamins - which can lead to a racing heart too.

Find a new Dr. - or become your own Dr. You know your body better than anyone. I pray you get relief - the heart racing cause me major anxiety!!!! I'm glad it's gone.

Your gluten free aren't you? Celiac's often have cancer sores and racing hearts.

Jodie2DQ2 Apprentice

Yes, I have been gluten free for almost 3 years now! I am very careful! But this is something that has been a struggle off and on! Other things have changed this last year. I had a hysterectomy in March, ovaries were left, but I have not been the same since! The heart thing really freaks me out! So, I know I need to keep fighting just like I had to when I was sick before finding out about having Celiac. They said I was dpressed or anxious and needed a psychologist or whatever! I could have been on any meds I wanted at that time! I am not a big vitamin person as i am so sensitive, but I have started a Cal/Mag and a B complex. Thanks for your response! I will keep on trying to figure it out!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,635
    • Most Online (within 30 mins)
      7,748

    Jaxa
    Newest Member
    Jaxa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Wishing you lots of luck--let us know how it turns out!
    • ohmichael
      Thank you both for your input! trents: yes I completely agree, it's simple anatomy. The walk-in doctor I saw even said to me, "you cannot get exposure or get sick if it only got in your respiratory system" to which I replied, "If I inhaled it, it's in the mucous I swallow that leads to my gut." I was honestly baffled I had to explain that to her. Thanks for your comments! Scott Adams: Thanks for your advice, yes I agree I think that's ultimately what I have to do especially while times are getting tougher in this current economy! Hopefully I find something new and equitable or better, in a quick manner! Please send prayers and best wishes for me to find a new job quickly, I wore the N95 masks today and it seems like I'm gonna be okay but I literally have to hazmat wash my clothes and myself when I get home. I think my current exposure will have time to recover while I'm wearing the masks at work. Thank you all again!
    • Scott Adams
      Parent-to-parent, I hear your exhaustion and worry loud and clear – what you’re describing goes far beyond typical toddler troubles. Your daughter’s screaming night pain, terrible bloating, stalled growth, and constant infections are textbook red flags for celiac disease or another serious gluten-related condition. While her blood test came back negative, there are critical reasons not to rule it out yet. First, celiac tests are notoriously unreliable in kids under 3 – their tiny immune systems often don’t produce enough antibodies to register on standard blood work, especially if she wasn’t eating consistent gluten beforehand (which you mentioned was a struggle). Her iron deficiency alone is a glaring clue, as it’s one of the most common signs of undiagnosed celiac in little ones. The fact that she’s already dairy/soy-free yet still suffering suggests something bigger is at play. It could still be celiac (a pediatric GI should consider an endoscopy with biopsies, the gold standard for diagnosis), or possibly non-celiac gluten sensitivity (NCGS) – which doesn’t show up on tests but can cause identical agony. Her recurring mouth ulcers and infections also hint at the immune dysfunction seen in celiac. Until you see the specialist, I’d quietly start a gluten-free trial (after documenting her current symptoms carefully with photos/videos of the bloating and pain episodes). If you see improvement in 3-4 weeks, that’s powerful evidence to bring to the doctors. You’re not being dramatic – you’re being the exact advocate your daughter needs. If the pediatrician brushes you off, look them in the eye and say: “What else could explain ALL these symptoms together? If it’s not celiac, what’s our next step to stop her suffering?” Keep pushing – moms’ instincts are rarely wrong about this stuff. For now, focus on small wins: snap daily pics of her belly to show the distension, ask for a fecal calprotectin test (checks gut inflammation), and know this internet stranger is rooting for you both. She’s lucky to have you fighting for her.
    • nanny marley
      So I have been going threw celiac testing for some time unfortunately I had been 1 year gluten free Wen I had the blood test do came back negative I had other blood tests done my calprotein came in very high and my crp was elevated have been sent to gastroenterology she has put me in for a colonoscopy wat I can't understand it says take 2 tablets  6 days before of  senna for 5 day before my plenvu prep which I start tomorrow yet it says if ibd colitis crone's or others are present don't take the senna but I don't know if I have these yet my brother tho has the same symptoms has just be diagnosed with colitis and didn't take the senna can anyone shed light on this for me  has I  start the prep tomorrow I already have very loose bowels seems a lot to go threw for 6 days ? I'm new to all this do I'm just a little confused here ant help round be appriciated 🙏 also I'm so anxious wat to expect with the colonoscopy has anyone got any advise thanks in advance 🤗
    • trents
      Can you post what blood tests were done specifically for celiac disease, the results and reference ranges if available? If her gluten intake was reduced prior to the blood draw it certainly could result in false negatives on some tests. There is also the possibility that she has NCGS (Non Celiac Gluten Sensitivity). 
×
×
  • Create New...