Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Glutened And Now I'm Clinically Depressed


eyeaspire

Recommended Posts

eyeaspire Newbie

Last Sunday night I ate a kale salad with blue cheese. The next day I drank some Floradix, forgetting that one of their varieties has gluten in it. On top of that, it turns out my lipstick has wheat germ in it. Sigh.

First day of symptoms I felt like I was coming down with the flu, had a puffy face, circles under my eyes, and neuropathy in my left hand - nothing out of the ordinary for a reaction. But as the days went by my mood plummeted to a point where I was having suicidal ideation and anxiety attacks. Before I figured out my gluten intolerance/Celiac (never officially diagnosed, but might as well be considering how horribly I react), I was diagnosed with bipolar. Taking gluten out solved that problem. Anyway, I have meds left over, so I've been taking Zoloft and Ativan, which are helping. I also went to the gym and did a bunch of aerobic exercise to help with the anxiety.

Question: am I the only one who responds this badly? How long does it last?

I've been gluten-free and mostly soy and dairy free since March. I know that reactions can get worse as time goes by, but it has only been six months!

Surely I will get hit with this again and I'm scared to death. I've put a call into my shrink to work out a game plan that doesn't include checking me into a hospital.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Crimson Rookie

First off: If you're having suicidal thoughts, you need to talk to someone around you. Find some support. I know that sometimes when you're in that mind frame, you feel no one will understand or be supportive, but it's better than sitting around and listening to those types of thoughts going on and on.

Sometimes writing in a journal helps me sort it out. Because if I'm forced to look at that type of thought, I get annoyed with myself for thinking it. It usually helps me refocus my thoughts and emotions.

I remember when I first went wheat free. Before I realized I had a gluten issue too. I ate cookies that were whole wheat. It was right about christmas time. I spent three days laying on the couch crying for no apparent reason. It really sucked. But I was able to equate it to the wheat.

I would have been diagnosed bi polar as well before I started eliminating certain foods.

I think it helps to know it's the gluten effect and not who I or you really are. It will pass! Find something that helps to calm you through this.

Feel better!

dilettantesteph Collaborator

I used to regularly feel suicidal when I got glutened. This last two times, my stomach swelled up like I was 5 months pregnant, and I was a bit extra teary with emotional stuff, but no suicidal thoughts! It's been two years gluten free Maybe it is a matter of healing, maybe it is figuring out what I can really eat. I'm not sure, but it is sure nice not to feel like offing myself.

tmbarke Apprentice

For years I was feeling this way until recently this year I went to the med center thinking I was having the onset of an asthma attack - and they found nothing......but my throat was still swelling up and then my tongue - and then my ankles..........2 weeks ago during my physical, I was put on a gluten free diet......talk about depressing!

As I struggled, I started feeling like a new person! I was energetic, beginning to focus my eyes better, concentrating and smiling!

The other nite I had a mixed drink - rum and cola........woke with a swollen throat and angry! Like it started all over again. 'JUST SHOOT ME!'

The depression now comes from the battle of finding gluten free foods with gluten hidden in some form on the label and I cry! How horrible to have to do this! I might as well be vegan!

I came home and unloaded my anger at my brother for being at the store for 3-1/2 hrs to buy a cart of food!

I so need a support group cuz if I have to do this alone, I'll never pull out of this depression.

Then I found this site.

It helps to be able to relate and talk or share with someone.

I'm not sure if it's the depression of dealing with gluten-free, or the results of being glutened.....but having someone to talk to helps you to be understood, like a warm hug from a close friend.

momxyz Contributor

although going gluten free did not eliminate my daughter's anxiety, it did help wih her depression and moodiness. In the first month of the diet he got glutened 2 times - and the change in her mood was noticeable each time. There is a definite relationship between gluten intolerance and depression.

But I agree with Crimson, don't go it alone! I am glad you are going to call your psychiatrist.

DaisyJane Newbie

Aww, I totally sympathize. I feel COMPLETELY CRAZY from gluten: feelings of hopelessness, paranoia, crazy round-in-circles thought patterns - HORRIBLE. All of that can easily lead me to suicidal feelings. At the back of my mind I know it's only food affecting my mood, but when I'm in a spin, it's virtually impossible to detach from my thoughts.

Hang in there :)

  • 3 months later...
BlakeMichael Newbie

Aww, I totally sympathize. I feel COMPLETELY CRAZY from gluten: feelings of hopelessness, paranoia, crazy round-in-circles thought patterns - HORRIBLE. All of that can easily lead me to suicidal feelings. At the back of my mind I know it's only food affecting my mood, but when I'm in a spin, it's virtually impossible to detach from my thoughts.

Hang in there :)

Ya, that sounds familiar. The absolute WORST time for me was before I even suspected that I even had a gluten intolerance. I had eaten a chicken pot pie for lunch from Giant Eagle. Next thing I know I could barely get a full breath or talk, my heart was fluttering, and the room felt like it was shrinking. Sprinkle in a little paranoia and a massive amount of anxiety (was an anxiety attack in the first place) in and thats about how i felt. After the worst of it was over I still had that circular thinking problem you talked about that is nearly impossible to break. The following month and a half of being gluten ignorant was a living nightmare, anxiety attacks and depression were a daily struggle. I am undiagnosed, but I dont want to get glutened just to show up positive. I actually just got glutened the other day and i just now broke through my severe depression and anxiety. Xanax helps a lot too (generic mylan xanax,gluten-free)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Laura Wesson Apprentice

I used to feel suicidal a lot. Not planning it, but crying and thinking, "is it ever going to get any better", and feeling like I might as well kill myself.

It stopped, not after I quit gluten, but after I quit eating many, many other foods that I'd developed reactions to. I'm much more cheerful, emotionally stable and less anxious than I used to be.

Other things that have helped me have been a high-carb starch-based diet - which raises your serotonin level - and omega-3 supplements.

Laura

katinagj Apprentice

Growing up I had times where I was suicidal. It's funny because it all makes so much sense now that I am almost 100% positive I have celiac disease/gluten intolerance. I had something yesterday from a fast food restaurant that like most wouldn't be careful about possible cross contamination. I think I got glutened, because I have a headache and I've been depressed all morning for absolutely no reason. No throat swelling, however my mought is very dry..

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.