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About To Be Diagnosed


madeyedchicken

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madeyedchicken Newbie

I'm about to maybe diagnosed with celiac's, after a year of hell. I would like to know what would be the best plan of action for if it is Celiac disease?

This time last year i went into hospital for a routine operation, and contracted a "super Bug", which decided it wanted to eat my stomach and gut. I very nearly died but i've be left in a bad way. I only weigh 7 stone, and find it difficult to find any energy.

hope you got some advise on what gluten free product taste good. :rolleyes:


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lovegrov Collaborator

You need to tell folks what country you live in. That would make a difference.

However, the best advice at first is to keep it simple -- fresh meat, fruit and vegetables are all naturally gluten-free.

richard

KaitiUSA Enthusiast

Have you had blood tests done? First get that done

After the diagnosis keep it simple as Richard said....fruits and veggies are without a doubt gluten free so stick with stuff you know is gluten free.

Get rid of anything in your house with gluten in it and get a new toaster and throw the old one out.

Some countries are different about what they consider gluten free so that info may help us out here in helping you.

tarnalberry Community Regular

Ditto all that - I highly recommend sticking with whole, naturally gluten-free foods. Produce, fresh (unmarinated and so forth) meats, rice/beans, and gluten-free dairy if you can have it.

Take a look around at the posts on here for ideas about what people eat and how people are handling the diet. It sounds scary at first, but with a little practice, it's really not bad. :-)

ianm Apprentice

I prefer simply prepared meat, veggies and fruits. I avoid fruits and veggies that are real high in starch like potatoes and bannanas or fructose like most tree fruits. I can't seem to stomach starch or sugar in great quantities. Also nuts and buckwheat (not a grain despite the name), flax seed meal, quinoa, millet are all good. It takes a while to get the hang of it but you will be glad you did.

Lesliean Apprentice

Assuming you are positive for Celiacs, and keep us posted :rolleyes: , you will learn the ropes quickly on what to watch out for and what to rely on. Medicines have to be checked out (like by googling it) individually and you check out each food that has natural flavorings, carmel coloring, and stay away from modified food starch... But you start getting a trust in certian foods and brands and expanding on that list over time. And some foods are quick and easy like avocato with salsa and a checked out brand corn chip (I eat Que Pasa in Alaska), or sweet potatoes and baked potatoes. gluten-free breads might be available in your store or you could request them. After a couple months you'll know enough to feel confident. And we are always here for you. :D

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
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    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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