Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac, Gluten Intolerance, Or Something Else?

Joe0123

Recommended Posts

Joe0123 Contributor
Joe0123
Posted

Greetings all. I've had health problems, including joint and muscle pain, abdominal pain, constipation, fatigue, and muscle spasms, starting back in July '08 and I saw a variety of doctors who weren't able to do anything for me. It wasn't until my allergist suggested that I go gluten free that I've felt better, which was in June 09. However, I'm still having lots of digestive issues and the joint and muscle pain hasn't gone away. I've noticed that so many things bother since going gluten free. Nuts, seeds, dairy, sweets, corn, and egg, from what I have been able to discern. So even though I can say I have improved some since going gluten-free (and also taking magnesium, magnanese, zinc, and vitamin C supplements) I still feel like crap most days. I'm wondering if I am celiac or gluten intolerant, or if something else is going on. I've had blood tests and a biopsy and both have come back negative, so I really don't know what to think. Gluten free diet has helped, but will I ever feel normal again? Or should I try something else? Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

If the diet is helping keep with it. It sounds like you could still be getting glutened somewhere have you checked all scripts, generics need to be checked at each refill, supplements etc? Do you any crafts or home repair or remodeling type stuff? Some glues, drywall compound, wallpaper paste and other items can be sources of CC. Do you live with gluten eaters and if you do are you taking precautions with food preperation? Your own toaster, condiments etc.

It also is not uncommon for some of us to have multiple intolerances. Sometimes keeping a food and symptom diary can help pinpoint them or an elimination diet can help to figure them out. Don't lose heart if you seem to be intolerant to many foods for a bit, it can take a while to heal and the way to do it the quickest is to stick with whole unprocessed foods for a while. If you eat out a lot it might be a good idea to do so less frequently until you are feeling better.

Emalemmaly Newbie
Emalemmaly
Posted
Greetings all. I've had health problems, including joint and muscle pain, abdominal pain, constipation, fatigue, and muscle spasms, starting back in July '08 and I saw a variety of doctors who weren't able to do anything for me. It wasn't until my allergist suggested that I go gluten free that I've felt better, which was in June 09. However, I'm still having lots of digestive issues and the joint and muscle pain hasn't gone away. I've noticed that so many things bother since going gluten free. Nuts, seeds, dairy, sweets, corn, and egg, from what I have been able to discern. So even though I can say I have improved some since going gluten-free (and also taking magnesium, magnanese, zinc, and vitamin C supplements) I still feel like crap most days. I'm wondering if I am celiac or gluten intolerant, or if something else is going on. I've had blood tests and a biopsy and both have come back negative, so I really don't know what to think. Gluten free diet has helped, but will I ever feel normal again? Or should I try something else? Thanks.

I did the same thing! I went gluten-free earlier in the year while I was abroad and then came back and started feeling bad again. So I went off it. Of course my symptoms of fatigue, constipation and more got MUCH worse. Did several blood tests and a colonoscopy all negative. So I eventually got a test through Enterolab. THAT came back positive for Gluten sensitive, casein sensitive (I just ordered the one for soy sensitivity because I notice my fatigue linked to that) I have one gene (not active) for celiacs and one gene (obviously active) for Gluten sensitivity. I went gluten-free and Dairy free and my energy felt better when I was doing okay. THen I cut out Soy and I'm doing well. Noticed coffee started to give me pressure headaches (its been windy/sinus infection? I don't know why they're happening more frequently) so I stopped that too.

I got glutened by some malt this morning and my pressure head ache emerged then and has stayed with me all day, moving around from up and down my nose and over one eye then the other. Its very strange, but I know that this is from being glutened and I'm not just guessing if I had a contamination! :) I THINK yesterday that I got sick from some Corn Bran cereal from Quaker (NOT thinking about the fact that oat flour is COMMONLY contaminated) and was nauseous all day.

My constipation really hasn't gotten better since going GFDF or SY and that was one of the things I was really hoping to get ride of... Its gotten worse since I stopped drinking coffee every morning too. (BOOOO)

I dunno what's going on and I'm suspecting EVERYTHING. I've also heard of gluten width drawls which is what we could be experiencing. Do some research and let me know what you think! Hope it gets better for you!

Em

ang1e0251 Contributor
ang1e0251
Posted

For constipation, increase your magnesium intake. I take around 700 mgs. Dr. Carolyn Dean recommends 600 mg's for an average adult. You can't take the whole amount to start. Start with a low dose and increase every 3 - 4 days until you reach your ideal dose. If you start to experience loose stools, back off to a comfortable dose.

Alphawave Rookie
Alphawave
Posted
For constipation, increase your magnesium intake. I take around 700 mgs. Dr. Carolyn Dean recommends 600 mg's for an average adult. You can't take the whole amount to start. Start with a low dose and increase every 3 - 4 days until you reach your ideal dose. If you start to experience loose stools, back off to a comfortable dose.

You also can use magnesium "gel" which I apply every day. Dr. Dean recommends this if you reach your tolerance.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.