Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Eat ?

cmg4835

By cmg4835
in Coping with Celiac Disease

Recommended Posts

cmg4835 Newbie
cmg4835
Posted

Can anyone recommend a good quick reference book ?? I guess I'm lazy and want a book I can go to letter "s" and look up "soy sauce" before I take a bite ?

:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sparky2222 Newbie
sparky2222
Posted
Can anyone recommend a good quick reference book ?? I guess I'm lazy and want a book I can go to letter "s" and look up "soy sauce" before I take a bite ?

:(

+1 -- I would love one of those too!

Lisa Mentor
Lisa
Posted

Two suggestions:

Cecelia's MarketPlace Gluten Free Grocery Shopping Guide

The Essential Gluten Free Grocery Guide, by Triumph Dining

Both can be found on line or here at the Gluten Free Mall.

Guides are super while you are getting adjusted to the diet. But, inevitable, reading labels will be your key to success (or survival)

sunnybabi1986 Contributor
sunnybabi1986
Posted

I bought Cecelia's Gluten Free Guide a few weeks ago and was super excited to have such a long list gluten free items in my hands, but I do want to throw out a caution. There are a few items listed that are NOT gluten free and I'm not sure why they won't remove them. For example, Tylenol Rapid Release Gels are listed as being gluten free in the book, but when I contacted Tylenol, they told me the RR Gels are NOT gluten free and even sent me a list of their gluten free products, with RR gels not being listed as gluten free. I contacted Cecelia's Marketplace about it, but that was a couple weeks ago and they still haven't made any product alerts for Tylenol RR gels. Also, Wonka Nerds are listed as gluten free, but on the package, it clearly states that the product is made on machinery that also produces wheat containing candies. Sooo...I still use my Cecelia's Marketplace Guide, but I still read labels. And I make notes in my book if I call a company and find something different than what's listed. Hope it helps!

cmg4835 Newbie
cmg4835
Posted
  • Author

I did purchase the book yesterday thank you !

I bought Cecelia's Gluten Free Guide a few weeks ago and was super excited to have such a long list gluten free items in my hands, but I do want to throw out a caution. There are a few items listed that are NOT gluten free and I'm not sure why they won't remove them. For example, Tylenol Rapid Release Gels are listed as being gluten free in the book, but when I contacted Tylenol, they told me the RR Gels are NOT gluten free and even sent me a list of their gluten free products, with RR gels not being listed as gluten free. I contacted Cecelia's Marketplace about it, but that was a couple weeks ago and they still haven't made any product alerts for Tylenol RR gels. Also, Wonka Nerds are listed as gluten free, but on the package, it clearly states that the product is made on machinery that also produces wheat containing candies. Sooo...I still use my Cecelia's Marketplace Guide, but I still read labels. And I make notes in my book if I call a company and find something different than what's listed. Hope it helps!
tarnalberry Community Regular
tarnalberry
Posted

Any book is going to be out of date the moment it's printed, so even if you use one to steer you in a direction, ALWAYS read labels before purchasing or using.

motif Contributor
motif
Posted

that's the problem, I go to the store and I cry - nothing to eat there for me.. and I'm hungry.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mbrookes Community Regular
mbrookes
Posted

Nothing to eat? Surely, you jest.

How about fruit, vegetables, meat... or do you mean packaged convenience foods?

Have a Snicker and a Coke. (gluten-free)

Have some Lays potato chips and a V_8 (gluten-free)

There is tons of stuff to eat... you just have to look for what you CAN have as opposed to what you can NOT have.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.