Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hyperhidrosis


cmg4835

Recommended Posts

cmg4835 Newbie

Does anyone have Hyperhidrosis ? Is it related to Celiac ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

I do. I don't think it's related. Mine seems to be more annoying when it's hot, or I'm stressed. It did get better after I went gluten-free, but that could have been the stress factor.

Kylie Explorer

I have had hyperhidrosis ever since I hit puberty and wasn't diagnosed with Celiac until 3 or 4 years later. Hated it for years and thought nothing would work until the dr prescribed Drysol. Makes a world of difference. Hurts like hell to put on but not sweating through my clothes at any time in the year is a wonderful thing. Give it a try if you haven't, maybe it will work for you.

  • 4 weeks later...
tlc Newbie

I was diagnosed with Celiacs three months ago and do not have hyperhidrosis.

I wanted to reply though because my 19 year old daughter was diagnosed with Hyperhidrosis at least 10 years ago. We tried many topical and oral medications (Drysol included) and found absolutely no relief. She experienced hands, feet and armpits that were perpetually wet. Her hands and feet would drip moisture nearly constantly. She adapted by avoiding touching, dressing cooly year round (which isn't healthy in the midwest in January!) and she learned that wearing certain colors masked the armpit stains and evidence of moisture. She suffered with the disease and it's effects for many years, years that are challenging enough for young girls. In the spring of 2009 we discovered a potential surgical procedure that "nips" neurons in the ganglion chain, reducing the messages to the sweat glands. After exploration and pre-testing she had the surgery in May of 2009 in Rochester MN. It was quite successful. Her hands showed a 90+% improvement, her feet a 50+% and her armpits a 90+% improvement. She is greatly pleased with the surgery. It was one night in the hospital (24 hours approx. total stay), full anesthesia, three pre-surgery appts and one post. Because of the severity of her disease it was covered by our insurance.

I guess if at any point a tie is discovered with Celiacs and Hyperhidrosis I would be very insterested in the information. Per my doctor's suggestion, at this point we are not having my children tested for Celiacs because they are not symptomatic and for long term insurance purposes I don't want them labeled as "pre-existing".

  • 1 month later...
HyperGirl Newbie

I started getting hyerhidrosis when I was about 14/15. And I started needing to wear anti-perpirants when I was only 9!!

My doctor prescribed Driclor and it helped but its itchy and can sting :( I used it for ages then stopped (for some stupid reason) and I just keep forgetting to use it. Or I'm so wide awake that I can't sleeo and you have to put it on before you sleep, so I can't use it most of the time.

I'm not yet diagnosed with celiac but have some symptoms and I've had other blood tests which were fine, so I'm now in the process of seeing if it is celiac.

I have noticed that over the past few months my sweating/oily skin has been worse. My sweat smells really bad! And it's also been during those months that more celiac symptoms appeared.

So I'm wondering if gluten can make it worse/trigger it...although as I said I've had it for years so it can't be related to celiac/a symptom.

But if I do have celiac and I go gluten-free and find my skin goes back to normal and my sweat isn't as bad...then maybe that would suggest gluten affects sweating and oiliness of skin and hair!

Dixiebell Contributor

I started getting hyerhidrosis when I was about 14/15. And I started needing to wear anti-perpirants when I was only 9!!

My doctor prescribed Driclor and it helped but its itchy and can sting :( I used it for ages then stopped (for some stupid reason) and I just keep forgetting to use it. Or I'm so wide awake that I can't sleeo and you have to put it on before you sleep, so I can't use it most of the time.

I'm not yet diagnosed with celiac but have some symptoms and I've had other blood tests which were fine, so I'm now in the process of seeing if it is celiac.

I have noticed that over the past few months my sweating/oily skin has been worse. My sweat smells really bad! And it's also been during those months that more celiac symptoms appeared.

So I'm wondering if gluten can make it worse/trigger it...although as I said I've had it for years so it can't be related to celiac/a symptom.

But if I do have celiac and I go gluten-free and find my skin goes back to normal and my sweat isn't as bad...then maybe that would suggest gluten affects sweating and oiliness of skin and hair!

Dixiebell Contributor

I have had hyperhidrosis since I was 14. I am now 38. Certain Dri is the only thing that works for me. It is OTC.

I started getting hyerhidrosis when I was about 14/15. And I started needing to wear anti-perpirants when I was only 9!!

My doctor prescribed Driclor and it helped but its itchy and can sting :( I used it for ages then stopped (for some stupid reason) and I just keep forgetting to use it. Or I'm so wide awake that I can't sleeo and you have to put it on before you sleep, so I can't use it most of the time.

I'm not yet diagnosed with celiac but have some symptoms and I've had other blood tests which were fine, so I'm now in the process of seeing if it is celiac.

I have noticed that over the past few months my sweating/oily skin has been worse. My sweat smells really bad! And it's also been during those months that more celiac symptoms appeared.

So I'm wondering if gluten can make it worse/trigger it...although as I said I've had it for years so it can't be related to celiac/a symptom.

But if I do have celiac and I go gluten-free and find my skin goes back to normal and my sweat isn't as bad...then maybe that would suggest gluten affects sweating and oiliness of skin and hair!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



misslexi Apprentice

yes I do, and I don't know.

I've been gluten free for almost 2 months I think and have not seen any change.

I don't think its stress related, or temperature related. Because I changed into pjs (tank top+pants) and was watching a movie with my mom and within an hour I was soaked earlier this evening. Its really gross, and upsetting (especially at school) regular deodorant doesn't make a difference (except getting all over my clothes, little black dress approved my ass) but the extra strength ones do seem to help a bit when i remember to put it on.

I saw something on Dr. Oz about these injections into the sweat glands of a girl's armpits, I'm 99% sure it was botox...I think they said it lasts a few months, and the girl didn't feel any pain during the needles. Might be worth looking in to, I don't know.

CMCM Rising Star

I was diagnosed with Celiacs three months ago and do not have hyperhidrosis.

I wanted to reply though because my 19 year old daughter was diagnosed with Hyperhidrosis at least 10 years ago. We tried many topical and oral medications (Drysol included) and found absolutely no relief. She experienced hands, feet and armpits that were perpetually wet. Her hands and feet would drip moisture nearly constantly. She adapted by avoiding touching, dressing cooly year round (which isn't healthy in the midwest in January!) and she learned that wearing certain colors masked the armpit stains and evidence of moisture. She suffered with the disease and it's effects for many years, years that are challenging enough for young girls. In the spring of 2009 we discovered a potential surgical procedure that "nips" neurons in the ganglion chain, reducing the messages to the sweat glands. After exploration and pre-testing she had the surgery in May of 2009 in Rochester MN. It was quite successful. Her hands showed a 90+% improvement, her feet a 50+% and her armpits a 90+% improvement. She is greatly pleased with the surgery. It was one night in the hospital (24 hours approx. total stay), full anesthesia, three pre-surgery appts and one post. Because of the severity of her disease it was covered by our insurance.

I guess if at any point a tie is discovered with Celiacs and Hyperhidrosis I would be very insterested in the information. Per my doctor's suggestion, at this point we are not having my children tested for Celiacs because they are not symptomatic and for long term insurance purposes I don't want them labeled as "pre-existing".

My 23 year old son also has hyperhidrosis, and he also had the surgery mentioned above, back in 2005. The worst for him was his hands, and that was 100% improved by the surgery. His feet still sweat, and he gets mid body "compensatory" sweating, especially in hot weather, but the surgery was all worth it to him to get rid of the hand problem. He has the celiac gene and I believe he is affected by gluten....he is currently being carefully gluten free and he feels much better in all respects. However, I don't think there is any connection....my understanding of hyperhidrosis was that it was due to a problem with overactivity in the sympathetic nerve which controls sweating within the body.

I'd also like to add that we tried virtually every possible treatment out there and nothing helped much, which is why we finally resorted to the surgery, which was done on an outpatient basis, by the way. My son is glad he had the surgery, very glad.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    2. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    4. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

    5. - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,084
    • Most Online (within 30 mins)
      7,748

    BlueIcyRose
    Newest Member
    BlueIcyRose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.