Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Curious About This

briar

By briar
in Introduce Yourself / Share Stuff

Recommended Posts

briar Newbie
briar
Posted

hi guys! i'm new to the gluten-free diet and i've never been diagnosied with celiac disease but since i've been gluten free i've gained around ten pounds and i've been feeling GREAT! when i did eat gluten after 50 days of being gluten-free i lost eight lbs in a very short amount of time and as soon as i was back to not eating gluten i started gaining the weight back. i am really curious about if i could have celiac disease... i looked at all the common symptoms and i have a few but any pro help would be awesome!!! please reply!!!! ((oh and i started all the gluten freeness because i'm engaged to a guy with celiac disease :D just in case anyone was curious!!!))

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Switch2GF Rookie
Switch2GF
Posted

Eating gluten free is an extremely healthy way to live... celiac or not! There are lots of people who adopt the diet just for the benefits. You are cutting out a lot of unhealthy and/or processed foods and thinking twice about everything you eat.

My guess is NO, you don't have celiac, but are just getting the healthy benefits from eating a healthy diet.

If you really want to know, go have a blood test done. Blood work is not a 100% diagnosis, but at least a first screening to whether you should dig deeper(PUN :P ) and have an endoscopy.

mushroom Proficient
mushroom
Posted
hi guys! i'm new to the gluten-free diet and i've never been diagnosied with celiac disease but since i've been gluten free i've gained around ten pounds and i've been feeling GREAT! when i did eat gluten after 50 days of being gluten-free i lost eight lbs in a very short amount of time and as soon as i was back to not eating gluten i started gaining the weight back. i am really curious about if i could have celiac disease... i looked at all the common symptoms and i have a few but any pro help would be awesome!!! please reply!!!! ((oh and i started all the gluten freeness because i'm engaged to a guy with celiac disease :D just in case anyone was curious!!!))

I would like to hear what your "common" symptoms are, just as a matter of interest. Also if the weight loss was good news or bad news, i.e., were you overweight before and trying to lose weight? Celiac produces two diammetrically opposed responses depending on your body's reaction. Some people lose weight drastically while eating gluten and cannot gain an ounce. With others, the body seems to go into defensive mode when it is not getting the nutrients it needs (i.e., thinks it needs to prepare for famine) so these people gain weight and cannot lose any until they heal from the gluten, start absorbing gluten again, and the body says, "Okay, no famine any longer."

briar Newbie
briar
Posted
  • Author
I would like to hear what your "common" symptoms are, just as a matter of interest. Also if the weight loss was good news or bad news, i.e., were you overweight before and trying to lose weight? Celiac produces two diammetrically opposed responses depending on your body's reaction. Some people lose weight drastically while eating gluten and cannot gain an ounce. With others, the body seems to go into defensive mode when it is not getting the nutrients it needs (i.e., thinks it needs to prepare for famine) so these people gain weight and cannot lose any until they heal from the gluten, start absorbing gluten again, and the body says, "Okay, no famine any longer."

well, i've always been really small. i never weighed over 110 until i quit eating gluten. losing weight for me was bad. i gained ten lbs when i first stopped eating gluten and i lost a bunch of weight when i did eat gluten and gained it back in the gluten free weeks that followed and have been gaining weight since then. my mom is going to set me up for a blood test even though i've heard from alot of people that its not 100% accurate. i just dread the thought of eating the gluten before hand. and i've looked online at the 300 symptoms but honestly with a list that long everyone is bound to have some of them right?

briar Newbie
briar
Posted
  • Author
Eating gluten free is an extremely healthy way to live... celiac or not! There are lots of people who adopt the diet just for the benefits. You are cutting out a lot of unhealthy and/or processed foods and thinking twice about everything you eat.

My guess is NO, you don't have celiac, but are just getting the healthy benefits from eating a healthy diet.

If you really want to know, go have a blood test done. Blood work is not a 100% diagnosis, but at least a first screening to whether you should dig deeper(PUN :P ) and have an endoscopy.

Thanks for the help!!! i talked to my mom and she's going to set me up with a blood test and i've done my homework on this stuff but what exactly is a "first screening"? is that like a pre doctor thing before the endoscopy? i'm going to google now. :D

i know its probably really silly to get a test done when i'm already gluten free but i'm really curious and i feel like i HAVE to know for sure.

Switch2GF Rookie
Switch2GF
Posted
Thanks for the help!!! i talked to my mom and she's going to set me up with a blood test and i've done my homework on this stuff but what exactly is a "first screening"? is that like a pre doctor thing before the endoscopy? i'm going to google now. :D

i know its probably really silly to get a test done when i'm already gluten free but i'm really curious and i feel like i HAVE to know for sure.

I called the blood work a first screening, because, like you know, it really can't be used to officially diagnose celiac, but it is a good start. You will have to eat gluten the days prior to the blood work, so that they have some antibody to look for. If you weren't eating gluten, then the test would show up negative because your body isn't fighting gluten.

If your test came back positive or really inconclusive, then you follow up with an endoscopy. Start with the blood work, cause I wouldn't want to put myself through an endoscopy if I didn't have to(not b/c it is hard, just inconvenient to devote a day towards it and can be costly)

Good luck and keep us updated!

mushroom Proficient
mushroom
Posted

You probably know that in order for the blood test (or endoscopy for that matter) to have any chance of validity you need to have been eating gluten (say 3 slices of bread a day or equivalent) for at least two months, some say three. Otherwise your body will not have made enough antibodies to show up on the tests or the damage to the small intestine may have healed too much. Often people are diagnosed with celiac who have been completely unaware that they had any symptoms, so it is not unusual.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


briar Newbie
briar
Posted
  • Author

so i've decided for sure to do a test. i've started eating gluten again and honestly i feel like crap. :( my sister never stopped eating gluten so she went ahead and got a blood test and her results come in either today or tomorrow. so if she comes back positive i might just skip to the endoscopy. i feel pretty sick; i guess it could all be in my head but i'll let yall know. see ya...

G-freegal12 Contributor
G-freegal12
Posted

Here is a few tips for you while you eat gluten....

1) Never wander far from a near-by bathroom

2) Pretend that what you are eating is good for you

3) Don't stare at rice pasta in the store...staring isn't nice.

Good Luck!!!

GottaSki Mentor
GottaSki
Posted

You'll need to continue to eat gluten for a few months for either blood work or biopsy and even then many with Celiac Disease have negative tests.

You mentioned you already feel bad since adding gluten back into your diet. Do you feel strongly that you need an official diagnosis?

Your doctor may be able to diagnose you with the dietary response along with a gene test. You can have the gene testing done whether or not you are eating gluten. The celiac genes are DQ2 and DQ8 - if you carry either of these genes it is possible you have celiac - the genes alone do not mean you have celiac - only that it is possible for you to develop celiac.

Even if you are not Celiac - it is good that you found eating gluten-free is of benefit to your body at a relatively young age!

Good luck to you and your finance!

Fitze082 Newbie
Fitze082
Posted
You'll need to continue to eat gluten for a few months for either blood work or biopsy and even then many with Celiac Disease have negative tests.

You mentioned you already feel bad since adding gluten back into your diet. Do you feel strongly that you need an official diagnosis?

Your doctor may be able to diagnose you with the dietary response along with a gene test. You can have the gene testing done whether or not you are eating gluten. The celiac genes are DQ2 and DQ8 - if you carry either of these genes it is possible you have celiac - the genes alone do not mean you have celiac - only that it is possible for you to develop celiac.

Even if you are not Celiac - it is good that you found eating gluten-free is of benefit to your body at a relatively young age!

Good luck to you and your finance!

Since the weight loss is a good thing there is a decent chance that you have Celiac. Malnutrition is a symptom. Its smart of your sister to get tested since it is genetic. Even if you don't have celiac disease you may just have a gluten intolerance which is why you feel better when you avoid gluten

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,696
    • Most Online (within 30 mins)
      7,748
    Jades Journey
    Newest Member
    Jades Journey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RDLiberty
      Toothpaste question.

      By RDLiberty · Posted

      So, I've been using a gluten free labeled toothpaste since being diagnosed with celiac. No big deal, the toothpaste seems to work. Question is, I just realized it contains hydrated silica.  Now, I've heard that silicon dioxide can cause issues in some people with celiac (was that ever confirmed though?), so to be safe, I cut it out of my diet entirely. But, as I understand it, hydrated silica is related to silicon dioxide. Is that something to worry about, or is the hydrated form not known to cause issues like the silicon dioxide form?  I've never seen it in food, but nearly every toothpaste I look at contains hydrated silica?  Issue or not?  Any scientific research (Not opinion pieces, not health bloggers, you get my gist), but actual science, that says it's an issue? I have a hard time believing 99% of what I read on random internet searches.    Thanks so much, Renee. 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Since 2015 we've spent extensive time in Italy and I've been able to eat their wheat products without incident. Initially, I was practically starving thinking foods in Sicily were not gluten-free.  An Italian friend who had lived in the US for over 20 years said she had celiac/gluten-free friends from the US who could eat Italian wheat products without problems. Hesitantly, I tried little by little without issues.  A few years later at a market, I asked a bread vendor if they had gluten-free loaves. Turns out she had lived in LA, said groups believe it's not the gluten that's causing our bodies harm, but potassium bromate; these groups have been trying to ban it.  Bromines and other halogens wreaks havoc to our endocrine system and, more specifically, our thyroids and immune systems. When bromines are ingested/absorbed into the body, it displaces iodine causing other health issues. Potassium bromate is a powerful oxidizing agent (dough 'conditioner') that chemically changes flour to enhance elasticity, bleaches the dough, and ages the flour much faster than open air.   Shortly thereafter while visiting friends in California, one family said they had gone gluten-free and the difference was incredible. The reason they choose this path was due them (a biologist/chemist/agriculturist scientist) having to write a portion of a paper about a certain product for the company he worked. Another company's scientist was directed to write the other portion. All was confidential, they weren't allowed to know the other company/employee.  After the research, they learned gluten was being removed from wheat, sent elsewhere, returned in large congealed blocks resembling tofu, and then added to wheat products. Potassium bromate has been banned for use in Europe, China, and other countries, but not in the US. Then we have the issues of shelf preservatives and stabilizers. What are we eating?  Why? We spend long periods of time in Italy and all has been good.  We just returned from an extended time in Greece;  no issues there either.  There is a man there we learned about on a travel show about Greece who walks the hills, picking herbs, pods, etc.  He is a very learned scholar, taught at the university level in Melbourne. It took a few days to locate him, but were finally successful. He too, is concerned about the additives and preservatives in American food (many of his customers are Americans, haven't been in the best of health, and have become healthier after visiting him). He suggested taking a food product from the US and the same product in Europe, and compare the different ingredients. Then ask why these things are being allowed in the US by the 'watch dog' of our foods and drugs. It would be amuzing if it weren't tragic. I'm presently looking for flour from Europe that I can make my own bread and pasta as the gluten-free bread is now $7.99 a (small) loaf.  BTW, studies are showing that many gluten-free individuals are becoming diabetic. My guess is because the gluten-free products are high in carbs. This is only my experience and opinion garnished by my personal research.  I hope it helps.  
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.