Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Enterolab Testing Results


nomad4life

Recommended Posts

nomad4life Rookie

It seems like every single person who sends samples to Enterolab gets a positive result on something. Does anyone know of anyone who has gotten a completely negative result from them? It seems a little strange that they find something in every single person they test.

Just curious


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

If you use the search function you'll discover that this topic has come up before, and yes, people do test negative.

ravenwoodglass Mentor

Yes there are folks that have negative results. There have been a few that have posted on the board especially after testing whole familys. Most folks that have the testing done have symptoms that are celiac symptoms, most folks don't get the test done if they are symptom free. So the number of positives ourweigh the number of negatives. Celiac is rampant in the US and with so many doctors considering the blood tests that have high rates of false negatives to be conculusive and looking no farther for some of us it is the best way left to be certain that it is celiac or gluten intolerance causeing the issues. While Enterolab does not diagnose celiac it can tell you if the antibodies are present which is very important. Your body does not make antibodies to stuff that is supposed to be in your system.

sunnybabi1986 Contributor

I would imagine that the high number of people diagnosed positive through Enterolab is because people with no symptoms aren't likely to send for a $400 test. Probably, nearly all, bar a few, order the test because they are sick and have researched and found that their symptoms match those of gluten intolerance and are curious to know if it truly is the problem. They then test positive because gluten is the problem, just as they suspected. It also helps to have something concrete telling you gluten is making you sick.

leadmeastray88 Contributor

^^ What they said :)

Who would spend $400 on a test 'just because'? Not me. Unless you have that kind of money, of course :D

Clearly, those who go through Enterolab have a sneaking suspicion that is what is making them sick. I was one of those people. I was confident even before using Enterolab that I had a problem with gluten because I started the diet on my own - and had amazing results. My gastro refused to listen to me, so it was nice to see some validation on paper for what I was doing.

Celiac Disease and Gluten Intolerance are medically proven to be on the rise. Because of this, I don't find the results surprising at all.

jitters Apprentice

As the only person with symptoms in my family at the time, I was surprised when I came up negative but my husband and daughter were both positive with Enterolab (I'm the one with the family history, and all the health issues). They are both gluten free now, and do have symptoms when they have it but it was frustrating trying to convince them that the tests were legit when mine was negative.

My mom got a DNA test done that showed she carries two genes, the results explaned that all her children would have at least one. I know that it doesn't mean I'll automatically have Celiac but it's nice to know that there's some paperwork out there somewhere that says that maybe there is a reason I'm so sick.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    3. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    4. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748

    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.