Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Enterolab Testing Results


nomad4life

Recommended Posts

nomad4life Rookie

It seems like every single person who sends samples to Enterolab gets a positive result on something. Does anyone know of anyone who has gotten a completely negative result from them? It seems a little strange that they find something in every single person they test.

Just curious


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

If you use the search function you'll discover that this topic has come up before, and yes, people do test negative.

ravenwoodglass Mentor

Yes there are folks that have negative results. There have been a few that have posted on the board especially after testing whole familys. Most folks that have the testing done have symptoms that are celiac symptoms, most folks don't get the test done if they are symptom free. So the number of positives ourweigh the number of negatives. Celiac is rampant in the US and with so many doctors considering the blood tests that have high rates of false negatives to be conculusive and looking no farther for some of us it is the best way left to be certain that it is celiac or gluten intolerance causeing the issues. While Enterolab does not diagnose celiac it can tell you if the antibodies are present which is very important. Your body does not make antibodies to stuff that is supposed to be in your system.

sunnybabi1986 Contributor

I would imagine that the high number of people diagnosed positive through Enterolab is because people with no symptoms aren't likely to send for a $400 test. Probably, nearly all, bar a few, order the test because they are sick and have researched and found that their symptoms match those of gluten intolerance and are curious to know if it truly is the problem. They then test positive because gluten is the problem, just as they suspected. It also helps to have something concrete telling you gluten is making you sick.

leadmeastray88 Contributor

^^ What they said :)

Who would spend $400 on a test 'just because'? Not me. Unless you have that kind of money, of course :D

Clearly, those who go through Enterolab have a sneaking suspicion that is what is making them sick. I was one of those people. I was confident even before using Enterolab that I had a problem with gluten because I started the diet on my own - and had amazing results. My gastro refused to listen to me, so it was nice to see some validation on paper for what I was doing.

Celiac Disease and Gluten Intolerance are medically proven to be on the rise. Because of this, I don't find the results surprising at all.

jitters Apprentice

As the only person with symptoms in my family at the time, I was surprised when I came up negative but my husband and daughter were both positive with Enterolab (I'm the one with the family history, and all the health issues). They are both gluten free now, and do have symptoms when they have it but it was frustrating trying to convince them that the tests were legit when mine was negative.

My mom got a DNA test done that showed she carries two genes, the results explaned that all her children would have at least one. I know that it doesn't mean I'll automatically have Celiac but it's nice to know that there's some paperwork out there somewhere that says that maybe there is a reason I'm so sick.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    Cara Evans
    Newest Member
    Cara Evans
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.