Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2nd Biospy?

L13

Recommended Posts

L13 Rookie
L13
Posted

I recently had a blood panel done (Sept 09) and it was Very Positive. Friday I had my biopsy. However, my doctor (on our first visit and b/f my biopsy) said that he likes to do 2 biopsies. He does one to confirm and then another in 5-6 months to make sure my body is healing. I have never heard that and don't like the idea of that. I am very disappointed by that b/c it is invasive and a simple blood panel will test negative if I am doing well with my diet.

I may have to switch doctors - I will if I have to but I want to have him a second chance. Maybe I read him wrong...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

That really is not uncommon. If your feeling better and symptoms have resolved then it is up to you whether you want another scope. It is your choice whether to have one done or not. Also be aware that there can be false negatives with biopsy so as soon as the biopsy is done start the diet. Your body may give you the answer before the biopsy results come in. Do not start the diet until all testing is finished. Hopefully your biopsy is scheduled soon. If they do give you a biopsy date that is not real close you can ask to be put on a cancelation list if your schedule lets you drop everything on short notice.

Gemini Experienced
Gemini
Posted
I recently had a blood panel done (Sept 09) and it was Very Positive. Friday I had my biopsy. However, my doctor (on our first visit and b/f my biopsy) said that he likes to do 2 biopsies. He does one to confirm and then another in 5-6 months to make sure my body is healing. I have never heard that and don't like the idea of that. I am very disappointed by that b/c it is invasive and a simple blood panel will test negative if I am doing well with my diet.

I may have to switch doctors - I will if I have to but I want to have him a second chance. Maybe I read him wrong...

I always have to laugh out loud when I hear this. My doctor, who I really like and respect, said the same thing. I was about 2 years into the gluten-free diet, was doing exceptionally well and by then, was pretty much asymptomatic for anything. I looked at her as she tried to convince me to have a scope done to see if I was healing well and had to suppress a laugh. Don't you think the fact that I am doing so well and have gained weight is a sure fire indicator that I am healing well?

HELLOOOOOOOO! She smiled and laughed herself. I blame it on the AMA training they get....the patient is too stupid to figure that out for themselves! :P

My plan was to see how well I did on the diet and if my issues were still there or not completely resolved, then I would be scoped. I didn't have the scope and am perfectly comfortable with my decision. My blood work also backed up the fact of my recovery so it was a no-brainer for me.

If you do not want to be scoped for good reasons, then be firm with him. If he doesn't like your decision, then you may have to find another doctor.

cat3883 Explorer
cat3883
Posted

My gastro says he only does one biopsy. The exception to that would be if my bloodwork would come back high. He does check my blood every 6 months. By the way I got my tgg down to 4 in 1 year. 0-19 is normal.

jkr Apprentice
jkr
Posted

My GI didn't want to do a repeat biopsy. I don't feel the need to have another one anyway. He didn't even tell me to come back for repeat blood tests which I think I should have.

I am going to call him in a couple of months (I had the endoscopy in July) and ask him when he wants me to have another blood test. I had forgotten to ask him about this when I was there in August.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,751
    • Most Online (within 30 mins)
      7,748
    cpm000
    Newest Member
    cpm000
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
    • Beverage
      Tea Bags and Gluten

      By Beverage · Posted

      I order tea from https://www.republicoftea.com/ All gluten free. Sign up for the newsletter and they send discounts regularly. 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Theresa,  A few of my friends have your same story. You may be right about barley, etc.  18 years ago at a football game while clapping, suddenly my 4th finger was in agony.  It looked like a vein had burst. It was blue for a couple hours, then disappeared.  Finally realized it happened every time when drinking beer.  It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something.  Immediate icing stops the pain and discoloration.  Now avoiding wheat in the US, it rarely happens.  Thanks for the reminder.  Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
    • Russ H
      Blood results

      By Russ H · Posted

      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.