Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amenorrhea And Celiac

wantsomedammpizza

Recommended Posts

wantsomedammpizza Rookie
wantsomedammpizza
Posted

I had been using oral contraception for about five years, until I stopped in July. Here it is November, and I am still experiencing "post-pill amenorrhea," or so I thought. Hubby and I are using condoms, until my cycle returns, and have had nothing but negative pregnancy tests. I haven't had a single period since withdrawl bleeding immediately after my last pill. If I follow the gluten-free diet, I should be just as fertile as any other woman, right? I have been a normal weight for almost 8 months now.

I spoke with a doctor, who suggested I just wait it out (not that I trust those boogers anyway, but that is a whole other topic). What are my options? Should I see a chiropractor, or midwife, or just keep waiting?

I hope I am not getting too personal, but did anyone else have trouble comming off the pill, even when following the gluten-free diet? I have no idea if this is just the after effects of the pill or Celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


momxyz Contributor
momxyz
Posted

I hope someone answers; I have similar concerns about my daughter.

tarnalberry Community Regular
tarnalberry
Posted

I didn't have the problem, but from what I understand, most doctors are going to want to give your body at least 6 months to figure out that it needs to be ovulating again. At the same time, I would probably be wondering why my hormones continued to be wacky too. If you want to see someone on the issue now, I would suggest looking for either a certified professional midwife (not most certified nurse midwives, who are also great, but do have a more western take on medicine because they are RN's before they are CNM's) or a naturopath (or a midwife who is a naturopath as well - if you're in the Puget Sound region, I can even recommend mine, though she does tend to be pretty booked). They are less likely to prescribe pharmaceuticals, but may suggest a very gentle approach to helping the body support a natural cycle. This may be less likely to work, but more likely to be accessible to you right now, rather than in February.

(Almost forgot - at the least, you might want to have your iron stores checked - probably wouldn't stop you from ovulating (you'd just get more anemic) but might play a role? I actually am just doing some guessing there though, so don't take my word for it!)

Swimmr Contributor
Swimmr
Posted

It took me a year to get back regular again. I went without a cycle for several months right after coming off. I was on it for about 4 years. From mid 19 to 23.

I've not been back on it since. I don't like what it did to me. Seems when I came off is when (as I look back) more of my celiac symptoms started.

  • 4 months later...
GFCF Jen Newbie
GFCF Jen
Posted

I had been using oral contraception for about five years, until I stopped in July. Here it is November, and I am still experiencing "post-pill amenorrhea," or so I thought. Hubby and I are using condoms, until my cycle returns, and have had nothing but negative pregnancy tests. I haven't had a single period since withdrawl bleeding immediately after my last pill. If I follow the gluten-free diet, I should be just as fertile as any other woman, right? I have been a normal weight for almost 8 months now.

I spoke with a doctor, who suggested I just wait it out (not that I trust those boogers anyway, but that is a whole other topic). What are my options? Should I see a chiropractor, or midwife, or just keep waiting?

I hope I am not getting too personal, but did anyone else have trouble comming off the pill, even when following the gluten-free diet? I have no idea if this is just the after effects of the pill or Celiac.

I am currently having the same problem! I went off the pill almost a year ago and have not had my period since. (I've been on a gluten-free diet for 7 years). I've seen several doctors, including a reproductive endocrinologist, who determined that my ovaries are fine. The only possible answers I've been given are that I'm not ovulating because of my diet (I'm also casein-free) and because of my low BMI. My BMI is 19, and the doctors said I should try to get it up to 20 at least. I'm seeing a dietician soon to help me figure out the best way to do that.

Have you had any other luck? My husband and I would like to start a family in the near future, so I'd really like to get my period back!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,199
    • Most Online (within 30 mins)
      7,748
    Stacy M
    Newest Member
    Stacy M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...