Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test For Gluten In Food


foodphobic

Recommended Posts

foodphobic Newbie

Hi:

I just received an update from CSA, and the first topic was a home test kit for gluten. I got really interested until I read the rest and realized it was a home test kit for gluten intolerance. I don't need that. I already know I have it. But that got me thinking.

I have been diagnosed for a few months now, and as yet, I have not been tempted to "cheat." I have tried my best to stay gluten free, because when I eat the wrong thing, I go through some sort of Dr. Jekyll to Mr. Hyde transition that lasts a minimum of 24 hours. It's pretty dramatic. It effects my nerves, my sense of well-being, my attitude toward life, my ambition, and makes me impossible to be around, so it's also effecting my relationships and my ability to do my job in an appropriate manner. I realize now that Celiacs was doing this to me for some time on a milder level, but once I started eating properly, when I make a mistake, I am totally out of control. That happened to me last week. I was 9 days gluten-free, and then I ate something that was listed in the Blue Binder as okay, but clearly wasn't. They must have changed the formula, and when I dug the can out of the trash, the label listed things that could go either way. I went to work Friday, and I was an absolute beast to everyone. It was mission critical that I come in Friday, or I would have stayed home and just been miserable by myself. So today, I am doing damage control.

Anyway, when I read that little headline this morning, I thought it was a God send. A way to test your food to see if it's safe. Iwould be a tremendous aid to Celiacs to be able to test for gluten in products themselves. It doesn't seem like it would be that difficult, but I'm not a scientist. In my mind, I see taking a tiny sample of the food, pouring a drop of something on it, and waiting to see if it turns periwinkle blue or something. Maybe I watch too much CSI, but a product like that would free Celiacs to risk travel and restaurants again, and it it wasn't unreasonably costly, there would be a market for it.

Since it is such an obvious solution, I'm sure it must have been thought of and abandoned for some reason, but I am curious as to why it isn't possible or feasible.

Wendy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

There is such a beast but it's way too costly, doesn't work on some types of things and doesn't measure below a certain level. From everything I've read it sounds uselesss. You could probably find it by doing a search.

richard

Sharon C. Explorer

I was just wishing for the same type of thing this morning. I had a box of corn cereal that seemed perfectly safe for my son in my shopping cart this morning, but then I put it back because although NOTHING was unsafe on the list, I worried about trace amounts of contaminants from the conveyor. Also, for example, on Lays plain baked chips it says, "This product is naturally free of gluten." But then, on their other baked chips with flavorings, like the Pizza one, there is no such statement even though the ingredients list NOTHING about wheat, etc, or about traces of anything. I sure wish there was a test.

tarnalberry Community Regular

Yep, there is a home test. It takes about five minutes, and costs about ten bucks a piece, and doesn't detect rye or barley proteins. There just isn't a terribly good business case at this point to try to develop cheap, rapid tests for home use like this given the population and the technology issues. :-/

  • 1 month later...
artmeg55 Newbie

What really bugs me is when I KNOW that I have been careful and cautious of what I eat and I still get symptoms. I usually blame "modified food starch." If the FDA couls be made to mandate accurate detailing of accurate food ingredients, we could avoid such matters. But until then, we will suffer the consequences. It would be so easy (but so boring) to maintain a diet of single ingredient foods.

VydorScope Proficient
I was just wishing for the same type of thing this morning. I had a box of corn cereal that seemed perfectly safe for my son in my shopping cart this morning, but then I put it back because although NOTHING was unsafe on the list, I worried about trace amounts of contaminants from the conveyor. Also, for example, on Lays plain baked chips it says, "This product is naturally free of gluten." But then, on their other baked chips with flavorings, like the Pizza one, there is no such statement even though the ingredients list NOTHING about wheat, etc, or about traces of anything. I sure wish there was a test.

Just as a side note, some of the Lays chips (like the yummy Stax) are produced on seprate gluten free lines... check this thread...

Open Original Shared Link

For more info....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,340
    • Most Online (within 30 mins)
      7,748

    Rachel Hill
    Newest Member
    Rachel Hill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...