Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Side Effect Or True Reaction From Flu Shot?


chiroptera

Recommended Posts

chiroptera Apprentice

All this talk about shots made me think this would be a good place to ask this question:

A little background: My twin daughters never got the flu vaccine until 2003 when they were 4 years old. EVERY singe year they get it (and we haven't yet because one, our doctor didn't get it and two, we may be dealing with an antibiotic allergy and one of them has to complete allergy testing in December before they may be able to get the flu and three, I'm not so sure I want them or their brother to have either vaccine), they get severe, I mean entire upper thigh swelling, flaming redness and then entire upper thigh bruising that last for two to three months). There have been times we get the shots around Halloween and even in February their legs are still bruised and tender.

Do any of you or your children have this kind of site reaction? They have also gotten the side effects listed like a mild fever, etc but not very badly.

They are identical twins and their brother who is now 5 has gotten the flu shot since he was eligible at I think 6 months but he has no site reactions or had any side effects that we could ever tell.

Now I'm really wondering..............Thanks so much for any information/experiences!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Have you taken them to a doctor afterwards to get that checked?

It really sounds like a reaction to the vaccine, I wouldn't get another shot without seriously talking to a doc first.

tarnalberry Community Regular

Definitely a vaccine reaction. (I had a similar reaction, though not lasting as long, from the pneumovax. Only, it's a fairly well known reaction with the pneumovax.) Absolutely, tell the doctor - any type of significant reaction (something other than "I feel a little more tired" that shows the immune system is doing it's job) is worth at least *calling* to let the doctor know. Even if they don't ask you to come in to take a look at it, the reaction should be noted in their files.

Do you know if they have an allergy to eggs? Have they had this (or a milder) reaction to any other vaccines? They could be allergic/reactive to the growth medium (usually eggs), or an adjuvant, or (depending on the vaccine) the preservative. But, if it is an allergy, it really needs to be documented in their histories, and you should mention it any time they get any vaccination - not just mention, but briefly discuss.

I am definitely pro-vaccine; I support the idea of vaccination for the health of individuals and the population. (Vaccine schedules, and the number of vaccines is a different question. ;) ) But even I would consider this a reason to *not* do the flu vaccination for at least a number of years in the future (if not forever), and to ask questions about any other vaccines.

chiroptera Apprentice

Thank you so much for your feedback! Every year I call the doctors and since their bday is in November and often their thighs are still a mess and I just hear "oh, just give them some motrin and put some ice on it." I feel better knowing that my family and I are not the only ones thinking their may be another issue involved. I had one of my twins tested for intolerances as part of the gluten free issue and she came back also egg and casein intolerant. When I stopped those foods all her migraines, GERD and digestive issues went away (along with going gluten free).

tarnalberry Community Regular
Thank you so much for your feedback! Every year I call the doctors and since their bday is in November and often their thighs are still a mess and I just hear "oh, just give them some motrin and put some ice on it."

I would suggest telling the dr's - after you do these things - what symptoms remain, and if it's "they're worse", say that. Bring them in for a visual inspection if you feel your doctors don't "get it". And, consider switching doctors if you think they're really just dismissing you. There may be a case of misunderstanding, no matter how hard you are trying to convey what's going on.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    2. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    3. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    4. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    5. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.