Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Found Part Of The Problem


Lexi

Recommended Posts

Lexi Enthusiast

I spent my ENTIRE summer feeling sick and in pain!!! When summer started, in May, I started using Rice Dream Vanilla Rice Milk. I liked it, and it was a good replacement for milk in my cereal since I can't have dairy. I heard conflicting things about Rice Dream, so I called the company, and they assured me that it was Gluten Free. I have a lot of heatlth issues, so it's not unusual for me to have bad days. But, I spent my whole summer feeling miserable - sometimes thinking that I was comlpetely losing my mind. A couple of months ago, I switched to coconut milk. I almost immediately noticed a difference in the way I was feeling. I have heard that Rice Dream is not completely honest about their products being gluten free. Anyway, it just makes me sad if this is the case. I missed out on so many things with my kids because of how I was feeling. Shame on them if this is in fact true.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AKcollegestudent Apprentice
I spent my ENTIRE summer feeling sick and in pain!!! When summer started, in May, I started using Rice Dream Vanilla Rice Milk. I liked it, and it was a good replacement for milk in my cereal since I can't have dairy. I heard conflicting things about Rice Dream, so I called the company, and they assured me that it was Gluten Free. I have a lot of heatlth issues, so it's not unusual for me to have bad days. But, I spent my whole summer feeling miserable - sometimes thinking that I was comlpetely losing my mind. A couple of months ago, I switched to coconut milk. I almost immediately noticed a difference in the way I was feeling. I have heard that Rice Dream is not completely honest about their products being gluten free. Anyway, it just makes me sad if this is the case. I missed out on so many things with my kids because of how I was feeling. Shame on them if this is in fact true.

Call them back and ask them this question: "Do you use barley or rye at any point in your process?" The answer, unless something has changed in two and a half months, (which was when I called them in tears from exhaustion and a migraine) will be yes. They remove the barley in the process so they don't have to list it. I remember being about five seconds away from screaming when I hung up.

I use West Soy's Rice Milk now and love Good Karma's brown rice milks. I also use Coconut So Delicious which is fine, but semi-expensive where I am. (It also requires refrigeration at all times, which isn't always helpful.) I also like making hot chocolate, and Good Karma and West Soy are better for that. So Delicious leaves a slight weird taste. I know others like Hemp Milk, but I am not a fan of Hemp Milk to be perfectly honest.

Lexi Enthusiast

I am going to try those other milks you mentioned. I LOVE the coconut milk, but it seems to make me gain weight. I got some hemp milk to try, but I don't think I am going to like it. I have tried hemp in other things, and did not like it.

jnclelland Contributor
I am going to try those other milks you mentioned. I LOVE the coconut milk, but it seems to make me gain weight. I got some hemp milk to try, but I don't think I am going to like it. I have tried hemp in other things, and did not like it.

For what it's worth, hemp milks vary GREATLY in taste. I just about cried when Living Harvest changed their formerly fabulous recipe to the new "tempt" stuff, which I can't stand. I tried 'em all, couldn't find one I liked, and then a couple of months ago Pacific saved the day by coming out with one that tastes like Living Harvest used to taste. (So I want everyone to go buy some so they'll keep making it! :) )

Jeanne

NewGFMom Contributor

Try lite coconut milk. WAY less calories and I can't taste the difference. You can get it at Trader Joes. I also saw some coconut milk in the organic section at Stop & Shop in a big container. It's made by the same company that makes the coconut milk ice cream.

AKcollegestudent Apprentice
For what it's worth, hemp milks vary GREATLY in taste. I just about cried when Living Harvest changed their formerly fabulous recipe to the new "tempt" stuff, which I can't stand. I tried 'em all, couldn't find one I liked, and then a couple of months ago Pacific saved the day by coming out with one that tastes like Living Harvest used to taste. (So I want everyone to go buy some so they'll keep making it! :) )

Jeanne

Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

jnclelland Contributor
Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

So far I've only found it at Whole Foods, but I've been meaning to request it at other stores that carry other Pacific nut milks.

Jeanne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnclelland Contributor
Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

P.S. - And yeah, I didn't like Hemp Dream either.

SillyBoo Newbie

I use the Whole Foods 365 brand Rice Milk, and haven't had any problems with it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,101
    • Most Online (within 30 mins)
      7,748

    Mary Eileen
    Newest Member
    Mary Eileen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
    • rei.b
      As I said, I do not have any vitamin deficiency. I was already tested.
    • Wheatwacked
      Talk to your  Talk to your provider about testing for vitamin and mineral deficiency.  celiac disease causes malabsorption and eventually malnutrition.  Especially vitamin D. Having the gallbladder removed seems to be a common step on the way to a Celiac Disease Diagnosis,  Gallbladder is a sympton of deficient Choline. Eggs and red meat are the primary source..Choline makes up a majority of the bile salts.  The bile gets thick, doesn't get enough into intestine to digest fats well.  Can eventually back up into gallbladder, cause gallstones.  Without bile, bowel movements can become hard. Try to avoid all processed foods while you are healing, The gluten-free foods are not fortified with vitamins and use various ingredients to mimic fat that bothers many Celiacs.  Choose vegatables with low omega 6.  Optimum omega 6 to omega 3 ratio is less than 3:1.  Wheat flour is 22:1.  Grass fed milk is 1:1.   Commercial Dairies milk is 5:1.  They feed wheat, rye and barley Gluten as part of the food mix.  
    • trents
      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
    • trents
      Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.