Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Found Part Of The Problem

Lexi

By Lexi
in Coping with Celiac Disease

Recommended Posts

Lexi Enthusiast
Lexi
Posted

I spent my ENTIRE summer feeling sick and in pain!!! When summer started, in May, I started using Rice Dream Vanilla Rice Milk. I liked it, and it was a good replacement for milk in my cereal since I can't have dairy. I heard conflicting things about Rice Dream, so I called the company, and they assured me that it was Gluten Free. I have a lot of heatlth issues, so it's not unusual for me to have bad days. But, I spent my whole summer feeling miserable - sometimes thinking that I was comlpetely losing my mind. A couple of months ago, I switched to coconut milk. I almost immediately noticed a difference in the way I was feeling. I have heard that Rice Dream is not completely honest about their products being gluten free. Anyway, it just makes me sad if this is the case. I missed out on so many things with my kids because of how I was feeling. Shame on them if this is in fact true.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AKcollegestudent Apprentice
AKcollegestudent
Posted
I spent my ENTIRE summer feeling sick and in pain!!! When summer started, in May, I started using Rice Dream Vanilla Rice Milk. I liked it, and it was a good replacement for milk in my cereal since I can't have dairy. I heard conflicting things about Rice Dream, so I called the company, and they assured me that it was Gluten Free. I have a lot of heatlth issues, so it's not unusual for me to have bad days. But, I spent my whole summer feeling miserable - sometimes thinking that I was comlpetely losing my mind. A couple of months ago, I switched to coconut milk. I almost immediately noticed a difference in the way I was feeling. I have heard that Rice Dream is not completely honest about their products being gluten free. Anyway, it just makes me sad if this is the case. I missed out on so many things with my kids because of how I was feeling. Shame on them if this is in fact true.

Call them back and ask them this question: "Do you use barley or rye at any point in your process?" The answer, unless something has changed in two and a half months, (which was when I called them in tears from exhaustion and a migraine) will be yes. They remove the barley in the process so they don't have to list it. I remember being about five seconds away from screaming when I hung up.

I use West Soy's Rice Milk now and love Good Karma's brown rice milks. I also use Coconut So Delicious which is fine, but semi-expensive where I am. (It also requires refrigeration at all times, which isn't always helpful.) I also like making hot chocolate, and Good Karma and West Soy are better for that. So Delicious leaves a slight weird taste. I know others like Hemp Milk, but I am not a fan of Hemp Milk to be perfectly honest.

Lexi Enthusiast
Lexi
Posted
  • Author

I am going to try those other milks you mentioned. I LOVE the coconut milk, but it seems to make me gain weight. I got some hemp milk to try, but I don't think I am going to like it. I have tried hemp in other things, and did not like it.

jnclelland Contributor
jnclelland
Posted
I am going to try those other milks you mentioned. I LOVE the coconut milk, but it seems to make me gain weight. I got some hemp milk to try, but I don't think I am going to like it. I have tried hemp in other things, and did not like it.

For what it's worth, hemp milks vary GREATLY in taste. I just about cried when Living Harvest changed their formerly fabulous recipe to the new "tempt" stuff, which I can't stand. I tried 'em all, couldn't find one I liked, and then a couple of months ago Pacific saved the day by coming out with one that tastes like Living Harvest used to taste. (So I want everyone to go buy some so they'll keep making it! :) )

Jeanne

NewGFMom Contributor
NewGFMom
Posted

Try lite coconut milk. WAY less calories and I can't taste the difference. You can get it at Trader Joes. I also saw some coconut milk in the organic section at Stop & Shop in a big container. It's made by the same company that makes the coconut milk ice cream.

AKcollegestudent Apprentice
AKcollegestudent
Posted
For what it's worth, hemp milks vary GREATLY in taste. I just about cried when Living Harvest changed their formerly fabulous recipe to the new "tempt" stuff, which I can't stand. I tried 'em all, couldn't find one I liked, and then a couple of months ago Pacific saved the day by coming out with one that tastes like Living Harvest used to taste. (So I want everyone to go buy some so they'll keep making it! :) )

Jeanne

Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

jnclelland Contributor
jnclelland
Posted
Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

So far I've only found it at Whole Foods, but I've been meaning to request it at other stores that carry other Pacific nut milks.

Jeanne

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jnclelland Contributor
jnclelland
Posted
Hmm...I hadn't actually tried anything other than Hemp Dream, which came apart in two and a half layers, but if I can find the Pacific (and given that you appear to shop at Stop and Shop, it's possible), I'll give it a try.

P.S. - And yeah, I didn't like Hemp Dream either.

SillyBoo Newbie
SillyBoo
Posted

I use the Whole Foods 365 brand Rice Milk, and haven't had any problems with it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    2. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    4. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
    5. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748
    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.