Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This A Glutening?


Frances03

Recommended Posts

Frances03 Enthusiast

I've been gluten free for about a month, and still don't feel right yet. Therefore, I'm not really sure what is a glutening and what isn't for me yet. Last night I ate a chili at wendy's, plain no cheese or onions, and a plain baked potato, and a coke. This morning, I am absolutely NAUSEOUS. I should explain that before I was diagnosed, I was nauseous all the time and I just assumed it was one of the many meds I was on. However, I haven't been on those meds since diagnosis, and I haven't been nauseous like that in a while. This is the kind of nausea I would have when pregnant, and I actually gag while going about my business, and feel like I need to EAT something or I will throw up. This was the first time I have been out to eat anywhere in a long time now. I just didn't feel like cooking. Another thing is I have gained 2 pounds for no reason. The only other things I ate yesterday were a small bowl of cereal with rice milk, a rice cake with a tablespoon of almond butter and some jam, and a bowl of homemade chicken soup. I dont think that should cause me to gain 2 pounds.

The problem is, I am just not feeling much better at all yet on this diet! I have days where I feel okay, and then days where I am bloated again, and gain weight again for no reason, I have had so many many headaches since starting gluten free that I can't even count them. I've got 4 or 5 small itchy bumps on my arms, they are like little bumps that pop up, itch to death, I scratch them and they scab over and stop itching, I've never had these before. I am also feeling totally depressed now! I dont even want to get out of bed the last several days. My bowels still aren't working right. Is this EVER going to change?? It seems so hopeless!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frustrated09 Newbie

It's not completely hopeless. You just gotta figure it out. Chili and coke i would not trust. If you have skin issues, have you changed out shampoo, deoderant, lotions, toothpaste. Dove and Neutrogena products are safe. Some people don't have issues with these things but some do (and I'm one of them). check your vitamins or anything else you take.

Days when you're good and days when you're not.....figure out what you do different those days, write it down, try an elimination diet. start with 2-3 foods that you know are ok and then slowly add to figure out what the bad is. I just did it a couple days ago and I pretty much ruined it first thing in the morning but it got me thinking and by the time i got home from work i had severe bloating and it all came from soy.

when i gluten myself i don't wanna get outa bed either and the day is depressing with no energy. oh weight gain...gluten free products have a ton of carbs, also when the intestines are healing they absorb the nutrients completely. laying around probably won't help it either :)

Marsha

-self diagnosed gluten/dairy/soy intolerant

Wolicki Enthusiast

The first couple of months are hard. I promise it gets better. I've been gluten-free for 5 months and it's gotten MUCH better. Remember, it took a long time to mess up your intestines, and it will be ahwile There will be ups and downs, but soon, more ups than downs. It's frustrating I know! I thought "AHA they know what's wrong with me, now I will be all better!" Unfortunately, it takes a while for your body to heal and to relearn how to digest stuff.

Eat as clean as you can, check to make sure there's no gluten anywhere and you'll make steady process. WE're all here for you ;)

Frances03 Enthusiast

Thanks you guys. I just wanted to emphasize that I do not eat high carb gluten free products. In fact I haven't purchased a single "gluten-free" product like breads, cakes, cookies, etc. I normally eat either a smoothie with fruit and rice milk, or cereal and rice milk for breakfast, sometimes eggs, maybe once a week. For lunch I just snack on leftovers usually. For dinner I've been making taco salad, roasted chicken with veggies, stew, big salad.

Why would coke from Wendy's cause a problem? I know their chili is gluten free but it could easily have been cc'd.

I have not tried eliminating soy but I'm not sure if I've been eating it either.

Juliebove Rising Star

What brand of rice milk? Rice Dream contains gluten. As for Wendy's, that food could have easily been cross contaminated.

Frances03 Enthusiast

I have the Pacific plain rice milk. I found out about the Rice Dream after I bought a case at Costco. I returned it all after I drank some and didn't feel well. I wish Costcto would carry the Pacific brand!!

dhd2000 Newbie

I don't know why, but I can't tolerate coke anymore either, and neither can my sister, both diagnosed celiacs. I think maybe it's the high fructose corn syrup that's just too much for intestines that are still healing??? I also can't tolerate diet-coke, maybe the artificial sweetners? Hang in there, the healing isn't quick, but it does happen.

Thanks you guys. I just wanted to emphasize that I do not eat high carb gluten free products. In fact I haven't purchased a single "gluten-free" product like breads, cakes, cookies, etc. I normally eat either a smoothie with fruit and rice milk, or cereal and rice milk for breakfast, sometimes eggs, maybe once a week. For lunch I just snack on leftovers usually. For dinner I've been making taco salad, roasted chicken with veggies, stew, big salad.

Why would coke from Wendy's cause a problem? I know their chili is gluten free but it could easily have been cc'd.

I have not tried eliminating soy but I'm not sure if I've been eating it either.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      Supplements for those Diagnosed with Celiac Disease

    2. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    3. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    4. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      Supplements for those Diagnosed with Celiac Disease

    5. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      yes i do take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.