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Going gluten-free For "support"


nmlove

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nmlove Contributor

My household is mostly gluten-free. My two youngs sons recently diagnosed with celiac. We've been gluten-free about a month. Lunch and dinner are gluten-free. So I end up eating mostly gluten-free, though I occasionally have something with gluten (like cereal or sometimes a flatbread or something). But here's the funny thing, I'm eating super healthy - lots more fruits/veggies/protein, less starches. Rarely anything processed. And about a week and half after my son went gluten-free I started having digestive issues. I am running to the bathroom like crazy. I would think the increase would make me go the other way. It's just weird. Anyone experience anything similar?

By the way, I don't eat any dairy or soy. Partly because my breastfed daughter reacts to it and partly because I found I react to it too! I feel so good without dairy. I didn't even know how much it bothered me until I took it out.

Also, both my husband and I tested negative so we're still not sure which side the celiac came from. Plan on doing genetic test though. More to alert the rest of the family since we're all at the age of having kids.


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Evie4 Apprentice

I find anytime there is a significant change in the diet it can cause some issues. I for instance, can't eat pears. For whatever reason, they just cause me all kinds of problems anymore. Apple juice can give me the runs. Legumes contstipating. Can't digest bananas...etc. So eating healthy doesn't always mean my body likes everything! Maybe you can see some patterns if you keep a food diary--or just limit your food choices and gradually add more things in. Just a thought :)

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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