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Latent Celiac Disease

Teddy's mom

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Teddy's mom Rookie
Teddy's mom
Posted

Hi Everybody! I just had a intestinal biopsy which showed "latent celiac disease". The doctor ordered more blood work to test for the genetic marker and nutritional deficiences before she recommends a gluten free diet. I'm confused. If the genetic test is positive and there are no nutritional deficiences, should i go gluten free anyway? I guess gluten can't be good for you if you have the potential to become celiac. The doc said the villi looked flattened when examined, but the biopsy said latent. Has anyone else had this diagnosis?

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Lisa Mentor
Lisa
Posted

[b]Latent celiac disease refers specifically to patients who have abnormal antibody blood tests for celiac disease but who have normal small intestines and no signs or symptoms of celiac disease.

Did you have the blood panel for Celiac?

Teddy's mom Rookie
Teddy's mom
Posted
  • Author
[b]Latent celiac disease refers specifically to patients who have abnormal antibody blood tests for celiac disease but who have normal small intestines and no signs or symptoms of celiac disease.

Did you have the blood panel for Celiac?

Hi Lisa, I did have an antitTG test i think that was borderline, 14.3, near the cut off of 15 that is why the doctor did the biopsy. Does this mean i don't have celiac?

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi Lisa, I did have an antitTG test i think that was borderline, 14.3, near the cut off of 15 that is why the doctor did the biopsy. Does this mean i don't have celiac?

No it doesn't. I am wondering why they are saying latent, perhaps because the villi are not totally destroyed.....yet. I would advise doing the diet to prevent any more damage. If you wanted after six months or so on the diet you could ask to be reendoed and see if the damage that they found had resolved. That would be a clear indication that the diet was needed.

Teddy's mom Rookie
Teddy's mom
Posted
  • Author
No it doesn't. I am wondering why they are saying latent, perhaps because the villi are not totally destroyed.....yet. I would advise doing the diet to prevent any more damage. If you wanted after six months or so on the diet you could ask to be reendoed and see if the damage that they found had resolved. That would be a clear indication that the diet was needed.

Thanks for your reply. Boy you went through a lot to be properly diagnosed! I guess it is difficult. Good luck to you and your family. I'll keep you posted on my journey.

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