Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Worse? Please Help


ChrisL

Recommended Posts

ChrisL Newbie

I am writing this for my girlfriend who has recently been diagnosed with Celiac. (about 3 weeks). Her symptoms are fatigue, numbness, chills, blurry vision, brain fog. I have noticed those to be relatively common symptoms of Celiac before diagnosis.

She has gone Gluten Free and the past few weeks have been awful with symptoms. It seems like every symptom has magnified mulitple times without Gluten. I have been chalking it up to the theory of "It gets worse before it gets better" but has anyone had this happen? Also, right after she eats, (which is Gluten Free) she feels dramatically worse. Is this common in the first weeks of a gluten-free diet?

Any info and help is much appreciated.

Thanks,

Chris


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi Chris and welcome!

If your girl friend has intestinal damage due to Celiac, it will take some time to heal. Any food will be an issues, gluten free or not.

Be as cautious as possible, eat simply with meat, fish, fresh veggies (cooked well), rice and potatoes. Limit seasonings to salt and pepper until you get the hang of label reading.

She should have her own toaster, and pots and pans should be free of scratches that could hide previous gluten. Meds, vitamins, lipstick, lotions or anything that can get into her mouth should be checked.

With chills and blurry vision, she might be coming down with a bug or the flu. But, it would be worth getting a full metobolic panel done to make sure her thyroid is in good working order or there are no difficiencies.

It's great that she has you in her corner. It's not easy at first, but a good support team, sure makes it easier. Cheers to you!

sadeew Newbie

Hi Chris~

I felt awful on and off the first 2 weeks I quit gluten.

I recently read that up to 80% of people gpoing gluten-free can experience withdrawal. I had a good 5 days of feeling more tired than I had and I broke out all over, like 80 pimples, I got headaches and was super grumpy.

I am now coming out of it and feeling better than before.

Make sure your girlfriend drinks LOTS of water. Green smoothies would be good, too. I felt so miserable I couldn't believe it because I thought I was supposed to feel better and I definitely did not!

I bet she is having withdrawal. It should clear within 2-3 weeks.

Best of luck to you both.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,062
    • Most Online (within 30 mins)
      7,748

    John Acheson
    Newest Member
    John Acheson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.