Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Just Wanted To Introduce Myself, Glad I Found This Site!

Kat'sMom

Recommended Posts

Kat'sMom Newbie
Kat'sMom
Posted

I just wanted to introduce myself. Im glad I found this site & hope to learn alot & be able to help my daughter get through this.

I have an 11 yr old daughter, who has been diagnosised with everything from failure to thrive, IBS, Endocaprices, and even an eating disorder. However at her last GI appt, we saw someone new, she read all her history & asked if se had ever had a Celiac plate done.

Since she had not we spent several days last week doing tests, x-rays, blood work, etc.

Well it has been confirmed this is what she has. Kind of hit us like a brick. She's pretty thin for 11 (59 lbs) and pretty much is a "carb eater" loves mac & cheese, breads, cereal.

This is going to be HUGE for her to accept & eat right.

I see there are lots of good resources for how to find/make gluten free foods. So I will be pouring over them.

We still have to meet with her GI & they are sending us to a nutrionist. I told her I would let her get through Thanksgiving & then we will have to learn together how to do this.

Look forward to meeting/chatting with you all :)

~Jules

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. It will be hard for her at first, it is for almost all of us. You may find she is a bit tempermental for the first couple weeks as many of us do go through withdrawl but it will lift. You have found a great place for support and info and it may help her to join also and check out the teen section. There is a lot to learn, make sure all family members get tested also as there is a strong tendency for there to be more than one of us in a family and sometimes the symptoms are not as obvious as her's were. Ask any questions you need to and read as much as you can. I am so happy they found this in her at an early age. I have been celiac since about age 5 but wasn't diagnosed till I was in my forties. She is very lucky but likely won't feel that way right now.

purple Community Regular
purple
Posted

Hi and welcome! One thing to start getting the mindset right is to focus on what she can eat, rather than the negative, "can't haves". Give her positve choices so she can learn and choose for herself. Also get her involved in food preperation. She will learn lots that way and will be in control of what she eats. She will be more aware of what is in her food when she is not at home. Learn how to read labels together. Find a couple of yummy recipes for those moments when she feels bad...comfort food... like brownies or chocolate chip cookies. Stash some in the freezer...just for her ;)

When my 18 yr old started gluten-free this year, she was already vegan. She learned about all the bad ingredients in her food. She read labels and looked up ingredients on the web or asked me. I am thankful she was so interested and wanted to be healthier. You could learn about just one ingredient per week. Soon she will know what all the labels say.

Before we learned about gluten I was learning about all the junk in our food...long ingredient labels. The "stuff" in boxes and bags isn't food IMO. I still buy some but not like before. Like tortilla chips...corn, salt, oil...better choice and safer than those with lots of ingredients. Sometimes shopping is easier. Look at the cereal aisle...so long. Not anymore. Head for the Chex...and you are done!

One more thing. I planted my first garden this year. Consider having her plant a couple of veggies. She will learn so much and will enjoy watching her "babies" grow. She will get excited about healthy food. It is fun, rewarding, organic and cheap...really cuts down on the food bill!

ang1e0251 Contributor
ang1e0251
Posted

Welcome and I award your dr a gold star for being on top of things! I would add that if you can join a local celiac disease group, your daughter could have the chance to meet other kids like her. I imagine she might feel like the only one in the world with celiac disease otherwise.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      Gluten related ??

      By knitty kitty · Posted

      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
    • Kara S
      Finding gluten free ingredients

      By Kara S · Posted

      Hello, my family is very new to Celiac Disease so forgive me for asking what Warrior Bread is and is there a recipe for it online?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.