Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice On What To Ask A Potential New Pcp


Roda

Recommended Posts

Roda Rising Star

I have been wanting to change my PCP and just now got around to calling and setting up an "appointment" (more like a visit to feel the potential new doctor out) with a different family practice physician. I'm not sick and everthing is going well, but I need a good pcp that I can feel confident with. My current PCP I am not satisfied with and have not been since my symptoms started over 3 1/2 years ago. I know the obvious things like sick visits, rx, lab results, etc. but need advice on what to actually ask the doctor.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Well, I just winged it and went for an appointment this morning. I really liked this new doctor and her personality made me feel at ease. She was easy to talk to. I knew that she "got" celiac by a comment she made. She said something to the fact that I was lucky my blood work was positive and went on to say that there can be alot of false negatives, even in biopsy. I was impressed with that. I told her that I thought a good doctor was one who was humble enough to say they don't know everything and be willing and listen to their patients to help them figure it out. After alot more discussion, I feel like she is a good fit for me. I am going to try to get my husband to switch to her also. It will be nice to have a pcp that takes the time with you and listen, not just herd you in and out like cattle.

Wolicki Enthusiast

Roda, that's great! I had a similiar experience with a new PCP last week, an Osteopath. I simply asked how familiar he was with Celiac, and he only stopped citing examples when I told him "he passed." :D It is so comforting that my doc knows more about it than me! Yippeeee!

breavenewworld Apprentice

hi Wolicki

who is your doc

what did you go in for??

i've been going it alone for the past year besides an endoscopy (obviously couldn't do that myself) and a visit or two to some non-helpful GI's

thanks!

Wolicki Enthusiast

His name is Andrew Mielnek. He's a D.O. in Huntington Beach, with Beach Family Doctors.

Open Original Shared Link

I went in for my first patient visit. He looked at all my labs, was able to determine several issues and gave some good, no nonsense advice. My next visit I am going to ask about food intolerances. Haven't found a GI I like, but I think all they care about is endos, etc. The doctor I truly have faith in, who is very thorough and very caring is a Rheumatologist Kathy Karamalou in Newport Beach. She is amazing. Actuallu will say "I don't know" and then call one of her colleagues for an answer.

Janie

breavenewworld Apprentice

janie-

thanks!! i'm an hour north but sounds like it might be worth the drive as i can't find anyone in my area. part of me is so resistant to going to more doctor visits. it's so draining to have to explain everything and catch someone up, plus it adds to my schedule which i'm trying to clear out so i can HEAL. plus, i've gotten so much conflicting info on supplements and herbal remedies that i don't even know where to start. anyway :) have you found it necessary/helpful to visit them? what kind of tests have been helpful for you- did you get a full metabolic? have you found deficiencies in certain vitamins? other issues?

i'm so curious about everything and i've been on this site for WAY too long today :)

thanks again

Wolicki Enthusiast

I've been tested for almost everything. Vitamins, electrolytes, metabolic, kidney, heart and liver funciton. Having some kidney issues, so everything has been checked. They found the following deficiencies/issues:

secondary hyperparathryoid caused by D deficiency

hypothyroid

iron deficient anemia

b12 deficiency

Most of it has been addressed. i take Caltrate + D and 50,000 IU (presciption) Vitamin D, got 6 b12 shots along with 8000 mcg sublingual daily, took Ferrex but it upset my stomach, so I had an iron infusion.

I also take Fish Oil, B complex, multi daily.

I was sick for 10 years before diagnosis. I have an appointment with a new nephrologist tomorrow. I've had terrible edema since going gluten-free. I also developed neuropathy and restless legs AFTER going gluten-free. But, no neuropathy in 3 days! yippee!! Getting better slowly but surely!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



breavenewworld Apprentice

wow that's a lot to deal with! i admire you you for being diligent with all the right tests.

sometimes reading people's health struggles on here it seems like it goes from one thing to another. i'm not sure why the body does other things after going gluten-free?? do you think a lot of us are still getting microglutened? or does our immune system switch to doing other weird stuff? or maybe it's all just issues that were created when we were on gluten.

Wolicki Enthusiast

This is just my theory: I think that our bodies are so overloaded with fighting off the gluten that the other things lurk there until your body has time to deal with it. In other words, these issues were there all along, bod was just choosing its battles.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      14

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

    3. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    4. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    5. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,073
    • Most Online (within 30 mins)
      7,748

    amaryliss
    Newest Member
    amaryliss
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Tazfromoz
      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.