Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Self Diagnosed, I Think.


bellis

Recommended Posts

bellis Rookie

My wife, 2 kids and i all got swine flu at the end of august. i was the only 1 to get diarrea from it. It didn't go away. I had this before, where i got ill and i had "The squirts" for 2 weeks in the past, so i didn't think much of it. i noticed my weight decreasing and i was constantly bloated and very gassy till early Oct. it would come and go for many weeks. Then i had some spagetti and meatballs and half a loaf of french bread. Woke up that night at 4am with intense cramps and diarrea(Iblamed it on the garlic!). went to work and felt better by noon, so i ate pizza! by 3pm on my way home i was covered in hives and had diarrea. I took benadryll and pill called allerplex that is supposedly good for your intestines when having a reaction to food. oops. It is loaded with Gluten. THe next three days were sleepless, foodless nights and days with intense cramps and bloating. The second day my wife read about a disease called Celiac. an answer!

I am a 35 year old Irish, italian native american. My mother had Thyroid Cancer, my Brother is anemic, and he and my sister both have acid reflux and have both been to the doctors numerous times with no resolve to their digestive problems. My sister has gone gluten free with me and has had no more stomach aches.

i have been gluten free for 5 weeks now, and with no cramps or bloating (with the exception of dairy which i have cut out now). my weight has sustained and i am eating well. My stomach seems slightly sensitive to acidic foods. No coffee, catsup, or dairy and i seem fine.

i refuse to eat gluten again. ever. My energy levels are up higher than i can remember and no longer run to the bathroom after meals. I don't think i would eat gluten agin even if i was proven not to be Celiac.

Any feed back would be appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nu-to-no-glu Apprentice

Hooray :) Isn't it awesome to finally put the pieces together? AND...you have your sister for continued support! I'm glad you are feeling better...loads of people here are also self-diagnosed and never going back. This is an excellent place for resources, and...I'd say that since you are so much improved from the diet, you are on the right track. I'm almost to my 3 month mark gluten-free, and I'm never going back, either!

mushroom Proficient

Congratulations on completing the jigsaw puzzle :D Yes, many of us have to put the pieces together ourselves, and many do not believe we could have done it, after all, that is for the experts. But when the experts fail we do it ourselves, and once the puzzle is complete we don't break it apart again. How wonderful to have a sister to give you support and guidance; she will be an indispensable resource. Most of us are intolerant of dairy to start with, but down the road you may be able to add it back once you've healed. Your gut will still be sensitive for some time while it is healing, but eventually (from the sound of it) you will be good as gold :) If you run into any roadblocks or have any questions, don't hesitate to post a thread.

bellis Rookie
Congratulations on completing the jigsaw puzzle :D Yes, many of us have to put the pieces together ourselves, and many do not believe we could have done it, after all, that is for the experts. But when the experts fail we do it ourselves, and once the puzzle is complete we don't break it apart again. How wonderful to have a sister to give you support and guidance; she will be an indispensable resource. Most of us are intolerant of dairy to start with, but down the road you may be able to add it back once you've healed. Your gut will still be sensitive for some time while it is healing, but eventually (from the sound of it) you will be good as gold :) If you run into any roadblocks or have any questions, don't hesitate to post a thread.

Thank you! My wife is possibly Celiac as well, runs in her family! We are all Going gluten free. My children (4 and 5) both display symptoms. My son after 2 weeks gluten free is no longer a crabby zombie after kindergarten all day! Now just to get through our first gluten-free Thanksgiving! i just found out we have a gluten-free bakery 3 miles from our home -PECAN PIE!!!

ang1e0251 Contributor

You are so lucky that your sister is so supportive. Mine just gives me that glazed look.

and, seriously, pecan pie from a bakery? That's heaven!

ksymonds84 Enthusiast

So awesome that you have the families support, that will be such a huge blessing for you all! Happy Healing!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.