Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Not Really Sure What Is Wrong.


RubyRoses17

Recommended Posts

RubyRoses17 Rookie

Ok, I posted a post a couple days ago saying I was going to eat gluten again so I can get tested. I did NOT eat gluten, but I still wonder if I really have a problem with it. My only symptoms when I was eating gluten was bad pain in my intestine and nausea. Ever since I have been off the gluten I have had a lot of headaches, fatigue, and lack of energy which I NEVER had before I stopped eating it. When I would go to the doctors they could never figure out what was wrong. I was on a 2 week completely milk free diet and I even took prescribed antacids, but nothing worked. I stopped eating gluten in June 2008 and I did feel a lot better, but of course that meant I stopped eating greasy fried processed foods. I remember before I ever went gluten free I would eat Subway and it never made me sick. Then back in April 2009 I ate the gluten again and I was symptom free until I ate greasy and fried chicken at Friendly's. I got sick when I ate Friendly's, but it went away after 2 hours or less. Based on the symptoms I had when I was eating gluten does it sound like I could have gluten intolerance or does it sound like maybe I just had a big problem eating greasy and processed foods? Even now when I eat greasy hamburgers and french fries I get sick in my intestine area and get nauseated, but it's not as bad as it used to be because I don't eat it as much. Any help on what I should do would be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

Have you had your gallbladder checked?

RubyRoses17 Rookie
Have you had your gallbladder checked?

Hi Wolicki. Nope, I don't believe I have ever had my gallbladder checked. Maybe I should though because gall stones do run in the family.

RubyRoses17 Rookie
Ok, I posted a post a couple days ago saying I was going to eat gluten again so I can get tested. I did NOT eat gluten, but I still wonder if I really have a problem with it. My only symptoms when I was eating gluten was bad pain in my intestine and nausea. Ever since I have been off the gluten I have had a lot of headaches, fatigue, and lack of energy which I NEVER had before I stopped eating it. When I would go to the doctors they could never figure out what was wrong. I was on a 2 week completely milk free diet and I even took prescribed antacids, but nothing worked. I stopped eating gluten in June 2008 and I did feel a lot better, but of course that meant I stopped eating greasy fried processed foods. I remember before I ever went gluten free I would eat Subway and it never made me sick. Then back in April 2009 I ate the gluten again and I was symptom free until I ate greasy and fried chicken at Friendly's. I got sick when I ate Friendly's, but it went away after 2 hours or less. Based on the symptoms I had when I was eating gluten does it sound like I could have gluten intolerance or does it sound like maybe I just had a big problem eating greasy and processed foods? Even now when I eat greasy hamburgers and french fries I get sick in my intestine area and get nauseated, but it's not as bad as it used to be because I don't eat it as much. Any help on what I should do would be appreciated.

Tomorrow I am going to start eating gluten, but I am only going to eat the organic gluten filled foods except some Christmas Tree snack cakes. I am going to avoid all fried and greasy foods. I actually get hungry when I think about eating gluten, but when I think about eating gluten-free foods I lose my appetite. Please wish me luck everyone! I'll keep you all posted.

Wolicki Enthusiast

I had very similar symptoms when I had gallstones. Foods that really bothered me: pizza, peanut butter, mozzarella cheese, fried foods. Might want to check!

RubyRoses17 Rookie
I had very similar symptoms when I had gallstones. Foods that really bothered me: pizza, peanut butter, mozzarella cheese, fried foods. Might want to check!

I'll def get it checked. Well this morning I had a gluten filled Christmas Tree snack cake and a little while after I felt sick, but even when I was eating gluten free food I have felt worse. Then at about 12:00 p.m I hate some food which consisted of a chicken wrap with tortilla chips. I felt better after I ate, so I'm thinking I just got hungry since I felt better after I ate lunch. I kind of forgot that I didn't eat that much yesterday.

RubyRoses17 Rookie

Another update: Yesterday I ate 1 Christmas Tree snack cake, some naturally gluten free sour cream with a chicken wrap and tortilla chips, a bowl of vegetable barley soup, and a slice of real bread. Then today I ate almost 2 organic toaster pastries. I am actually feeling A LOT better both physically and mentally than I was when I was eating gluten free. I'm actually hungry and I am in no pain and I'm not nauseated, but when I was eating gluten free food I was still in pain and nauseated. I'm also eating more at once than I was when I was gluten-free. Weird, huh? Fingers crossed that I can eat gluten. For lunch today I'm going to have some organic Amy's frozen mac and cheese, but of course the gluten filled kind. Then for dinner I'm going to eat Subway.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
RubyRoses17 Rookie

Hi everyone. Well, I have been eating gluten for 3 weeks with NO symptoms. I'm feeling so much better and happier. So it looks like I don't have a problem with gluten. I wish you all the best of luck with everything and happy holidays. :D:)

jerseyangel Proficient
Hi everyone. Well, I have been eating gluten for 3 weeks with NO symptoms. I'm feeling so much better and happier. So it looks like I don't have a problem with gluten. I wish you all the best of luck with everything and happy holidays. :D:)

Glad you figured it out! Best of health to you :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.