Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Longevity


jasonD2

Recommended Posts

jasonD2 Experienced

Is it possible to still have a long and healthy life with celiac? Im reading all these articles on how there is a much higher mortality rate for people with celiac. Is this for undiagnosed/untreated or even for people who are on a gluten free diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Imanistj Contributor

Everything I have read says or implies that a strict gluten-free diet for life is very beneficial. No gluten, return to a healthy small bowel, no more villi damage... better absorption and better health.

spunky Contributor

I don't remember when or where I read it now, but at some point I came across some info implying that once you had been gluten free for 5 years, your risk for gluten-related diseases was pretty much the same as anybody else, no more.

I've also heard stories across the net of strict, careful gluten-free people, even some among them who were killing themselves with gluten, unknowingly of course, up until middle age, got very strict about their diets, and felt they were healthier in their old age than their peers. It may be that being so careful with gluten keeps people away from a lot of the junkie (and yummy) stuff... who knows. But my point is as bad as the news sometimes sounds, there is also a good likelihood of living to a healthy ripe old age, especially if you are careful.

MaryJones2 Enthusiast
Is it possible to still have a long and healthy life with celiac?

Yes. And, it can be a very happy life too if you choose to make it so.

psawyer Proficient

My understanding is that if you carefully follow the gluten-free diet, your health and life expectancy are the same as those of a person without celiac disease. If you strictly avoid gluten, it is the same as not having celiac disease in the first place. But, if you continue to eat gluten, your life expectancy is reduced by about ten years, and it is likely that you will suffer significant unpleasant symptoms over that reduced life span. Your choice.

YoloGx Rookie

I have read that if you follow a gluten free whole foods diet (without much in the way of sugars and additives) one actually is more likely to live to be quite old and more capable of being vigorous (assuming one keeps exercising). Further, people with celiac tend to be more physically flexible than others even into old age (due to difficulty absorbing minerals more than likely). I have read too there is a greater ability to not succumb to viruses and bacteria assuming one avoids cross contamination with gluten.

The opposite however is true if one doesn't follow a gluten-free diet if one has celiac. The likelihood of getting cancer for instance is greatly increased as well as a number of other degenertive illnesses as well as auto immune diseases and the all too prevalent colds, flue etc.

Bea

jasonD2 Experienced

Thanks, well I am definitely planning on sticking to the gluten-free diet but its inevitable that gluten will enter your body at some point unless you live in a bubble for the rest of your life. i guess it boils down to doing the best you can and hopefully science will give us a cure or treatment soon


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,705
    • Most Online (within 30 mins)
      7,748

    Doreen Brace
    Newest Member
    Doreen Brace
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.