Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated Over Products


cbear6301

Recommended Posts

cbear6301 Explorer

I really am finding this hard... I don't know what happened but I cannot shake being sick... I swear its not gluten though certain bodily things are pointing in that direction. I call, I write, I try and verify but its hard.

So I have some questions and maybe you can help?

1- if walmart says naturally gluten free, is it?

2- I love coffee.... but can't find which coffee is gluten free? Folgers, Maxwell House, Walmart Great Value.. etc.?

3- if my local grocery store, hyvee, publishes a gluten free list to shop buy, can I be reasonably certain that they are gluten free?

4- does dish detergent have gluten in it? all purpose cleaner for the kitchen? hand soap in the bathroom?

5- and my husband wants to know since we live in the midwest , and I got sick during harvest, could it be from wheat?

thanks for your patience


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Alot of people get sick from products that are gluten free. It depends on how little it takes for you to react. I have read on here that some people have reaction if they breath in gluten ie from flour dust. I do buy some things that are naturally gluten free and by trial and error have found some things I can eat and some I cant. As for the the cc issue you could call the manufacturer and ask if they used shared lines or different lines but same facility to help make a decision.

NorthernElf Enthusiast

1- if walmart says naturally gluten free, is it?

Probably - I relied on Walmart's gluten-free stuff for awhile - the stuff that didnt' say "contains gluten" but lately, as they have changed a lot of their packaging, not sure it's so reliable anymore (some formerly gluten free stuff no longer says so).

2- I love coffee.... but can't find which coffee is gluten free? Folgers, Maxwell House, Walmart Great Value.. etc.?

Coffee grinds are gluten free - coffee mixes (powdered stuff) may not be. Coffee can irritate an already glutened stomach and mimick glutening.

3- if my local grocery store, hyvee, publishes a gluten free list to shop buy, can I be reasonably certain that they are gluten free?

The list is accurate the day it is printed, all lists are subject to change as suppliers & conditions change.

4- does dish detergent have gluten in it? all purpose cleaner for the kitchen? hand soap in the bathroom?

Don't know this one - shampoos will often list wheat starch but I'm sure there are other ingredients I don't know of - anyone else ?????

5- and my husband wants to know since we live in the midwest , and I got sick during harvest, could it be from wheat?

You can get sick ingesting wheat dust in a bakery, but it might be a stretch to associate this....dunno.

ang1e0251 Contributor

I would say yes you can get sick during harvest. You drive by those fields and there is a cloud of dust in the air. It sticks to your car and dirties your house. We're mostly corn and soybeans here but the harvest concept is the same. When the particles are in the air, you breathe them and when you swallow it goes to your digestive system.

CeliacAndCfsCrusader Apprentice

My two cents.

I read EVERY label; to see if it's gluten-free, not gluten-free or if it's changed since the last time I've read it. The more you practice and buy the same brands, the faster this will be. Unless a brand/product is made in a 100% gluten-free environment (not necessarily typical), I don't "trust it" unless I read the label carefully.

I don't eat products made on "shared lines".

I drink Kirkland coffee from Costco. gluten-free, rich and cheap.

Makes sense you might get CC from the fields, see if it changes season to season.

While I do try and avoid soaps, shampoo, etc...I don't believe it's as important as things you ingest.

Whole Foods and some other companies are more "trustworthy" than others, but you'll be surprised by some things. Like adding oats into something that is supposed to be gluten-free. Oats are often contaminated and others simply can't seem to not react when they eat it (even the certified brands).

Good luck.

princessjessie Newbie

I use Maxwell House Instant coffee at home. I have never had a problem with it, except occasionally drinking it on an empty stomach will upset it. You could e-mail them to confirm the "gluten-free" status, but I'm almost positive it is. I'm very sensitive.

As for the gluten free shopping list, I wouldn't belive any list completely. Always double check items on lists. It's a great place to start, and for reference.

All household items-- well, actually, anything at all it seems can have gluten in it. Yes, dishsoaps and detergents and cleaners can have gluten in them. I just found out that my Polmolive is not gluten-free. It is a never ending struggle. The only way to be sure is to call companies and e-mail, and to do it frequently in case they change their formulas.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,345
    • Most Online (within 30 mins)
      7,748

    Louise Sullivan
    Newest Member
    Louise Sullivan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...