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New & Struggling.... Celiac?


Guest Pcphipps

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Guest Pcphipps

I have been struggling with GI symptoms and other symptoms for over 15 years. I have been diagnosed with the following.... Yeah - these ALL apply.

Fibromyalgia - Hashimotos - Major Depression - Brain Lesions (showed up 2 yrs ago) - Asthma - IBS (severe - had adenoma polups in '00) - Chronic Migraines - Hietal Herna / GERD - Insomnia - PTSD (domestic violence) - Carpal Tunnel - Cervical Disc Disease and others... yes there are more!

I am 39 and have been on medication for ALL of the above for years. I applied for SSI-DI and was turned down. I went to a pain clinic and the Dr. told me he thought I had MS or Celiac. I explained that I had blood test for celiac (10 yrs ago) and spinal tap for MS. He stated that bloodwork very rarely picks up on Celiac IF it is even done correctly ?????

I am going back for bloodwork again - and allergy testing - which has shown yeast anitbodies (that is the only one they test for at the Fibro Clinic)..... Anyone have an opionon on my medical issues?

I dont want to be sick. I have 5 children, and right now no income. I am thinkging of trying for SSI again. ANY HELP NEEDED AND APPRECIATED!

Recommended test? Opinion from Celiac Pros? Thanks!!! :(


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Wolicki Enthusiast

Your symptoms could be Celiac. At this point, you have nothing to lose by trying the gluten-free diet to see if it helps. Give it a strict try for 3 months. If it improves your symptoms, then you have your answer. I hope you feel better soon!

mushroom Proficient

Your symptoms certainly sound like they could be attributable to celiac. If you are intending to have the blood panel run again anyway, here is what should be ordered:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

The total Serum IGA is important because if this is low it can invalidate all the other tests. If you intend having the blood work done again, don't stop eating gluten until you are tested. Do let us know the results together with the lab's reference ranges..

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    • Scott Adams
      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
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    • Matthias
      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
    • Scott Adams
      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
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