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New & Struggling.... Celiac?


Guest Pcphipps

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Guest Pcphipps

I have been struggling with GI symptoms and other symptoms for over 15 years. I have been diagnosed with the following.... Yeah - these ALL apply.

Fibromyalgia - Hashimotos - Major Depression - Brain Lesions (showed up 2 yrs ago) - Asthma - IBS (severe - had adenoma polups in '00) - Chronic Migraines - Hietal Herna / GERD - Insomnia - PTSD (domestic violence) - Carpal Tunnel - Cervical Disc Disease and others... yes there are more!

I am 39 and have been on medication for ALL of the above for years. I applied for SSI-DI and was turned down. I went to a pain clinic and the Dr. told me he thought I had MS or Celiac. I explained that I had blood test for celiac (10 yrs ago) and spinal tap for MS. He stated that bloodwork very rarely picks up on Celiac IF it is even done correctly ?????

I am going back for bloodwork again - and allergy testing - which has shown yeast anitbodies (that is the only one they test for at the Fibro Clinic)..... Anyone have an opionon on my medical issues?

I dont want to be sick. I have 5 children, and right now no income. I am thinkging of trying for SSI again. ANY HELP NEEDED AND APPRECIATED!

Recommended test? Opinion from Celiac Pros? Thanks!!! :(


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Wolicki Enthusiast

Your symptoms could be Celiac. At this point, you have nothing to lose by trying the gluten-free diet to see if it helps. Give it a strict try for 3 months. If it improves your symptoms, then you have your answer. I hope you feel better soon!

mushroom Proficient

Your symptoms certainly sound like they could be attributable to celiac. If you are intending to have the blood panel run again anyway, here is what should be ordered:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

The total Serum IGA is important because if this is low it can invalidate all the other tests. If you intend having the blood work done again, don't stop eating gluten until you are tested. Do let us know the results together with the lab's reference ranges..

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      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
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    • trents
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    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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