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Endoscopy For 10 Year Old 12/15

zack

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zack Rookie
zack
Posted

My son is having endoscopy on 12/15 and prior to the test we had changed his pasta to gluten free but not his bread. My husband was diagnosed 3 months ago and has been gluten free and feels wonderful. My son has had negetive blood work ( My husband also) son is 10 weighs 54 pounds very skinny allergic to soy, malt, corn and oat. What should i try to have him eat for accurate biopsy????

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zack Rookie
zack
Posted
  • Author

Anyone have some advice!

bbuster Explorer
bbuster
Posted

I'm trying to remember - my son had an endoscopy at age 10 also, but that was 5 years ago.

As best I remember, the endo said that eating the equivalent of one piece of bread a day was enough.

zack Rookie
zack
Posted
  • Author

Did your son have negetive bloodwork and a positive biopsy?

bbuster Explorer
bbuster
Posted
Did your son have negetive bloodwork and a positive biopsy?

He had slightly positive bloodwork and a positive biopsy. He had no active GI symptoms, but was very small for his age - at 10.5 years, he weighed about 60 lbs and was only 50.5 inches tall. He was not "skinny" but was about average, except he had a distended belly.

zack Rookie
zack
Posted
  • Author

Any helpful info you can give would be great. My son's bloodwork was negetive his total iga was 78 and normal range was 73 to 200? He is 2 years behind in growth and weighs 55lbs at 10.6 years old.

He starts to gain weight every april (growth spurt) but then by next april he wil only gain 1-2 pounds if even. He projectile vomited regular formula and breast milk. I had to feed him soy formula now he is allergic to soy!! I just want a answer. My husband has celiac.

ravenwoodglass Mentor
ravenwoodglass
Posted

I am glad to hear that he is at least still eating gluten bread. Do take him back to a full gluten diet, go back to wheat pasta and give him any other gluten items he will eat. You want the best chance possible for an accurate test. As soon as the biopsy is done get him completely off of gluten. You don't need to wait for the results. Keep him gluten free for at least a couple of months to see if it helps whatever issues he is having. If his main issue is growth I personally would keep him on it for at least 6 months.

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