Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reducing Iodine


mhalpin12

Recommended Posts

mhalpin12 Apprentice

Given the role iodine plays in DH, I'm trying to reduce my intake. I have always taken a daily fish oil supplement to get the good omega 3 fatty acids. I use a high-quality product (Nordic Naturals), and as I checked it's gluten-free status yesterday on the bottle, I noticed that it said not to take it if you are allergic to iodine. I'm assuming the fish from which the oil is derived are the source of the iodine. I can't figure out if it's a LOT of iodine or what. Anyone have trouble with fish oil supplements exacerbating their DH symptoms? I'm wary of them for now, because I"m trying to get the rash to clear up. But this is a very important supplement for me and I don't want to lose it. I'm blanching at the thought of switching to a flax oil supplement as a substitute. Yucky taste. :(

Also, may I assume that the salt in prepackaged products is iodized? I"m thinking about things like Tostito's and potato chips, etc. Really salty things. I've switched my salt at home to non-iodized, but am wondering about cutting down on other salty things that might be giving me excess iodine.

Thanks! :)

Michelle in Tn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

I don't have information specific to Iodine and Celiac Disease, but can tell you I supplement with Fish Oil (had been lemon flavored Cod Liver Oil for about 7 months, but I recently switched to a Fish Oil capsule because I take enough supplements that it was getting hard to drink the spoonful of oil).

I thought that small amounts of Iodine were important to our diet, so I do hope others are able to provide more specific info.

VioletBlue Contributor

Iodine is important, particularly to the thyroid. That is why most table salt is supplemented with iodine. The average diet minus salt would not supply enough iodine. Without sufficient iodine you run the risk of goiter or worse. The body truely does need it. All seafood is going to be iodine rich including kelp.

Iodine allergies are extremely rare and if it were that you'd react every time you ate ocean fish. Could it be something else causing your reactions?

I don't have information specific to Iodine and Celiac Disease, but can tell you I supplement with Fish Oil (had been lemon flavored Cod Liver Oil for about 7 months, but I recently switched to a Fish Oil capsule because I take enough supplements that it was getting hard to drink the spoonful of oil).

I thought that small amounts of Iodine were important to our diet, so I do hope others are able to provide more specific info.

Glamour Explorer

There can be a ton of salt in packaged and frozen foods. Unless is says sea salt, they are most likely using the cheapest salt and I would not trust it.

I would think giving up those types of foods for a while would be a good idea until DH is well under control.

I am not sure about fish oil iodine content.

ChemistMama Contributor

The daily recommended dose of iodine for an adult is 150 mcg/day. One teaspoon of iodized salt has 400 mcg.

Open Original Shared Link

Open Original Shared Link

If your fish oil says that people with thyroid problems should be cautious, I wouldn't use them right now. Nordic Naturals sells purified fish oil that has a very low amount of iodine.

Violetblue, there is research that shows that iodine does play a part in DH breakouts, so in general people reduce their intake at least until their DH is under control. I've been a year gluten-free and now I can eat shellfish and kelp without getting a breakout. However, one month into my gluten-free diet, I had mussels and had an awful DH reaction.

celiac.com article about iodine and DH

THis page states that iodine is actually required for the DH reaction:

Open Original Shared Link

ravenwoodglass Mentor

I have, well had, severe DH. In the beginning I avoided it in supplements in any form. I also avoided shellfish and of course got rid of my iodized salt. I didn't worry about it in things like chips or what is added to canned veggies. I didn't have any issues with those and they didn't trigger a reaction. I could be wrong but I don't think companies routinely add iodized salt to prepared foods. I was very sensitive to even small amounts in supplements or in my iodized salt so I think if it was routinely used I would have reacted to salty foods that were preprepared also. After a year and a half gluten-free I was able to add shellfish back in and now usually have a bag of frozen shrimp in my freezer to add to my rice cooker for a quick dinner. I still don't use iodized salt. I use sea salt only and I have not developed any issues from a lack of supplementing iodine. It has been over 7 years since I stopped iodized salt and I doubt I will ever go back to it.

Thank you ChemistMama for the link. All should check those. The most important part to me of one is this-

"Iodine deficiency was frequently observed in landlocked regions of the US at the beginning of the 20th century necessitating iodine fortification of salt, an inexpensive and widely used seasoning. The development of iodine deficiency is no longer a problem, since landlocked regions receive produce grown in coastal areas where soil is rich in iodine."

Just because supplementation was needed over 100 years ago doesn't mean we need to today. Nature and transport of our food to areas that lacked it naturally have IMHO taken care of the issue.

mysecretcurse Contributor

The reason people are iodine deficient isn't because we don't get it in salt or foods... its because of OTHER toxic halogens such as bromines getting into the body and blocking the absorption of iodine. But that's a whole other huge complicated issue not really related to celiac disease. The iodine is just a part of the reaction which is being caused by gluten or other allergens/irritants (for me, corn, soy, and dairy also cause a reaction to my skin). Avoiding the iodine, an essential nutrient, because of the reaction caused by something else doesn't make a lot of sense to me, but I do understand why you would want to avoid excessive amounts while your DH is healing. Just make sure not to avoid it for long, as its extremely important. I have also wondered about the salt that is in prepackaged foods. There is no way to really know unless you call the company I guess.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ChemistMama Contributor

Could you post some links where you've seen studies where other halides block iodine absorption? I did some searching on how bromine acts in the body, and the only thing I could find is this weird instance where a guy drank 8 liters of ruby red squirt a day (contains brominated vegetable oil) and he had so much bromine in his system he got a nasty skin rash (they called it 'bromoderma'!)

Open Original Shared Link

VioletBlue Contributor

Yes I've read that Iodine PLAYS A PART in DH, but that is not the same thing as an allergic reation. A true allergic reaction involes histamines etc. An iodine allergy is rare simply because the human body manufactures it's own iodine and stores it. Someone being allergic to iodine would be like someone being allergic to calcium or iron or magnesium.

If you're going to regulate how much iodine you use you have to understand that it's present in many foods in small amounts, EVEN SEA SALT. Anything harvested from the sea will be rich in iodine, and sea salt is, well, SEA salt harvested directly from the sea.

Supplemented table salt does contain more iodine that sea salt, but sea salt is not 100% iodine free. Iodine can be in any food in trace amounts because it's in the soil in trace amounts. Avoiding iodine entirely is next to impossible. About all you can do is limit exposure by cutting out obvious sources such as table salt. Unless a product specifically says sea salt, it's a really good bet that most packaged foods with salt added use iodinized salt.

The daily recommended dose of iodine for an adult is 150 mcg/day. One teaspoon of iodized salt has 400 mcg.

Open Original Shared Link

Open Original Shared Link

If your fish oil says that people with thyroid problems should be cautious, I wouldn't use them right now. Nordic Naturals sells purified fish oil that has a very low amount of iodine.

Violetblue, there is research that shows that iodine does play a part in DH breakouts, so in general people reduce their intake at least until their DH is under control. I've been a year gluten-free and now I can eat shellfish and kelp without getting a breakout. However, one month into my gluten-free diet, I had mussels and had an awful DH reaction.

celiac.com article about iodine and DH

THis page states that iodine is actually required for the DH reaction:

Open Original Shared Link

  • 4 weeks later...
mysecretcurse Contributor

Open Original Shared Link

There is a link to some info.. there is also a lot of good info through that site that helped me when I was doing iodine therapy.

edit, sorry I totally jacked up that link. I don't know why it wont link to the direct page I'm trying for. Anyway, within the iodine forum go to "iodine answers" up at the top and it has a lot of info about halogens and iodine.

ravenwoodglass Mentor

Yes I've read that Iodine PLAYS A PART in DH, but that is not the same thing as an allergic reation. A true allergic reaction involes histamines etc. An iodine allergy is rare simply because the human body manufactures it's own iodine and stores it. Someone being allergic to iodine would be like someone being allergic to calcium or iron or magnesium.

The reaction folks with DH get from iodine is not an allergic reaction. What it does is to activate the antibodies in the skin. Although it is not a true allergic reaction my doctors note it as an allergy in my records. My doctor for example ordered a CT for me a while back and wrote specifically that I was not to have the iodine injection that is usually done.

Sea salt does have a lesser amount of iodine in it that iodized table salt. Perhaps that is why I was able to tolerate it even at the beginning. It did stop being an issue for me after a year or so on the diet. If someone is having a bad outbreak perhaps they should also avoid the sea salt for a short time till the flare resolves.

  • 4 weeks later...
Reba32 Rookie

when I was diagnosed with Grave's Disease (hyperthyroid) the endocrinologist told me to avoid packaged foods and table salt, because of the iodine levels.

I eat primarily a whole fresh foods diet, and I use kosher salt and sea salt only. The only "packaged" foods I eat are frozen vegetables and condiments like mayonnaise and salad dressing.

The typical salt intake in the Westernized diet it about 4 times what it needs to be. And as most of us consume iodized talbe salt, and eat mostly packaged foods, we're also getting too much iodine. Plus, it's included in pretty much every single multi-vitimin as well! I take an iodine free multi even.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.